Neb 🤙

#verysevereME | ND🏳️‍🌈♿ |
Retired Twitch Partner, chronically ill & disabled.
Author of A SPARE KEY: A Time Travel Romance Novella

[Neb 🤙 @Nebulow]

My downfall. I was fit and healthy. Thriving. Until I develop CCI and through that, ME/CFS.
#mecfs #cci #chrinicillness #bedbound #verysevereme #millionsmissing #doyouseemenow

[Neb 🤙 @Nebulow]

I wanted to delete my account but I can't because I can't access my password lol. But I'll remove the app, so bye!! Take care everyone 🫂

[Niko Suvisto @nikosuvisto]

Since last September I’ve been working on my documentary-style photography series about my current life. “Enduring: Life with Severe ME/CFS” is featured as one of the launch exhibitions in our online art gallery A Quiet Storm. 1/3

#MECFS #pwME #SelfDocumentary #Photography

[Neb 🤙 @Nebulow]

Hi, I've not been using X whatsoever for a while. It's time to delete this account for good.

If you want to stay in touch, I'm on Instagram @ nebulow & author.line.langager.

[Neb 🤙 @Nebulow]

Want a free time travel romance? Mine is up for grabs today only!🥰✨
https://t.co/eW3fU0IdZW

[Neb 🤙 @Nebulow]

I opened my Etsy with all the art I've been making from my hospital bed 🫂 there are weekly planners, posters, stickers, hats and more🥹
https://t.co/4KvRp12QoP

[дарина 🇺🇦 @lilslimer69]

‼️ Please repost to help ‼️

Need help for vital treatments before I can qualify for thymectomy

Living with both #MECFS and #MyastheniaGravis has left me housebound at 28, unable to afford medications

My story, medical requirements, and links in thread ⬇️

#pwME #chronicillness

[Whitney Dafoe @DafoeWhitney]

One of the most challenging things about ME/CFS awareness even at the level of patients being understood by the people around them is that it defies so many illness tropes. You cannot "will" yourself to "beat" ME/CFS. And trying to will only result in hellish severity. #MECFS

[charlos @loscharlos]

LETS GO!!!!! GRANTS RESTORED🔥🔥

“#LongCOVID research grants from the National Institutes of Health’s RECOVER program will be restored following news stories about their abrupt cancellations and advocacy to restore the funding” — @thesicktimes https://t.co/76nvOVhA5E

[Neb 🤙 @Nebulow]

The municipality is going to send me home. I'm very severe and have benefitted greatly from being in this temporary nursing home. Why can't they see I need a permanent spot😭 #mecfs

[Neb 🤙 @Nebulow]

DM me if you want to read and review my little book for free! This story is a fictionalised memoir of my time working for a criminal at a burger shop. #arcreader #booktwt

[Neb 🤙 @Nebulow]

@DiaryofaSickGrl Myalgia ✨

[Neb 🤙 @Nebulow]

@lextaliones_ Hi!

[Neb 🤙 @Nebulow]

DM me if you want to read and review my little book for free! This story is a fictionalised memoir of my time working for a criminal at a burger shop. #arcreader #booktwt

[Neb 🤙 @Nebulow]

@C_Hamilton95 🫂🫂🫂🧡

[Neb 🤙 @Nebulow]

@bubblekittea My sweet friend. You are so loved

[Neb 🤙 @Nebulow]

@ThePOTSPostman Already had ME but it sent me from moderate to severe.

[Neb 🤙 @Nebulow]

On Tuesday an ME doctor is coming to see me here at the nursing home!! They're actually coming TO SEE ME

[Neb 🤙 @Nebulow]

I usually don't see angel numbers but today I've seen 111 4 times! And today was the release of my new book A Spare Key, so lets hope this means success and progress ✨🥹

[Neb 🤙 @Nebulow]

@Gmwetz Which protocol? I looked for it on your page but couldn't find t

[Neb 🤙 @Nebulow]

@baad_apple CONGRATULATIONS 🎉👏