OMT Parent Voices

One More Thing Parent group advocates for change in systems to minimize the One More Thing that parents of children with disabilities navigate every single day!

[OMT Parent Voices @OneMoreThing2Do]

@stephparavan @weathernetwork @BlacksWeather Wow Steph!!!

[OMT Parent Voices @OneMoreThing2Do]

A memorial bench in honour of @GrandmaKim has been installed at Brittania beach. She loved to walk there. Loved the water. And loved people. Please visit and sit a minute.

[OMT Parent Voices @OneMoreThing2Do]

It has been one full year since we lost OMT co-founder @GrandmaKim. We miss her so much. She was a mother, grandmother, sister, friend, fighter and advocate. She was simply amazing. 💗

[OMT Parent Voices @OneMoreThing2Do]

@Monika_Dutt Would be happy to chat!

[OMT Parent Voices @OneMoreThing2Do]

We are so happy to see CHEO recognize and honour our co-founder @GrandmaKim! Kim would be thrilled to know that funds have been dedicated to accessibility in her honour.

[OMT Parent Voices @OneMoreThing2Do]

It’s been a long time since we used this account! Can’t think of a better time to re-engage than by announcing this fundraiser. https://t.co/F29CXPWvae

[OMT Parent Voices @OneMoreThing2Do]

@AlexMunter It is hard to imagine a world without either of them. 💗

[OMT Parent Voices @OneMoreThing2Do]

This!

[Kim McLeod @GrandmaKim]

You are not lazy, unmotivated or stuck.

After years of living your life in survival mode, you are exhausted.

There is a difference.
By Nakiea Homer

#medicalMom #bereaved #healthcaresystem. #survivor

[The Globe and Mail @globeandmail]

For parents of kids with complex needs, COVID-19 school disruptions mean losing a lifeline of key supports https://t.co/tBbVhLQP2U

[OMT Parent Voices @OneMoreThing2Do]

If you are a parent of a child with a physical disability and you are looking for people who ‘get it’ then please join our Facebook group
Our mission is to offer each other compassionate space to share and be heard #community #parent #Disability
https://t.co/u0Y855KCzx

[OMT Parent Voices @OneMoreThing2Do]

#enough is good for now

[Kim McLeod @GrandmaKim]

It’s been a struggle to comment on life of the #MedicalMom today But found this on IG from Rebel Pebble 🙏🏽♥️ to mamas out there #enough for now

[OMT Parent Voices @OneMoreThing2Do]

The Feeling are Normal responses to extraordinary circumstances. #empathy

[Kim McLeod @GrandmaKim]

It should be expected that the paediatric parent /#MedicalMom will be ...
Frustrated
Angry
Crying
Withdrawn.
These are natural human reactions to impossible situations of which few professionals know or see the full picture.
#compassion #education #empathy

[OMT Parent Voices @OneMoreThing2Do]

⚠️trigger warning ⚠️
Being “that parent” is a hurdle we all face.
#patient #person #communication #thatparent

[Healthy Debate @HealthyDebate]

The hashtag #thatparent is sometimes used by #parents who find themselves labelled "difficult" because of their #advocacy in the #healthcare system.

Why do we make them feel uncomfortable for trying to be the best parents they can be?

By @sblemay

https://t.co/iXSJN4PNXv

[Kim McLeod @GrandmaKim]

Thank you for this. Peads moms/caregiving are hanging by a thread. Saving Heath systems up front - clearly not long term @fordnation @celliottability cite CHEO Thrive report Pg 50
@AlexMunter ⬇️ #kidscomefirst won’t work if caregivers are ill or dying
@OneMoreThing2Do

[Julie Drury @SolidFooting]

Did anyone else know there’s a rare disease podcast!

Awesome
cc @raredisorders @MitoCanada @rarediseasefdn @sickboypodcast @NightShiftMD @williamslaura @HeatherPina44 @alungstory @StartWithHills @CareForRare @OneMoreThing2Do

[OMT Parent Voices @OneMoreThing2Do]

Important read!!!
#specialneeds #parenting #survival

[Eyal Cohen @dreyalcohen]

Some new work published today on parental caregiver mortality led by Dr. Anne Fuller @SickKidsNews in collaboration with colleagues at @dceaarhus (including @toftsorensen & @ehrensteinvera) & @UnityHealthTO.

[Erin Gilmer (Legacy) @GilmerHealthLaw]

This is the reality of disability. It's a system that dehumanizes a person at any age. It's a system where one word, like "mild", may mean you don't get the help you need. It's a system of manufactured scarcity. It's a system that breaks you.

Wonderful piece by @Lollardfish.

[OMT Parent Voices @OneMoreThing2Do]

Quick Poll on Who Can I Talk To? From our parent group.
Little surprise for us was having the question added by a member ..15% replied “I really don’t have anyone to talk to” #specialneeds #families

[OMT Parent Voices @OneMoreThing2Do]

Any parent who advocates struggles with the emotional management pre, during and post advocacy. #parenteducation #advocacytraining

[Kim McLeod @GrandmaKim]

Upcoming Workshop for newer parents beginning their advocacy journeys.
Building foundations of confidence for sitting at the table seeking services and supports

https://t.co/XLE9yhX2dY

[OMT Parent Voices @OneMoreThing2Do]

OMT families!! We have a great friend speaking this Saturday. We encourage you to join her!