Partnership to Fight Chronic Disease (PFCD)

News and information on the fight against the number one cause of death, disability, and rising health care costs: chronic disease.

[Partnership to Fight Chronic Disease (PFCD) @pfcd]

National security and patient access should not be competing priorities. We urge Treasury to carefully consider the implications of these proposed restrictions for the millions of Americans living with chronic conditions: https://t.co/5p3fGhs8X6

[U.S. FDA @FDA]

Reminder: FDA is holding a hybrid meeting on Oct. 28 from 1-5 pm ET to seek input on its Rare Disease Framework Initiative reimagining the agency’s approach to rare disease drug development. Find out how to register: https://t.co/DIKxpSAlTt

[Partnership to Fight Chronic Disease (PFCD) @pfcd]

Effective health care policy must evaluate prevention, medication, physician services, home care, and hospitalization holistically. Focusing on one slice of costs, such as the international reference pricing models Global Benchmark for Efficient Drug Pricing (GLOBE) and Guarding US Medicare Against Rising Drug Costs (GUARD) currently under consideration, does nothing to address systemic issues contributing to costly untreated disease. - @KennethThorpe & @kjacny

[Health Affairs @Health_Affairs]

Reducing health care spending and improving population health needs a comprehensive approach to replace the current fragmented silo-based approaches. | Forefront

Kirsten Axelsen | @DLA_Piper

https://t.co/neWaiVgaF3

[Partnership to Fight Chronic Disease (PFCD) @pfcd]

An earlier Alzheimer's diagnosis can mean more time to plan and pursue treatment. Congress must pass the Alzheimer's Screening and Prevention Act so Medicare can cover new screening tools. Read more from @KennethThorpe in @InsideSourcesDC: https://t.co/PKNmBiTL8b #Fight4Health #EndAlz #ASAPAct

[Partnership to Fight Chronic Disease (PFCD) @pfcd]

A brighter future for Alzheimer's is within reach. PFCD encourages continued support and progress for the Alzheimer's Screening and Prevention (ASAP) Act to help people living with Alzheimer’s: https://t.co/Qa606FIfDz #Fight4Health #EndAlz #ASAPAct

[National Consumers League @ncl_tweets]

ICYMI #ASAPAct is advancing with strong bipartisan & public support. Hear from @alzassociation, @CaregiverAction, @NationalGrange, and @PFCD on why earlier Alzheimer’s detection is critical. https://t.co/ykWB4ru07l

[U.S. FDA @FDA]

FDA is transforming rare disease drug approvals. The new Rare Disease Framework Initiative will work to give patients more voice, give developers more clarity, and eliminate surprises in the regulatory process. https://t.co/dN9mby7MPN

[Partnership to Fight Chronic Disease (PFCD) @pfcd]

As advances in Alzheimer's detection and treatment create new opportunities, ensuring patients have access to appropriate diagnostic tools and timely evaluation is increasingly important. An accurate and timely Alzheimer's diagnosis is an important first step toward understanding the disease, exploring care options, and planning for the future. Hear more from Dr. Cara Leahy, the Director for Cognitive Disorders at Memorial Healthcare and practices at the renowned Memorial Healthcare Institute for Neuroscience: https://t.co/73rqM8sk0i #Fight4Health #EndAlz #ASAPAct

[Partnership to Fight Chronic Disease (PFCD) @pfcd]

As many as half of the over 7 million Americans living with Alzheimer's are not diagnosed. That's millions of people who could benefit from early detection – and millions more as these tests are showing promise to detect the disease even before symptoms present. Hear more from @ALZIMPACT's @RobertEgge: https://t.co/X6OWZGO4VT #Fight4Health #EndAlz #ASAPAct

[Partnership to Fight Chronic Disease (PFCD) @pfcd]

In rural America, an Alzheimer's diagnosis comes with an added burden: fewer specialists, fewer resources, and fewer opportunities to detect the disease early enough to make a difference. And in a disease where time matters, that gap matters. Hear more from @NationalGrange's Burton Eller: https://t.co/ZXDv5jP0go #Fight4Health #EndAlz #ASAPAct

[Partnership to Fight Chronic Disease (PFCD) @pfcd]

There are 90 million family caregivers in the U.S. and for many of them, an Alzheimer's diagnosis arrives too late to unlock the full range of available tools. No diagnosis - or late diagnosis – robs families of the ability to consider treatment, make lifestyle changes that may slow progression, enroll in clinical trials, and plan ahead. Hear more from @CaregiverAction's @MarvellAdams: https://t.co/bHBKfRFAlS #Fight4Health #EndAlz #ASAPAct

[Partnership to Fight Chronic Disease (PFCD) @pfcd]

Earlier Alzheimer's detection leads to earlier action - treatment, planning and ultimately, better outcomes. But earlier detection is only possible if we clear the path - under current law, Medicare cannot cover any Alzheimer’s blood test for individuals without symptoms – even when @FDA approved. #ASAPAct is a concrete, bipartisan, ready-to-pass solution. https://t.co/C3t3XHgc1m

[Partnership to Fight Chronic Disease (PFCD) @pfcd]

"We’ve seen firsthand how crucial it is for the patient-provider relationship to guide and determine the right care. And that’s why we’re so alarmed that nearly half of Americans now report that their health insurers have delayed or denied coverage for a doctor-recommended treatment within the past two years." @RepLarryBucshon & Howard Dean READ: https://t.co/n23kKT2wGg

[Partnership to Fight Chronic Disease (PFCD) @pfcd]

New research from @USCSchaeffer suggests that investments in early detection could help ensure that patients start treatments when they’re more likely to provide the greatest benefit to patients and society - https://t.co/HHrvr2stwZ. Policies like @VernBuchanan's #ASAPAct support earlier access and better outcomes for millions of Americans navigating Alzheimer's disease. #Fight4Health

[ALZ Impact Movement @ALZIMPACT]

Thank you for @VernBuchanan your leadership in improving early Alzheimer's detection and diagnosis by championing the bipartisan #ASAPAct. Our community greatly appreciates your long-standing support.

[Partnership to Fight Chronic Disease (PFCD) @pfcd]

Patient access is about more than whether a treatment is covered. It’s also about whether patients can realistically fit that care into their lives. As @CMSGov considers changes affecting fixed-dose combination therapies, policymakers should recognize the value of innovations that can reduce time spent traveling to and receiving treatment, particularly for older adults and people in rural and underserved communities. Read more about why how care is delivered matters for patients and families: https://t.co/fKiJDMjF7P

[Alliance for Women's Health & Prevention (AWHP) @AWHPOrg]

October is #BreastCancerAwarenessMonth. Staying up to date on recommended breast cancer screenings is critical to detecting cancer earlier, when it may be easier to treat. Talk to your healthcare provider about when screening is right for you. Learn more: https://t.co/TJGemGfx8V

[Partnership to Fight Chronic Disease (PFCD) @pfcd]

"If Washington wants to truly reform the health insurance system and make health care more affordable, Republicans and Democrats will need a holistic, coordinated, whole-of-government approach." - @michaelcburgess - Read more: https://t.co/wIrXK9Ao1t