.@AlaskaAir didn’t allow me to fly because of my mobility scooter.
3.5 hrs later…rebooked to a different city, 1.5 hr drive to hotel & I’ll miss my #raredisease treatments/appts/tests tomorrow. I’m exhausted.
Disability travel shouldn’t be this hard for anyone!
Enough! #ADA
So proud of Emma’s support for the #mito community! Check out & support her latest goal, raising $5,000 for #DaliasWish.
You can share her message below &to help us raise awareness during #WorldMitoWeek, & contribute through links in our bios.
#bake4mito#mitochondrialdisease
Congratulations to our very own, Adam Johnson, who was awarded the Making a Difference Award this past Saturday at the Sandra K. Russell Derby Day Benefit for Mito. Adam is an extraordinary leader and advocate for the mito community and MitoAction. @RareDiseaseDad
Incredibly proud of my 12 year old daughter, Emma (@Bake4Mito), who is one of the nominees for this year’s RARE Rising Star Award. She’s raised tons of awareness & over $4k so far for the #Mito community!
💚😍🧁
Check out her message below. #GGSummit22@GlobalGenes@MitoAction
Congratulations to the nominees of this year's RARE Rising Star. Tune in to our Facebook Live event next tonight at 9:30 pm ET/ 6:30 pm PT to watch the #2022COH pre-show and ceremony where the winners will be announced! https://t.co/qHEARrfHT3
@RareDiseaseDad@Bake4Mito She is absolutely amazing, and her cupcakes are absolutely delicious! So proud of Emma and her beautiful, compassionate soul.