I've launched a GoFundMe to help w/ our move from CA to MN. We're trying to avoid imminent homelessness after being displaced by the Eaton #Wildfire last year. Details in the listing. I appreciate your help whether by donation or simply sharing this link.
https://t.co/pWmzKKcWSU
@endthehiding @BostonGlobe Your overlord Stephen Miller must be so proud of you, one of his white supremacist protégés. Pathetic excuse for a human being! So I guess you’ll be first in line to take one of their job…or is it beneath you?
@1goodtern This is the reason I can no longer work in schools. I’d have to remove my mask to eat which isn’t an option. That and the fact that 2-way masking is the most effective prevention, but that went the way of the dinosaurs.
New Mexico has issued a public health order that removes federal restrictions to COVID-19 vaccine access so that pharmacies in New Mexico can vaccinate people of all ages and risk profiles. Every state needs to do this!
@NeurologistMom I have a 26 yo daughter with severe to very severe ME as well as POTS, MCAS, EDS, and probable gastroparesis thanks to a Covid infection in Jan. 2020. I’m happy to support what you’re doing. When you’re ready, let me know how I can help. Thanks.
@MEActNOW@NeurologistMom Would you mind DMing me your IV protocol? My daughter has benefitted from IV treatments with the Myers cocktail with zinc, but that was when she was still moderate. She’s now very severe. Thanks.
@MammaBear3333@Albazealba@NeurologistMom My daughter caught Covid in January 2020, well before there was a vaccine. She has had symptoms of Long Covid since then and has gotten progressively worse. So, yeah, I don't blame vaccines.
@DafoeWhitney@renamemecfs You're an inspiration, and I'm happy to hear that you've seen some improvement. I'm just wondering how Abilify, which appears to be a psychiatric medication, was able to help you physically. I know there's a mind/body connection, so I'm very curious to hear your thoughts.
6/ that will alleviate these worrying symptoms and get her on a path to improving her baseline. I welcome any and all valid suggestions for doctors and any other well-meaning advice. Thank you. #MECFS#LongCovid
1/ My daughter has been suffering from ME/CFS, POTS, MCAS, EDS and probable gastroparesis since contracting Covid in January 2020, and her baseline over the past several months (since evacuating from the Los Angeles Eaton wildfire in January) has plummeted. #MECFS#LongCovid
5/ someone who can confidently make that determination and help her get to the point where she can eat, drink and sleep.
We’re in Los Angeles County and need to find an ME/CFS specialist or any doctor who has a strong understanding of the illness that can help her get treatment
4/ (bananas, rice, apples, and toast). Even though all she’s injested is apple juice since yesterday afternoon, she is vomiting it all out and is absolutely terrified of her extreme, negative baseline shift. It’s possible that it’s just an intense PEM episode, but she needs
3/ and Zofran for nausea, and also ran a series of tests and procedures. Everything came up negative and ECG and x-rays showed no areas of concern. She was given an RX for the nausea and was told to just drink clear liquids for a day then introduce the BRAT diet
2/ In the past few days, she has been unable to keep any food or drink down, has been having severe temperature dysregulation, and is struggling to sleep due to the intense pain in her abdomen. She went to the ER yesterday, where they gave her two bags of saline for dehydration..