Niall

Senior Public Affairs Adviser at @MNDassoc | Interested in social & environmental justice & Geopolitics 🌈 | @royalholloway @RHULGeography alumnus |

[Disability Rights UK @DisRightsUK]

🚨DR UK's Statement on the EHRC's New Code of Practice

"We are appalled at implications that an adequate workaround is trans people using Disabled toilets instead. We will not be used as a loophole in the wider erosion of trans rights."

Full statement👇
https://t.co/2eZAsJXdzV

[MND Campaigns @mndcampaigns]

NHS continuing healthcare (CHC) can be a lifeline for people with MND. But too many families face a process that’s confusing, inconsistent, and unfair.

We’ve joined 11 other charities calling on the Health Secretary to fix NHS CHC once and for all.

Sign the petition: https://t.co/ZTZhVC7tRB

[Dementia UK @DementiaUK]

NHS continuing healthcare (CHC) can be a lifeline for people with dementia.

But too many families face a process that’s confusing, inconsistent, and unfair.

As part of our #FixTheFunding campaign, we’re joining 11 other charities calling on the Health Secretary to fix NHS CHC.

Sign the petition: https://t.co/7HVQrGNT9n

@Britishpolio @CarersUK @DemCarersCount @HDA_tweeting @lbsorg @ParkinsonsUK @mndassoc @MDUK_News @NeuroAlliance @spinalinjuries @tide_carers

[Dementia UK @DementiaUK]

"Abandoned. Isolated. Unsupported."

That’s how people described the lack of support after a #dementia diagnosis at our roundtable with the Casey Commission on Adult Social Care today.

Now it's time to have your say on dementia care in England. Tell us what needs to change: https://t.co/Wh0A3XWXSy

[MND Campaigns @mndcampaigns]

This afternoon we met with Clive Betts, MP for Sheffield South East, to talk the need for accessible housing for people living with #MND.

Clive has agreed to support our #UnlockTheDoor campaign and will be writing to Sheffield City Council urging them to introduce a formal fast track process.

[MND Campaigns @mndcampaigns]

Today, we’re outside the Treasury reminding the Government that millions of real people across the country are impacted by every decision not to invest in social care. This Budget must be different. #FiguresThatMatter

https://t.co/nfwDqvIDqT

[MND Campaigns @mndcampaigns]

Big thank you to @NeilForPoole for meeting with us in Westminster to discuss our upcoming accessible housing campaign. 🏡

Thank you for your continued support for people with #MND in Poole and beyond.

[Niall @NiallMurphy_]

@GregBroadhurst Sounds like the building was meant to be part of your story in some way! 🏛️

[Niall @NiallMurphy_]

It’s been a very busy few months!

I’ve just posted a lil update over on LinkedIn about everything I’ve been up to over the last year👇

https://t.co/ThNQUWxHHs

[Niall @NiallMurphy_]

@DavidDjward @Emma_MacLennan Thinking of you both 🧡

[Niall @NiallMurphy_]

@FJMcNally @mndassoc Thank you for your continued support of the #MND community, @FJMcNally!

[Niall @NiallMurphy_]

This afternoon we handed in a petition with 21,000+ signatures to @DHSCgovuk.

Each one calls for urgent action so people with SOD1 #MND can access Tofersen, a treatment that could slow progression but is out of reach for too many.

#PrescribeLife

https://t.co/S2ZvWqIkO2

[Niall @NiallMurphy_]

We’re at Westminster for a Day of Action with @mndassoc’s #PrescribeLife campaign.

Tofersen offers hope to people with SOD1 #MND but NHS delays mean at least 20 can’t access it. Every day counts.

We need urgent action. No one should be left behind.

🔗 https://t.co/Oqzn5hftTD

[Niall @NiallMurphy_]

Over 21,400 people have signed our #PrescribeLife petition.

Makes sure you add your voice before it closes 👇

[MND Association @mndassoc]

You still have time to sign our #PrescribeLife petition ⏲️

Your support will help to urge the government to make #tofersen accessible to people living with SOD1 #MND.

You can sign here 👇

[MND Association @mndassoc]

You still have time to sign our #PrescribeLife petition ⏲️

Your support will help to urge the government to make #tofersen accessible to people living with SOD1 #MND.

You can sign here 👇

[MND Campaigns @mndcampaigns]

Today we met with @Ms_Alex_Baker MP to discuss ways to support people living with and affected by #MND in Aldershot and Farnborough.

Alex has committed to joining the @APPGonMND and working with us to ensure the MND community get the help they need. Thank you Alex for your support!

[Niall @NiallMurphy_]

@mndcampaigns Fantastic news!

[MND Campaigns @mndcampaigns]

We're so close to 20k signatures! Thank you to everyone who has signed the #PrescribeLife petition so far.

There's still time to sign to help people living with SOD1 #MND access #tofersen 👇

https://t.co/K3cr7nV5oD

[Niall @NiallMurphy_]

@mndassocWALES @mndcampaigns @mndassoc 👏 👏 👏 👏