OpenTrials

All the data, on all the trials, linked. An @okfn project led by @bengoldacre. Also working on #OpenTrialsFDA:

[OpenTrials @opentrials]

End of OpenTrials Phase 1: A summary

https://t.co/JBqExQ58M0

#clinicaltrials #medicine #medicalresearch #pharma #openscience #opendata

[Ben Goldacre @bengoldacre]

@COMPare_Trials We sent correction letters on every misreported clinical trial in the world's biggest medical journals, to see how the editors - and the trialists - would react.

What happened next?

https://t.co/Dzfl1hJ37t

https://t.co/0IAUMGAMqm

...

[Ben Goldacre @bengoldacre]

I am very pleased to say that TWO NEW PAPERS are out TODAY from my group.

They represent one of the most challenging, interesting, and exciting projects I have ever been involved in, across my entire 44 years of nerdy life-course.

Ladies and gentlemen: @COMPare_Trials is out..

[The BMJ @bmj_latest]

Half of European clinical trials have not complied with EU rules on reporting results, finds new study https://t.co/pwTtmcW6ue @bengoldacre et al

[Sense about Science @senseaboutsci]

Half of Europe's clinical trials - 49% - haven't reported results on the EU register and are breaking the EU's rules.
The majority of these unreported trials are from Europe's universities and hospitals.
Read about the new EU TrialsTracker https://t.co/YiwGq8o5F6 #AllTrials

[OpenTrials @opentrials]

Statistics on reported #clinicaltrials data of the #FDA shows there is a lot of room for improvement! #transparency #opentrials #alltrials https://t.co/JybgpvXawN

[Ben Goldacre @bengoldacre]

BING BONG NEW DATA

There are now 228 trials reported out of 376 due under FDAAA.

That's only 60.6% reported.

Fines @US_FDA could have claimed: $35,320,157.

Fines @US_FDA have claimed: $0.

https://t.co/9ltjnVCazk
#AllTrials

[OpenTrials @opentrials]

"The best currently available evidence shows that about half of all #clinicaltrials don't report their results. Doctors and patients can't make informed choices about treatments, when half the data is missing." - great initiative in @bmj_latest to fix this problem! #transparency https://t.co/T5nawvzRTa

[Ben Goldacre @bengoldacre]

FANFARE. DRUMS.

Introducing a new regular series in the BMJ.

"Unreported Clinical Trial Of The Week."

#alltrials

https://t.co/Mn9iWtLKOD

https://t.co/64emALBheD

[Ben Meghreblian @benmeg]

New paper exploring discrepancies on #clinicaltrials registries, using @opentrials data https://t.co/orFrg6n27b

Kudos to @jessicajaneflem & @bengoldacre (@EBMDataLab)

cc: @nlm_news @NIH @EMA_News @OKFN @vitorbaptista @jwyg @LJA_Foundation @StuartBuck1 @TranspariMED @openscience

[Technical.ly @Technical_ly]

"There's enormous change on the horizon" when it comes to cancer innovation, says @JoeBiden.

One specific thing that needs to get done? Breaking down research silos and pushing for open data

#Axios360

[Health Action International @HAImedicines]

Have a read of this to find out what's on @opentrials recommended reading list & how you can help them make #ClinicalTrials data accessible! https://t.co/6wAJnTmpKj

[TranspariMED @TranspariMED]

Over 3,000 clinical trials sponsored by top UK universities are missing results #clinicaltrials #EBM #openscience
https://t.co/LEjtAfaxSp

[Open Knowledge Foundation (@[email protected]) @OKFN]

Great to see @HelloHunnicutt use @opentrials API in the Clinical trial data viz tool https://t.co/TgYwlI8DmF #opentrials

[Jeannie Hunnicutt @HelloHunnicutt]

Clinical trial data viz tool I made using the @opentrials API (Still the beta of the API so the data is incomplete) https://t.co/uHyKV7JB9y

[LSHTM Open Research @LSHTMopen]

5 ways to find #openaccess research including @ethosbl @DOAJplus @OA_Button and
@opentrials https://t.co/6HJ2Hoqdy3

[Ben Meghreblian @benmeg]

Tomorrow! Includes @opentrials data https://t.co/rwolXhYqEk

[Ben Meghreblian @benmeg]

I'll be speaking about @opentrials at this event on 20th May: https://t.co/FT1vJi8VwV #ddj #datajournalism #EIJC17 #clinicaltrials #medicine https://t.co/L8stXIhkGk

[Open Knowledge Foundation (@[email protected]) @OKFN]

Introducing the 4th Global Open Data Index – Advancing the State of Open Data Through Dialogue https://t.co/CzYXnkNU9J #GODI16

[General Medicine and Medical Evidence @ BMC @MedicalEvidence]

Just 1 year on from the #Trialsjournal article & what has @opentrials achieved? *spoiler* it's impressive! https://t.co/g8VKdB64MZ

[OpenTrials @opentrials]

We've just added 2 new data sources (@GSK & @ISRCTN) to OpenTrials following helpful changes to their licences: https://t.co/vCJpqERo9L

[OpenTrials @opentrials]

ICYMI: OpenTrials is finishing up Phase 1 of its project - here's a long summary of what we've accomplished so far: https://t.co/vjNlpAdC6z

[OpenTrials @opentrials]

OpenTrials has reached the end of Phase 1 - read a summary of what we've accomplished + some challenges & successes

https://t.co/vjNlpAdC6z