We've carefully curated a special edition of #RarityLife magazine to mark #DyingMattersWeek2026
Talking about death isn’t only about loss - it’s about celebrating life, relationships & the values we hold closest.
Link: https://t.co/IFkaLKePoM
#WhatMattersMost#nationallottery
"It means so much to have a voice, don't underestimate how important these articles are"
This feedback is exactly why we do what we do. We're proud of #RarityLife, our online magazine, so-much so that we're launching #RarityFocus, keep an eye on our socials to find out more!
I Chaired yesterday's CPG on Hospice & Palliative Care meeting & was pleased to welcome Ceridwen Hughes from Mold-based @SBDRareProject who spoke about their Dying to be Heard Exhibition focused on capturing end-of-life care experiences & promoting honest & open conversations.
“It can be difficult for people to understand how severely Aidan’s condition affects him because outwardly he looks so well”
For our #ThrowbackThursday post we are sharing Aidan’s story from our #RareBeauty project. Read more here:
https://t.co/UekrOml22V
For #MotivationMonday we're highlighting the incredible work @ToriaUnhidden has done with her groundbreaking company @UnhiddenFashion, we were so excited to feature her in our launch issue of #RarityLife:
https://t.co/IFkaLKfnek
Go give them a follow if you don't already!
#ThrowbackThursday spotlight on our 'Rare Aware' project in which we captured the stories of some truly remarkable people living with rare diseases. Read more about Hannah and all our other wonderful contributors here:
https://t.co/bwKOu0rA5b
#RareAware
This #MotivationMonday we are highlighting the great work @CatrinPugh does!
We loved working with her on the ‘We will not hide' campaign in partnership with @FaceEqualityInt, to see more visit:
https://t.co/iAXBaooOap
You can follow Catrin on Insta here: @catrinpugh
We were honoured to meet Sue for #WhatMattersMost, she has since passed away so we are sharing her story this #ThrowbackThursday because we have not forgotten her. Find out more:
https://t.co/iZHKqSTulT
With heartfelt thanks to @mariecurieuk & @hospiceuk & all our contributors
We've met some incredible people through our work so for #MotivationMonday we're sharing their profiles for you to follow!
Meet Clara, an incredible young artist, you can read all about her in #RarityLife magazine: https://t.co/IFkaLKePoM
Follow Clara here: @woods_clara_
“Thank you for the voice you have given me"
Please help - we'd love Megan to see the impact of her participation in this project, so please share the article below & Megan’s message across your organisations & networks
https://t.co/xEPlxWQZ7B
For our #ThrowbackThursdaypost we are so pleased to share You’re not Alone.' You can read more about Sharon, whose daughter Sophie had Trisomy 18 and lived for 13 weeks, here:
https://t.co/NlfJzi1c5B
With thanks to @soft_uk@illumina