Patient Centred Outcomes Research (PCOR)

Leading applied research across a wide portfolio of cancer studies | quality of life | patient reported outcome measures (PROMs) | University of Leeds, UK

[Patient Centred Outcomes Research (PCOR) @POGWeb]

Interested in economic evaluations of using patient reported outcome measures (PROMs) in cancer? Check out our paper on the eRAPID intervention in chemotherapy. Findings indicate potential cost benefit when online symptom monitoring is added to usual care https://t.co/9xj3gyAG4X

[Patient Centred Outcomes Research (PCOR) @POGWeb]

....in recognition of her research into the long-term wellbeing and functioning of people affected by low-grade glioma. Read more here: https://t.co/PiNnp2Xu9b

[Patient Centred Outcomes Research (PCOR) @POGWeb]

We've been quiet on here so time for some updates- first off: Congratulations to our colleague @DrFlorienBoele for winning the European Association of Neuro-oncology @EANO Nurse & allied healthcare professionals research award 🏆

[Patient Centred Outcomes Research (PCOR) @POGWeb]

We are recruiting! Check out our vacancy: Research Fellow for @EORTC funded project exploring processes for selecting patient reported outcome (PRO) items for use in symptom monitoring within cancer trials and practice. ⭐️Deadline 26th Feb https://t.co/AYl0n113Gh ⭐️

[Kate Absolom @DrKateAbsolom]

Are you an NHS oncology nurse or a nurse working with cancer patients? Can you spare a few minutes to complete a survey exploring self-compassion & wellbeing at work? Click: https://t.co/pnWmJYQ6eX to help us understand your experiences. @BPOSUK @UKONSmember

[Patient Centred Outcomes Research (PCOR) @POGWeb]

Newly published study from @POGWeb: @DrFlorienBoele @DrKateAbsolom and colleagues on the reassurance gained from interval scanning for people living with high grade brain tumours despite the associated anxiety. Very interesting read.

[Patient Centred Outcomes Research (PCOR) @POGWeb]

Interested in the use of patient reported outcome measures in radiotherapy? Listen to our colleagues
@TrishHolch @GalinaVelikova2 discuss the future of ePROs in this great podcast. Thanks to @IJROBP for showcasing our research https://t.co/hXqgOHjRMc @LeedsMedHealth

[IJROBP - The Red Journal @IJROBP]

This month we have several authors making the case for PROs.
March 2023 podcast "The Future of ePROs" with @KaitlynLapen @TrishHolch @GalinaVelikova2
AT: https://t.co/2Pm0nL5dC2
New Masterclass! "When Patience is a Failing" from @DeborahWBruner1
AT: https://t.co/CULAkxNhVE

[Prof Jill Carlton @JillCarlton1]

Very excited to announce that @sheffielduni will be hosting #UKPROMS conference in 2023! More details to follow soon, but in the meantime "SAVE THE DATE"!!
@ISOQOL @ScHARRSheffield @ScHARR_KE

[Dr Fiona Kennedy @DrFionaRKennedy]

Out today in @MASCC_JSCC funded by @yorkshirecancer "It made me feel part of the team, having my homework to do' women & specialist nurse experiences of remote follow‑up after ovarian cancer treatment https://t.co/9I9AH3kR0x @POGWeb @LeedsMedHealth @lshears_ @MarieH2211

[Patient Centred Outcomes Research (PCOR) @POGWeb]

Now out! Results from our pilot study of eRAPID remote patient monitoring in radiotherapy. https://t.co/unNvtSA3OB We found:
▶️eRAPID was acceptable and feasible
▶️Online symptom report completion was particularly high in the prostate cancer group compared to the gynaecological

[ASTRO @ASTRO_org]

New #RedJournal paper on the feasibility of online reporting of adverse events in pelvic RT in 2 UK cancer centers @TrishHolch @DrKateAbsolom @GalinaVelikova2 @LeedJulia @OncologyLeedsTH @TheChristieNHS @POGWeb @LeedsMedHealth @LBUPsych https://t.co/28NWfkpWFD

[Patient Centred Outcomes Research (PCOR) @POGWeb]

Read our latest @POGWeb paper here: https://t.co/gkMivHkwr6 A feasibility study of electronic patient‑reported monitoring during ovarian cancer follow-up @DrFionaRKennedy @MarieH2211 @lshears_ @yorkshirecancer

[Dr Fiona Kennedy @DrFionaRKennedy]

Our paper published online in BMC Cancer exploring feasibility of electronic patient-reported monitoring of symptoms during follow-up for ovarian cancer - available here ⬇️ https://t.co/jA0ssnSCCe @POGWeb
@LeedsMedHealth @yorkshirecancer @lshears_ @MarieH2211

[Patient Centred Outcomes Research (PCOR) @POGWeb]

It's nearly time for the @BPOSUK 2022 conference! Good luck to the @POGWeb team members presenting talks and posters describing our work using online patient reported outcome interventions in cancer care https://t.co/le9VOXbFWL @DrFionaRKennedy @KathleenS_Kane

[Kate Absolom @DrKateAbsolom]

Important new @myESMO guidance now published: The role of patient-reported outcome measures in the continuum of cancer clinical care, co-authored by @POGWeb @Lorrwarr https://t.co/73q7eI6SW4

[Dr. Trish Holch @TrishHolch]

Important review with fantastic PPI involvement from @J_vanOppen & A.Alshibani, @TJCoats, Blair Graham, @TrishHolch, J Lalesta @NicolaMackintos, V Richardson, P.Riley @josemvalderas @GERED_DOC https://t.co/0aaiCSlRQ5
@UOL_Health_Sci @MRCLHA @LBUPsych @ssspsycen

[Tamsin @THCGannon]

If you work in Paediatric, TYA #oncology and would like to pass our survey on to your colleagues, please email me at [email protected]

Everyone in the UK working in Paediatric, TYA Oncology needs to know about this survey, please help us spread the word! 🏳️‍🌈🏳️‍⚧️🇬🇧

[Patient Centred Outcomes Research (PCOR) @POGWeb]

In case you missed it- final report from our @NIHRresearch eRAPID programme grant is now published ‘Electronic self-reporting of adverse events for patients undergoing cancer treatment: the eRAPID research programme including two RCTs’ https://t.co/oAXgZTmeDu

[Patient Centred Outcomes Research (PCOR) @POGWeb]

4/4 Quality of life after VATS lung resection and SABR for early-stage non-small cell lung cancer: A longitudinal study https://t.co/9VDnFr7xwP

[Patient Centred Outcomes Research (PCOR) @POGWeb]

We've been quiet on here for too long! Great to reignite our twitter profile to celebrate our colleague @pompili_cecilia following her long awaited PhD graduation on Monday. Congratulations Cecilia, we're very proud of all your achievements.

[Cecilia Pompili MD PhD FACS @pompili_cecilia]

More than 2y later..#phdgraduation with my 9yo boy. Thanks @LeedsMedHealth for making me a better surgeon, a better mum and a better researcher and @POGWeb for making me a better person. #nevertoolate #WomenInSTEM @wis_italia @ests_womenThor

[Patient Centred Outcomes Research (PCOR) @POGWeb]

3/4 Patients' confidence in treatment decisions for early stage non-small cell lung cancer (NSCLC) https://t.co/IDZFvMQxvJ