NF Ireland

At NF Ireland we aim to be a voice for NF patients, carers and their families.
Reg Charity: CHY 6657

[NF Ireland @NfIreland]

💚 Mini Marathon 2026 💙
A huge thank you to everyone who ran, walked & fundraised for NF Ireland at this year's Vhi Women's Mini Marathon.
Whether in Dublin or taking part from elsewhere, every step helped raise awareness for Neurofibromatosis & support for the NF community.

[NF Ireland @NfIreland]

Women’s Mini Marathon Weekend
A huge thank you to everyone supporting NF Ireland this year. Best of luck to all our amazing runners and walkers this weekend🏃‍♀️
Join us afterwards for refreshments at Harcourt Bar & Garden, Dublin 2. Family and friends welcome 😊

[NF Ireland @NfIreland]

Women’s Mini Marathon Weekend 💚
Didn’t register? You can still Run for NF from anywhere in Ireland this weekend.
🏃 Run
🚶 Walk
💚 Raise Awareness
Every step supports the NF community.
📧 [email protected]

#RunForNF #NFAwarenessMonth

[NF Ireland @NfIreland]

💙 Today is NF2 Awareness Day 💚
NF Ireland is committed to increasing our focus on NF2-related schwannomatosis in Ireland through awareness, new information resources, and advocacy for better NF2 services & specialist care.
@ChildrensTumor @nf2biosolution1 @NervetumoursUK

[NF Ireland @NfIreland]

💙 NF Ireland is proud to partner with Nerve Tumours UK for the #ShineALightOnNF campaign this 17th May

Over 200 landmarks across Ireland & the UK will light up blue to raise awareness for Neurofibromatosis

📍Full list: https://t.co/0gb3Qk4pPu

@NervetumoursUK @centralbank_ie

[NF Ireland @NfIreland]

NF Awareness Day Family Meet-Up
📍 Emerald Park, Co. Meath
🗓️ 17th May 2026
Final opportunity to register for our cross-border family meet-up with Childhood Tumour Trust 💙
A welcoming day to connect, & meet other NF families.
👉 Full details: https://t.co/arXNRZUPHa

[NF Ireland @NfIreland]

NF Academy 2026 - Rotterdam
📍 22-28 August | Ages 19-35
A unique, week-long programme supporting young people affected by NF to become NF Ambassadors.
Travel, accommodation, and programme costs are fully covered.
⏰ Deadline: 10th May
👉 Apply: [email protected]
@NfPatients

[NF Ireland @NfIreland]

Kildare Inclusivity Festival
10th May at The Curragh Racecourse 🎉

NF Ireland will be there with a stand offering advice, info & support. We’d love to see our members, come say hello.

More info: https://t.co/wxdPLi5eSE

@access_maynooth @RareDiseasesIE

[NF Ireland @NfIreland]

May NF Awareness Month Newsletter 💙
NF Ireland's latest newsletter is now live, covering events, campaigns & ways to get involved this May.
Let’s shine a light on NF 💙
👉 Read & download: https://t.co/arXNRZUPHa

[NF Ireland @NfIreland]

Delighted to be selected as a Central Bank of Ireland charity partner for 2026/2027.
This partnership will strengthen support for individuals and families living with Neurofibromatosis across Ireland.
Thank you for your support 💚
@centralbank_ie

[NF Ireland @NfIreland]

Today’s the day 🏃‍♀️💛

Niamh Senior is running the Manchester Marathon in support of NF Ireland, for her little cousin and all those living with Neurofibromatosis.

If you can, please support 💛
🔗 https://t.co/GjmVaRmQPm
Go Niamh! 💪

[NF Ireland @NfIreland]

NF Academy 2026 - Rotterdam (22–28 Aug)
Applications are now open!
Open to patients & siblings (19–35) to become NF Ambassadors.
💡 Thanks to sponsors, travel, accommodation & academy costs covered.
🔗 Apply now: https://t.co/E2HwRjf6jy

[NF Ireland @NfIreland]

🏃‍♀️ Almost race day!
Niamh Senior is running the Manchester Marathon (19th April) for NF Ireland 💛

We’re so grateful for her support, if you can, please donate and help make a difference.

🔗 https://t.co/GjmVaRmQPm

@Marathon_Mcr @adidas

#ManchesterMarathon #NFawareness

[NF Ireland @NfIreland]

We are deeply saddened to share the passing of Rosaleen Francis Corr, founder member of NF Ireland and a much loved part of our community.

Our thoughts are with her family and friends.

Funeral Details: https://t.co/RRO9duYbuW

[NF Ireland @NfIreland]

NF Academy 2026 Rotterdam (22–28 Aug)
Aged 19–35. This is a unique opportunity to become an NF Ambassador
Join a 1-week training covering NF, advocacy, mental health, and patient involvement. Open to patients, siblings & young parents.
📩 Register interest: [email protected]

[NF Ireland @NfIreland]

🌟 NF Awareness Day Meet-up
📍 Emerald Park
🗓 May 17th
A cross-border family meet-up with NF Ireland & Childhood Tumour Trust — a great chance to connect and spend time together 💛
🔗 Info & register your interest:
https://t.co/kRxqJHNJfI

[NF Ireland @NfIreland]

💚 NF1 Webinar - 19 March | 2PM 💙
NF Ireland encourages our community to join this free webinar on Neurofibromatosis Type 1 (NF1) care, sponsored by Childhood Tumour Trust and organised by Rare Revolution Magazine.
🎟️ Register for free:
https://t.co/hHEhBN2LMw

[NF Ireland @NfIreland]

💚 NF1 Webinar - 19 March | 2PM 💙
NF Ireland encourages our community to join this free webinar on Neurofibromatosis Type 1 (NF1) care, sponsored by Childhood Tumour Trust and organised by Rare Revolution Magazine.
🎟️ Register for free:
https://t.co/hHEhBN2LMw

[NF Ireland @NfIreland]

CTT NF Summer Camp 2026
📅 25-28 July
📍 Shrewsbury, UK

Places open to young people from Ireland (12-17) living with NF.
Four days of fun, confidence-building & meeting others with NF.
👉 For details: [email protected] or contact us privately on Twitter.

[NF Ireland @NfIreland]

🏃‍♀️ Join Team NF Ireland
Vhi Women’s Mini Marathon 2026
📍 Dublin | 🗓 31 May
Run, walk or jog and support the NF community 💙
🎽 NF Ireland T-shirt
✔ Training tips & team support
Join Team NF Ireland & start your fundraiser:
https://t.co/daMPp0uFVV
#VhiWMM #TeamNFIrelan