PBD Canada

PBD Canada is a support/awareness community for Peroxisomal Biogenesis Disorders.

[PBD Canada @PBDCanada]

Meet our hope givers, Erminia Di Pietro 💫

Rencontrez nos donneurs d'espoir : Erminia Di Pietro 💫

#PBDCanada #MUHC #Pbd #zellwegersyndrome #syndromedezellweger #research #hope https://t.co/mHDfn3zD0z

[PBD Canada @PBDCanada]

https://t.co/yiNcQmbdxf

[PBD Canada @PBDCanada]

Oui ... c'est la fondatrice de Lily's List sur cette photo, Taylor Costello. Le seul violet qu'elle possède est sous la forme de leggings et aujourd'hui elle les porte fièrement puisque c’est la... https://t.co/Y8p2HFUNKe

[PBD Canada @PBDCanada]

Le saviez-vous? 🌎

🗓Du 10 au 15 juillet, le GFPD organisera une conférence familiale et scientifique à Washington D.C. La conférence réunira des patients atteints d'un Trouble de la Biogenèse des... https://t.co/COT6pVYQqY

[PBD Canada @PBDCanada]

Our lucky winner for the T-shirt giveaway is...🎉

We will be in contact with you soon! 🤗

Thanks everyone for participating!
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L’heureuse gagnante pour notre concours de T-shirt est...🎉

Nous entrerons en contact... https://t.co/RzbfaZV56Y

[PBD Canada @PBDCanada]

Today, 3 March is World Hearing Day👂🏼

On World Hearing Day 2019, WHO will draw attention to the importance of early identification and intervention for hearing loss.

Children affected by a... https://t.co/f4SKHfMoag

[PBD Canada @PBDCanada]

Yesterday one of our cofounder spoke at the event ´Research and Reach out’ for Rare Disease Day in Montreal.

« Before giving birth to my son, I must admit that I was not really aware of the... https://t.co/cb8ICQHY91

[PBD Canada @PBDCanada]

Le NCSM Ottawa manifeste son appui pour la Journée des maladies rares! 🦓

Merci de contribuer à la sensibilisation aux maladies rares!
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HMCS Ottawa showing their support for Rare Disease Day! 🦓... https://t.co/XdoyLz8vFJ

[PBD Canada @PBDCanada]

Aujourd'hui, nous célébrons la Journée des maladies rares!

C’est une belle journée pour sensibiliser les gens à propos de toutes les maladies rares existantes, de plaidoyer en faveur de traitements, de protocoles... https://t.co/evzsG6JFO4

[PBD Canada @PBDCanada]

HAPPY BIRTHDAY to PBD Canada! 🎉

Wow, one year has flown by so fast and in that year, we have been able to connect with many families, physicians across Canada and raise awareness!

With the help of our generous friends and family and... https://t.co/5QbpadibF3

[PBD Canada @PBDCanada]

#RareDiseaseDay est le 28 février!

PBD Canada est fier de soutenir le groupe d'intérêt sur les maladies rares de McGill!

Cette année, le Dr Mousumi Bose, mère d’Ilan, né avec un trouble du spectre de Zellweger, sera... https://t.co/Ajjth3LZMv

[PBD Canada @PBDCanada]

Le saviez-vous? | Did you know? 🤔

[PBD Canada @PBDCanada]

PBD Canada is proud to support RareDIG! 🦓

RareDIG ia a group who aim to encourage medical students to adopt attitudes that will benefit patients with rare diseases and continue to provide a... https://t.co/UmBFOrlx1x

[PBD Canada @PBDCanada]

Here is another story about an amazing family facing a #PeroxisomalBiogenesisDisorder.

« I remember entering in the hospital to receive the diagnosis and exiting completely changed. »

Bianca, mom of Jérémy &... https://t.co/leWxO8YuW4

[PBD Canada @PBDCanada]

Le saviez-vous? | Did you know?
🧐
#syndromedezellweger #zellwegersyndrome #rarediseaseday2019 #CORD #RareDiseaseDay #RareDisease #PBDCanada #PeroxisomalBiogenesisDisorder #DidYouKnow

[PBD Canada @PBDCanada]

✨Here you can read a great story about a PBD Warrior:
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✨Ici, vous pouvez lire une belle histoire à propos d'un guerrier PBD:

https://t.co/y8w6rtWkYS https://t.co/y8w6rtWkYS

[PBD Canada @PBDCanada]

💞Joyeuse Saint-Valentin! | Happy Valentine’s Day!💞

#valentinesday #zellwegersyndrome #peroxisomalbiogenesisdisorder #pbd #PBDCanada #RareDisease #syndromedezellweger https://t.co/t4q6aQpdJN

[PBD Canada @PBDCanada]

Le saviez-vous? | Did you know?

#rarediseaseday2019 #raredisease #PBD #PeroxisomalBiogenesisDisorder #1in12 #zellwegersyndrome #showyourrare #PBDCanada

[PBD Canada @PBDCanada]

Did you know? | Le saviez-vous?

#rarediseaseday2019 #pbdcanada #ZellwegerSyndrome #1in12 #RareDisease #peroxisomalbiogenesisdisorder #showyourrare

[PBD Canada @PBDCanada]

Did you know? | Le saviez-vous?
🦓🦓🦓🦓🦓🦓🦓🦓🦓🦓

#RareDisease #rarediseaseday2019 #RareDiseaseDay #ZellwegerSyndrome #PeroxisomalBiogenesisDisorder #PBDCanada #PBD #ShowYourRare