Bristol Palliative and End of Life Care Research

Based at @bristoluni, a group of professionals conducting palliative and end-of-life care research. Coordinated by @C_A_Chamberlain, @Lucy_Selman and @drpoco

[Bristol Palliative and End of Life Care Research @PEoLCSW]

Wishing everyone a happy new year, and hope you had a restful break. We are back at work and you can now find us on Bluesky too. Please follow us!
@peolcsw.bsky.social

[Marie Curie EOLC @MarieCurieEOLC]

Now Open! Submit an expression of interest by 17 July 👇

[Marie Curie EOLC @MarieCurieEOLC]

Exploring barriers to and experiences of palliative and end-of-life care for people living with HIV.

Thanks to modern medicine, many people living with HIV now have life expectancies similar to the general population. This comes with a higher likelihood of age-related conditions, including terminal and life-limiting illnesses. The need for high quality, person-centred palliative and end of life care is becoming increasingly important.

With @THTorguk, we carried out a survey to understand the barriers to and experiences of palliative and end of life care in this group. Findings cover misconceptions of palliative care, how HIV status and stigma affect access to healthcare, and top priorities for end of life, including:
(1) being in a calm atmosphere
(2) being free of pain and
(3) support with psychological well-being.

Read now - https://t.co/nIufFEY4r6

[Bristol Palliative and End of Life Care Research @PEoLCSW]

BOOK YOUR FREE PLACE
PEOLC Research Network Meeting, Tue 30 June, 1.15-5.00pm, in-person at University of Bristol. We have another great line-up of speakers @Lucy_Selman @drpoco @shaun_qureshi @JennyKitzinger @NM_Bradley @skgretton @AlisonLlewellyn
https://t.co/CHLJaKY9E2

[Bristol Palliative and End of Life Care Research @PEoLCSW]

BOOK YOUR FREE PLACE
PEOLC Research Network Meeting, Tue 30 June, 1.15-5.00pm, in-person at University of Bristol. We have another great line-up of speakers @Lucy_Selman @drpoco @shaun_qureshi @JennyKitzinger @NM_Bradley @skgretton @AlisonLlewellyn
https://t.co/CHLJaKY9E2

[Marie Curie EOLC @MarieCurieEOLC]

Introducing our next Research Grants Scheme, Opening 2 June – Care close to home, in and out of hours

💡Our new call for research seeks to fund projects of up to £150K. The theme closely aligns with:

👉Marie Curie’s mission to close the gap in end of life care.
👉Evidence gaps and research priorities identified by people with lived and professional experience.
👉The UK Government’s focus of shifting the balance of care from hospital to community and providing care at all hours.

Researchers, find out more and submit your expression of interest from 2 June to 17 July - https://t.co/PwfzXeScyj

[Marie Curie EOLC @MarieCurieEOLC]

Patient Perspectives: Integrated Palliative Care for Heart Failure Services

In an NIHR-funded, Marie Curie supported research project at Queen's University Belfast, researchers set out to understand gaps in palliative care integration for heart failure services.

Two project patient and public involvement representatives have authored thought-provoking blogs on their experiences; experiences that have helped shape the project throughout.

Read them here:
https://t.co/9ej1OO3Kbt
https://t.co/KYQMzSy9Jz

[Bristol Palliative and End of Life Care Research @PEoLCSW]

This Dying Matters Awareness Week, Good Grief Festival are relaunching their Grief and Bereavement in Primary Care course as a flexible, on demand course. Find out more & register here https://t.co/nCIHo2mn6V
@Lucy_Selman

[Bristol Palliative and End of Life Care Research @PEoLCSW]

It's Hospice UK's Dying Matters Awareness Week and this year's theme is 'Let’s talk about Death and Dying'. The mission of Dying Matters is to break down the stigma and taboo of talking about death and dying.
@Lucy_Selman @drpoco
https://t.co/LNk3DQEmzq

[Bristol Palliative and End of Life Care Research @PEoLCSW]

'Singing Through Bereavement and in End of Life Care’ 5pm today, as part of Dying Matters Awareness Week. This event explores how singing and music can help us express emotion and stay connected towards the end of life and in bereavement. Register here https://t.co/h5ZGmjKtJK

[Marie Curie EOLC @MarieCurieEOLC]

📱Digital Legacy, the online content and digital media a person leaves behind when they die, is an increasingly important part of palliative care and care planning.

📰Read the newly published review of literature exploring healthcare professionals, patients
receiving palliative care, caregivers and bereaved people’s experiences of including digital legacy in planning for the end of life.

✨This identifies key research gaps including cultural, generational, practical and financial factors related to
digital legacy.

Access the paper from the link below👇🏻

[Centre for Death and Society @cendeathsociety]

Join Natashe Dekker at the Centre for Death and Society @ University of Bath, UK Beatrice Godwin Memorial Lecture as part of the National upcoming #DyingMatters week on:

Aspiring a good death with dementia

6th May 6-7pm BST, online, free!

https://t.co/sVHQc2gmM4

[Bristol Palliative and End of Life Care Research @PEoLCSW]

Congrats to PEOLC members Lucy Pocock & Rachel Davies who have been awarded the grant of "Listening carefully: A trauma informed approach to involving people with serious illness in palliative and end-of-life research" from the NIHR SPCR PPI Enablement Fund

[Bristol Palliative and End of Life Care Research @PEoLCSW]

Dying Matters Awareness Week event: 7 May
When Music Holds Us - Singing Through Bereavement and in End of Life Care (in-person event in Bristol) https://t.co/crTnXY6FsJ
@Lucy_Selman @drpoco @BarnyHole @C_A_Chamberlain

[Centre for Death and Society @cendeathsociety]

⭐️Death and Power⭐️

The 2026 CDAS Annual Conference is now LIVE

100 speakers with two free evening events

17-19 June all online

Join us!

https://t.co/uPsxDghpQm

[Marie Curie EOLC @MarieCurieEOLC]

MAIN Webinar - Supporting Wellbeing at Work: Experiences of Staff Caring for People with Advanced Illness.
Thursday 4 June, 2-3:30pm

The next MAIN webinar explores the wellbeing of staff who care for people with advanced illness, discussing current support strategies and specific support needs.

Register here - https://t.co/FSP7TbyiA8

[Bristol Palliative and End of Life Care Research @PEoLCSW]

Dying Matters Awareness Week event
6 May online webinar with Dr Emily Harrop: Understanding and Optimising the Benefits of Bereavement Support https://t.co/MiSDopbUmr
@Lucy_Selman @drpoco @BarnyHole @C_A_Chamberlain

[Bristol Palliative and End of Life Care Research @PEoLCSW]

Very pleased to share PEOLC group member Lucy Pocock's new paper "Challenges in implementing an Electronic Palliative Care Coordination System (EPaCCS): Lessons learned from a realist evaluation in the South West of England"
https://t.co/lzgO5MPieo
@drpoco @Lucy_Selman

[Coastal Community & Creative Health @CoastalCCH]

Join us at Good Grief Hastings, 22-25 May. The festival will explore how creativity, conversation and community can help people support one another through grief and loss.
https://t.co/VmEyqAyoCo
@Lucy_Selman @BarbaraMezes @MobCommAssets

[Coastal Community & Creative Health @CoastalCCH]

New online course: Grief & Bereavement in Primary Care, specifically designed for GPs & primary care professionals who want to enhance their knowledge & skills in supporting bereaved patients & navigating conversations about grief, death & end of life https://t.co/YxooqecgDK

[Bristol Palliative and End of Life Care Research @PEoLCSW]

Last Word: Doing Death Differently starts on BBC Radio 4 today and runs all week looking at how our attitudes to death, dying and the way we memorialise our dead have changed. https://t.co/RYEh3WFbh2 Lucy Selman advised on the series and is interviewed in today's episode.