PJ1210

[Adam Johnson - DadVocate @RareDiseaseDad]

.@AlaskaAir didn’t allow me to fly because of my mobility scooter.

3.5 hrs later…rebooked to a different city, 1.5 hr drive to hotel & I’ll miss my #raredisease treatments/appts/tests tomorrow. I’m exhausted.

Disability travel shouldn’t be this hard for anyone!

Enough! #ADA

[Adam Johnson - DadVocate @RareDiseaseDad]

So proud of Emma’s support for the #mito community! Check out & support her latest goal, raising $5,000 for #DaliasWish.

You can share her message below &to help us raise awareness during #WorldMitoWeek, & contribute through links in our bios.

#bake4mito
#mitochondrialdisease

[PJ1210 @PJ12101]

@RareDiseaseDad @Padres @Angels @PetcoPark @drewbrees Awesome! What a fun experience, memories of a lifetime

[PJ1210 @PJ12101]

@RareDiseaseDad That kid! 🥰

[PJ1210 @PJ12101]

@RareDiseaseDad 💔

[MitoAction @MitoAction]

Congratulations to our very own, Adam Johnson, who was awarded the Making a Difference Award this past Saturday at the Sandra K. Russell Derby Day Benefit for Mito. Adam is an extraordinary leader and advocate for the mito community and MitoAction. @RareDiseaseDad

[PJ1210 @PJ12101]

@RareDiseaseDad @NorthwesternU @NUFeinbergMed @JenniYoungPhD What a great honor, so proud of you!

[PJ1210 @PJ12101]

@RareDiseaseDad 💔

[PJ1210 @PJ12101]

@RareDiseaseDad Yum! Now I want to make it.

[Adam Johnson - DadVocate @RareDiseaseDad]

Incredibly proud of my 12 year old daughter, Emma (@Bake4Mito), who is one of the nominees for this year’s RARE Rising Star Award. She’s raised tons of awareness & over $4k so far for the #Mito community!
💚😍🧁

Check out her message below. #GGSummit22
@GlobalGenes @MitoAction

[Global Genes @GlobalGenes]

Congratulations to the nominees of this year's RARE Rising Star. Tune in to our Facebook Live event next tonight at 9:30 pm ET/ 6:30 pm PT to watch the #2022COH pre-show and ceremony where the winners will be announced! https://t.co/qHEARrfHT3

[PJ1210 @PJ12101]

@RareDiseaseDad @Bake4Mito @GlobalGenes @MitoAction So proud of Emma @Bake4Mito, she is an amazing advocate and an incredible inspiration for all. Congratulations!

[PJ1210 @PJ12101]

@RareDiseaseDad @GlobalGenes @DavidSpade 🤦‍♀️🤣🤣🤣

[PJ1210 @PJ12101]

@RareDiseaseDad 🤦‍♀️

[PJ1210 @PJ12101]

@RareDiseaseDad @BoiseState @BroncoSportsFB @BroncoSportsWBB @BroncoSportsMBB @BroncoSportsSB GO BRONCOS!

[PJ1210 @PJ12101]

@RareDiseaseDad @Bake4Mito

[PJ1210 @PJ12101]

@RareDiseaseDad @Bake4Mito She is absolutely amazing, and her cupcakes are absolutely delicious! So proud of Emma and her beautiful, compassionate soul.

[PJ1210 @PJ12101]

@MitoAction @RareDiseaseDad @Bake4Mito @MitoAction

[MitoAction @MitoAction]

It’s here!! Rare Disease Day!! Share with us in the comments how you #shareyourcolors today!

[PJ1210 @PJ12101]

@RareDiseaseDad @Flatbread_Pizza Happy Turkey Day! Can't wait to celebrate with you 💕