Since last September I’ve been working on my documentary-style photography series about my current life. “Enduring: Life with Severe ME/CFS” is featured as one of the launch exhibitions in our online art gallery A Quiet Storm. 1/3
#MECFS#pwME#SelfDocumentary#Photography
Hi, I've not been using X whatsoever for a while. It's time to delete this account for good.
If you want to stay in touch, I'm on Instagram @ nebulow & author.line.langager.
I opened my Etsy with all the art I've been making from my hospital bed 🫂 there are weekly planners, posters, stickers, hats and more🥹
https://t.co/4KvRp12QoP
‼️ Please repost to help ‼️
Need help for vital treatments before I can qualify for thymectomy
Living with both #MECFS and #MyastheniaGravis has left me housebound at 28, unable to afford medications
My story, medical requirements, and links in thread ⬇️
#pwME#chronicillness
One of the most challenging things about ME/CFS awareness even at the level of patients being understood by the people around them is that it defies so many illness tropes. You cannot "will" yourself to "beat" ME/CFS. And trying to will only result in hellish severity. #MECFS
LETS GO!!!!! GRANTS RESTORED🔥🔥
“#LongCOVID research grants from the National Institutes of Health’s RECOVER program will be restored following news stories about their abrupt cancellations and advocacy to restore the funding” — @thesicktimes https://t.co/76nvOVhA5E
The municipality is going to send me home. I'm very severe and have benefitted greatly from being in this temporary nursing home. Why can't they see I need a permanent spot😭 #mecfs
DM me if you want to read and review my little book for free! This story is a fictionalised memoir of my time working for a criminal at a burger shop. #arcreader#booktwt
DM me if you want to read and review my little book for free! This story is a fictionalised memoir of my time working for a criminal at a burger shop. #arcreader#booktwt
I usually don't see angel numbers but today I've seen 111 4 times! And today was the release of my new book A Spare Key, so lets hope this means success and progress ✨🥹