PLRH

The PLRH aims to support and co-produce clinical trials as proposed by patient organisations. Contact us with your research ideas at [email protected]

[That's TV Cambridgeshire @ThatsTVCamb]

"We didn't really know where things would go"

Dr Rona Smith from the @CUH_NHS told That's TV about the 10th anniversary of the Cambridge Patient Led Research Hub, and why it's been a vital service.

[PLRH @plrh_cambridge]

Do you live with idiopathic #hypersomnia? Our latest patient-led project is aiming to repurpose an existing drug as a new treatment for IH. If you are affected, please answer our anonymous survey & help design the study! @HypersomniaNews @BritishSleepSoc
https://t.co/nT7r88SF6u

[CamRARE (Cambridge Rare Disease Network) @camraredisease]

For #RareDiseaseDay 29 Feb join this #research webinar. Our MD Jo & the @plrh_cambridge are talking about our @NIHRcommunity funded project to build a #RareDiseaseResearchNetwork platform to share patient led ideas, knowledge & to build partnerships

🎟️https://t.co/q9ee3EgVrw

[PLRH @plrh_cambridge]

#Cambridge! Come visit us at this wonderful, public, FREE evening event to learn all about healthcare research. @CambridgeBRC

[NIHR Biomedical Research Centre: Cambridge @CambridgeBRC]

Tickets still available for our public open evening this Tues https://t.co/835guXNd2D - as well as cutting-edge talks/posters we have stands from these amazing organisations @AngliaRuskin @NIHRBioResource @NIHRBrainMIC @plrh_cambridge @camraredisease @CambridgeCRF @CambChildrens

[PLRH @plrh_cambridge]

So many great upcoming #PPI #Research events happening in #Cambridge! Join us at the latest @CambridgeBRC Public Open Evening to learn how research is making at difference in hospital care.

[PLRH @plrh_cambridge]

Sign up to our mailing list https://t.co/BGBtLZfFRh!

[PLRH @plrh_cambridge]

Newsletter time! Check out our October report to learn more about our community-led #RareDisease research network, developed with @camraredisease, as well as new details on our #NF1, #PittHopkins, and idiopathic hypersomnia #SleepDisorders projects!

https://t.co/o0Jfh6BZLv

[PLRH @plrh_cambridge]

There's a LOT going on in the rare community, so we've extended this survey until 24 Sept!

If you're affected by a #RareDisease, consider sharing your thoughts on research design & help shape a new community-led research platform!
@camraredisease @RareBeacon @GeneticAll_UK

[PLRH @plrh_cambridge]

Do you live with a rare condition? Interested in research? Share your thoughts & help design a new community-led #RareDisease #Research network with @camraredisease!

https://t.co/n8SqFSVZu0

[PLRH @plrh_cambridge]

Do you live with a rare condition? Interested in research? Share your thoughts & help design a new community-led #RareDisease #Research network with @camraredisease!

https://t.co/n8SqFSVZu0

[PLRH @plrh_cambridge]

NEW, FREE online webinar for anyone interested in learning more about health data research in #Cambridge. Hosted by the fantastic @CambridgeBRC team on 29 August. Sign up below!

[NIHR Biomedical Research Centre: Cambridge @CambridgeBRC]

FREE webinar: Help shape health data research in Cambridge, Tues 29 Aug from 6.30-8pm. Join speakers Dr Ari Ercole and Dr Raj Jena for an event exploring health data research, AI and how you can get involved. To book visit https://t.co/681ajRhE5G @CUH_NHS @HDR_UK @Cambridge_Uni

[PLRH @plrh_cambridge]

@glennbate1 @camraredisease @RareRevolutionM @GeneticAll_UK @SBDRareProject @weareMSUK @GenePeopleUK @patientled @SLGInvolvement @NIHRresearch @NIHRtakepart @CambridgeBRC Hi @glennbate1 - I'm really sorry for all this. You should have an email now from Laura Cowley (PLRH) to help troubleshoot. Thanks for staying in touch!

[CamRARE (Cambridge Rare Disease Network) @camraredisease]

Are you a rare disease leader, contributor, connector, promoter or enabler?

Our NIHR funded project with @plrh_cambridge supporting patient-led #RareDisease #research needs you!

learn more
https://t.co/w7A68Bdi6Z

✔️apply to join https://t.co/Uxj1S19yn3

📣Please share widely!

[PLRH @plrh_cambridge]

@glennbate1 @camraredisease @RareRevolutionM @GeneticAll_UK @SBDRareProject @weareMSUK @GenePeopleUK @patientled @SLGInvolvement @NIHRresearch @NIHRtakepart @CambridgeBRC Sorry @glennbate1 - can you please try again now?

[PLRH @plrh_cambridge]

Interested in #RareDisease? Help us improve research opportunities by creating a new community-led network! Learn more & register interest here: https://t.co/baMENHlCwn Please share widely so we can include lots of voices!

@camraredisease @RareBeacon @cambridgeBRC @rarediseaseuk

[PLRH @plrh_cambridge]

We want to help the rare disease community deliver their own research projects & make it easier for them to find new partnerships. We've teamed up with @camraredisease & now need you!

Learn more here: https://t.co/YYzgFIZPJh

Funded by an @NIHRresearch Public Partnership grant

[PLRH @plrh_cambridge]

Are you part of the UK #RareDisease community?

Interested in creating a new, community-led research network with us & @camraredisease?

Have a look at all the flexible ways to be involved & let us know you're interest by completing our online form: https://t.co/baMENHlCwn

[PLRH @plrh_cambridge]

Less than 1 week to apply for our #PPI #CoPro #RareDisease post! Join our team and work with the wonderful @camraredisease & rare disease community to delivery a new patient-led platform! Hybrid working, potential for 3.5 days/week, band 6 NHS.

Apply! https://t.co/KmyrlrFPIn

[PLRH @plrh_cambridge]

@hiteshkakkad We're in the UK - based out of Cambridge, England.

[PLRH @plrh_cambridge]

@hiteshkakkad Hi @hiteshkakkad! If you live in the UK and want to participant in a trial, look at @NIHRtakepart https://t.co/GxKY5XiUdo You can search by condition and/or location to see what research is ongoing in your area. Talk to your doctor or contact the research team to take part.