Navigations SOC

Improving overall health outcomes by engaging #patients, #caregivers & #families at both individual & system level. #PxEngagement #Relationships #Representation

[Gerald Posner @geraldposner]

Iran’s hardliners think time is on their side: renewed military action spikes oil prices, hammers Gulf economies, and forces Trump to blink over domestic politics & 2026 midterms.

The Islamic Republic has run some variation of this playbook against the last 6 presidents—and won.
Trump 2.0 is different.

Iran may be underestimating how much the landscape has shifted—and how costly that misread could be, possibly a fatal miscalculation.

I think the hardliners are misreading the moment and their assumed leverage

[Neurocrine Biosciences @neurocrine]

Thank you to the Women in Government Leadership & Innovation Summit for a co-sponsored discussion by Neurocrine Biosciences and @ultragenyx on the challenges and opportunities across the rare disease journey, from diagnosis to transitions of care.

The conversation was moderated by California State Assemblymember Diane Dixon with panelists and experts in the rare disease community – Kimberly Haugstad from @RareRising_Org and Jamie Sullivan from @EveryLifeOrg for Rare Disease. The conversation explored how state leaders can create meaningful impact by elevating the voices of rare disease patients and families in policymaking. Thank you to all involved who helped make this discussion possible. #LIS2025

[Pop Base @PopBase]

Jimmy Kimmel tears up while talking about Donald Trump’s victory:

“It was a terrible night for women, for children, for the hundreds of thousands of hard working immigrants who make this country great, for health care, for our climate, for science, for journalism, for justice, for free speech”

[Navigations SOC @NavigationsSOC]

@Cigna you need to address this issue. People die like this.

[Beth Steckler (she/her) @purplemamabear]

So have not heard back from @Cigna today so looking at having to admit my son back into #hospital. So ridiculous. My son is so stressed and depressed. We were supposed to leave for the #holidays but now we cannot and he will most likely be stuck in the #hospital. Insurances so 1

[Navigations SOC @NavigationsSOC]

Great research on #medicaltrauma #EhlersDanlosSyndrome

[Beth Steckler (she/her) @purplemamabear]

Excellent article. Worthwhile read on #ClinicianAssociatedTrauma

https://t.co/dnGeehXFTd

[Navigations SOC @NavigationsSOC]

This is unfortunately very common for those w #raredisease

[Beth Steckler (she/her) @purplemamabear]

My daughter is coming home tonight for the #holidays. I should be ecstatic, but I am terrified. I moved her out of state to get #appropriate care for her #illnesses. For 4 years her life was placed in jeopardy in #NorthDakota at @SanfordHealth. I understand #miscommunication 1

[Navigations SOC @NavigationsSOC]

@Caitkeating

[Navigations SOC @NavigationsSOC]

Yes, it’s a long thread, yet many good points
#TakingCareOfMaya
#Healers #Boundaries #Respect #Harm

[Beth Steckler (she/her) @purplemamabear]

Long Thread: #TakingCareofMaya & #DoNoHarm

I’ve worked in #HumanServices field for over, well a very long time. I have believed since day ☝🏼 that while working in these fields are difficult & have come exceedingly more difficult we have a #responsibility to continue to assess 1

[Beth Steckler (she/her) @purplemamabear]

stay. No, it’s not fair bc we deserve supports and healthy cultures and our boundaries to be acknowledged.
In #TakingCareofMaya I can recognize there were concerns that did not to be addressed YET I believe that it could have been addressed far better, that many needed to tap 9

[Beth Steckler (she/her) @purplemamabear]

excellent #professionals work in this system forging ahead providing #care, safety, #compassion, #education while at same time rising #voice & pushing for change.
Once we are unable to do that. Once we see we are apathetic, that we do not speak out we do need to assess why we 8

[Navigations SOC @NavigationsSOC]

$373 #million dollars 💵
That’s how much #BigPharma spent in 2022 lobbying efforts.

[Beth Steckler (she/her) @purplemamabear]

In 2023 according to #Statista #pharmaceutical & #healthcare products industry spent approximately 373.74 #million dollars on #lobbying.

During that same time period #insurance companies spent approximately 158.54 #million.

#HealthcareInAmerica

[Navigations SOC @NavigationsSOC]

#Americans pay 4x the amount for #medications compared to other countries.
Agreed #MakeItMakeSense!!!!!

[Beth Steckler (she/her) @purplemamabear]

Did you know that #Americans pay almost 4x as much for #pharmaceutical #drugs as other developed countries? (Investopedia 9/23) #HealthCareInAmerica #MakeItMakeSense

[Navigations SOC @NavigationsSOC]

No one should be forced to move from one #state to another #state in order to get #compassionate, #appropriate, #patientcentered care. #NorthDakota #Healthcare

[Beth Steckler (she/her) @purplemamabear]

My baby girl is finally heading back to her ‘home’ in the Cities. She was only supposed to be here for a little over 24 hours but the weather in #NorthDakota held it up for a few days. Due to the continued severe fluctuations with T3 we have made 2 decisions. One, she cannot 1

[Navigations SOC @NavigationsSOC]

#Medicalbiases
Have you experienced medical bias during your care?
#MedTwitter

[Beth Steckler (she/her) @purplemamabear]

Numerous studies have examined the #impact of #bias on #healthcare; how often it occurs as well as the consequences. A few areas where bias can impact healthcare
1. #Gender
2. #Socioeconomic
3. #Confirmation bias
4. #Obesity
5. #MentalHealth

These are just a few areas 1

[Navigations SOC @NavigationsSOC]

#PainAwarenessMonth

[Beth Steckler (she/her) @purplemamabear]

Thread 🪡 #PainAwareness

For several years my daughter struggled to get access to #adequate, #appropriate & #compassionate care. Why?

My belief ➡️ #LTOT + #ComplexHealth + #Biases + + #Assumptions

Prior #healthcare prof chose to focus on the #opioids my daughter was on 1

[Navigations SOC @NavigationsSOC]

It’s amazing when a #patient can access competent & caring #healthcare the outcomes that can be achieved.
Include the #patient #voice always. Excluding their voice will only #harm. There will never be a positive outcome when you exclude the #patient.

[Beth Steckler (she/her) @purplemamabear]

This week it will be 2 months since my daughter left #NorthDakota in order to access appropriate, competent & #compassionate #healthcare.

For 4 years the care she received at @SanfordHealth was #dangerous & #abusive. Due to her #raredisease & fact she was on #LTOT she was 1

[greg @greg16676935420]

I wish taco trucks would cruise the neighborhood like ice cream trucks

[Lelena @LelenaPeacock]

The #healthcare system has abandoned patients w/ #ChronicIllness & #SeverePain.

A country that refuses to care for the sick & disabled is morally bankrupt & evil.

This is a recipe for modern day #eugenics.
Minimize symptoms.
Gaslight patient.
Deny care & dismiss patient. ⬇️

[Navigations SOC @NavigationsSOC]

#Insulin4All #Arizona #Urgent help needed. Please re-share!

[Beth Steckler (she/her) @purplemamabear]

#Urgent help needed. Freshman at @ASU in desperate need of an #OmniPod or a #LantusPen. T3 #Diabetic. The pharmacy they switched to had ‘issues’ getting scripts transferred yet did not inform family. She needs immediately. #Insulin4All #UrgentHelp #PleaseShare

[Dr. Chinazo Cunningham @DrChinazoOASAS]

Just published - our editorial on ending racial disparities in buprenorphine access for opioid use disorder. With recent changes to federal policies on bupe prescribing & worsening overdose deaths, now is the time to use bupe as a strategy to end racial disparities.