PEARL Cohort Data Linkage

Facilitating linkage based data science in longitudinal and interventional research studies to help build a healthier and happier world #datasaveslives @co90s

[PEARL Cohort Data Linkage @PEARLdata]

*COVID update* The PEARL team are WFH and continue to support data linkage for exciting projects in health and social research. For any research queries contact:
[email protected] #StayAtHomeSaveLives

[Chris Roberts @ChrisRobertsSU]

“The dedicated SeRP for ALSPAC, means our team is able to take control of our data access model..." - the latest SeRP case study about how we're enabling ALSPAC/@CO90s longitudinal study - the most detailed of its kind - identify important health factors. https://t.co/EivrrFh4Ha

[Children of the 90s @CO90s]

*Research update* We're building a detailed picture of how #COVID19 & #lockdown have affected our participants’ health, finances, families and lifestyle by linking our data to their #NHS records & COVID Symptom Study app data. Learn more: https://t.co/YIotUziaCP

[PEARL Cohort Data Linkage @PEARLdata]

Delighted to announce we'll be collaborating with @Jo_Newbury @WellcomeTrust fellow to investigate in @CO90s the relationship between local neighbourhood conditions & #mentalhealth during the #COVID19 lockdown. Massive thanks for funding support from @BritishAcademy_ #datalinkage

[PEARL Cohort Data Linkage @PEARLdata]

*New project launch* We're delighted to be working with @NuffieldFound @UoBrisSPS @DinithiWijedasa using data linkage to investigate mental health service provision for children in state care in England https://t.co/Io4mXFMtdg

[Children of the 90s @CO90s]

Our tech partners @SwanseaUni in collaboration with @PEARLdata host a secure research data platform that allows researchers to answer important questions about health and wellbeing. None of which is possible without all our amazing participants! #datasaveslive

[PEARL Cohort Data Linkage @PEARLdata]

*new publication* An investigation using data from @co90s and linked records to understand reporting accuracy of social work contact in longitudinal studies with Meng Le Zhang @sinyicheung @ProfJScourfield @_andy_boyd @ElaineSharland https://t.co/O0WmteW9ea

[Gareth Griffith @Garethjgriffith]

Myself and the excellent @jonathanasterne wrote a blog post expanding on our recent paper.

The post aims to more clearly articulate why we should be cautious about #selectionbias in #COVIDー19 studies looking in hospitalised patients.

Here's a quick #epitwitter tweetorial:

[Children of the 90s @CO90s]

#COVID19: a defining moment for longitudinal research? New blog post from @r0bdavies at @CLOSER_UK on harnessing the power of longitudinal studies to understand both the immediate and long-term impacts of the pandemic https://t.co/MXooMTlbG7

[PEARL Cohort Data Linkage @PEARLdata]

An excellent list of vital #COVIDー19 research questions for topics including data access/linkage, behavioural change, environment, physical & mental health, epidemiology and inequalities #datasaves @CO90s

[University of Bristol @BristolUni]

Our experts will play a critical role in new UK consortium by making essential reagents for scientists working on #coronavirus vaccine and testing research. https://t.co/KxLeiSt6fY
#WeAreTogether

[PEARL Cohort Data Linkage @PEARLdata]

A fantastic review of the risk of collider bias by @mrc_ieu re #COVID19. Data linkage between cohorts and health registers can reduce these risks by including participants under less selection pressure and data on demographic factors predicting inclusion #datasaveslives

[CAPC, Bristol @capcbristol]

Dramatic results - study reports a 30-fold increase in #domesticabuse referrals across 205 #generalpractices in London over 4 years. @QMUL @ARC_nt research with our @DV_Bristol team & @irisintervent.
Lessons for #primarycare response to #DVA during #COVID19.
@NIHRevidence

[PEARL Cohort Data Linkage @PEARLdata]

We're delighted to be involved in data linkage for the @HDR_UK funded partnership to improve healthcare policy in the #southwest and providing opportunities for world-leading research @CO90s #datasaveslives

[CAPC, Bristol @capcbristol]

A new @HDR_UK funded partnership led by @BristolUni will join up data & improve #patient care in the #SouthWest. The Better Care South West Partnership will drive forward data-led research projects & join up the region’s considerable #healthdata expertise.
https://t.co/teoNr8SAJP

[CAPC, Bristol @capcbristol]

Good news - this initiative comes at a critical time for joining up health & care data in our region. Co-led by @capcbristol's John Macleod & @BristolUni's @jonathanasterne.

@ARC_West @BNSSGResearch @NHSscwcsu @NorthBristolNHS @uhbwNHS @UniofBath @UniofExeter @BristolBRC @HDR_UK

[PEARL Cohort Data Linkage @PEARLdata]

@LowthianEmily @GroupSlls @CO90s Fantastic! Keep us updated on your work and any help we can provide on publicising when you come to write up and present your findings 👏

[PEARL Cohort Data Linkage @PEARLdata]

For @CO90s researchers - have you used ALSPAC data linked to health/social records for your research? We're looking to showcase projects made possible by linkage for some #goodnews while we're #selfisolating
DM or comment so we can celebrate some great research

[PEARL Cohort Data Linkage @PEARLdata]

@Jo_Newbury

[PEARL Cohort Data Linkage @PEARLdata]

On #EarthDay50 we're proud to link @Co90s data to environmental exposures inc. air pollution, green space & UV exposure w/ 12 EU cohorts in @LifeCycle_EU , supporting projects w/ @JoNewbury, @Ferguson7055, @LeicesterGeog & availability for future research https://t.co/GQ7CJjp7OK

[Elizabeth Blackwell Institute @EBIBristol]

Bristol researchers set to begin COVID-19 vaccine trials 👏@adamhfinn @BristolUncover @OxResServ @UniofOxford

Read about it: https://t.co/kaxwQgxUzH

[PEARL Cohort Data Linkage @PEARLdata]

@spuddybike @CLOSER_UK @CO90s @BristolTARG @SASHBristol @mrc_ieu We did mention ALSPAC data but discussion of data linkage with other cohorts is definitely welcome!

[PEARL Cohort Data Linkage @PEARLdata]

@CO90s researchers - have you used ALSPAC data linked to health/social records for your research? We're looking to showcase projects made possible by linkage for some #goodnews while we're #selfisolating @BristolTARG @SASHBristol @mrc_ieu @CLOSER_UK

[PEARL Cohort Data Linkage @PEARLdata]

@spuddybike @CLOSER_UK @CO90s @BristolTARG @SASHBristol @mrc_ieu Excellent point but, of course, not all researchers involved in data linkage are active on twitter. We'd love to hear from researchers who have worked with data linkage and discuss what advances in research/policy have come from their work.