PSC Support

Patient organisation for primary sclerosing cholangitis. Info and support for patients | the PSC App | research towards a cure. #LetsBeatPSC #LetsBeatPSC

[PSC Support @PSCSupportUK]

Regulators need to hear the real, day-to-day impact from patients & families. The #PSCcommunity must stand together to share the reality of #PSC and urgent need for safe treatments that work. Open globally (16+) to patients, carers, and loved ones.
➡️ https://t.co/lggSnpsr0s

[PSC Support @PSCSupportUK]

#TrusteesWeek Spotlight: Meet Lynsey!

Diagnosed with PSC in 2026, Lynsey brings extensive expertise in financial planning, governance & strategic analysis to our Board - turning lived experience into action for our community. #LetsBeatPSC @trusteesweek https://t.co/JycT4ROlgy

[PSC Support @PSCSupportUK]

#TrusteesWeek Spotlight: Meet Ben, our new Finance Trustee!

With 15+ years accountancy experience as a CFO, Ben brings financial oversight to #PSCSupport, giving back after his wife’s 2014 PSC diagnosis.

Welcome to the board! #LetsBeatPSC https://t.co/JycT4ROlgy @trusteesweek

[PSC Support @PSCSupportUK]

#TrusteesWeek Spotlight: Meet Charlotte, Young Persons Trustee
Diagnosed at 10 & a liver recipient in 2025, Exec Coach Charlotte is dedicated to ensuring young people with PSC feel supported through diagnosis & paediatric transition. 💙 #PSCSupport #LetsBeatPSC @TrusteesWeek

[PSC Support @PSCSupportUK]

It’s #TrusteesWeek 2026! Trustees volunteer their time & expertise behind the scenes to keep charities strong, sustainable & patient-focused.

This week we’re introducing FOUR new trustees who joined PSC Support in 2026! Stay tuned! https://t.co/JycT4ROlgy #LetsBeatPSC

[PSC Support @PSCSupportUK]

Lace up your gloves for a great cause! 🥊Get 8 weeks of FREE professional boxing training and raise vital funds for PSC Support through Ultra White Collar Boxing. No experience needed, just determination! 💪 Sign up & choose #PSCSupport.
🔗 https://t.co/WbMSQaxnS4
#LetsBeatPSC

[PSC Support @PSCSupportUK]

...but one that I was determined to undertake!

Knowing I raised vital funds for PSC Support gave me the drive to keep pushing through training and on event day, rain or shine!"

Thank you Jake 😊 #LetsBeatPSC #TeamPSCSupport

[PSC Support @PSCSupportUK]

"I was diagnosed with PSC at the beginning of the pandemic, which was a very isolating time for everyone, but trying to come to terms with this new diagnosis while shielding was very difficult. I quickly discovered PSC Support and what a fantastic charity it is! The support...

[PSC Support @PSCSupportUK]

...focus on, so I signed up for the Croft Motor Racing Circuit Half Marathon.

Living with PSC and an ileostomy brings means suffering with fatigue, constant itching and joint pains. All of this, combined with being in a wheelchair, means this half marathon was a challenge,...

[PSC Support @PSCSupportUK]

Living with #PSC can feel like navigating the dark. We’re excited to launch our @BigGive campaign - Shining a Light in the Darkness: PSC Pathways! From 1–8 Dec, every £1 donated will be DOUBLED.
Make an obligation-free donation promise today!
https://t.co/398I5NeoEX

[PSC Support @PSCSupportUK]

Facing a PSC diagnosis or dealing with flare-ups can feel isolating. You don't have to navigate it alone. The #PSCSupport Helpline is here for patients, family members, and carers. Get support ➡️ https://t.co/dDZK0Pyttb #PrimarySclerosingCholangitis #RareDisease #LetsBeatPSC

[PSC Support @PSCSupportUK]

As the colder weather sets in, what's your ultimate PSC-friendly comfort food? Nutrition with #PSC isn't one-size-fits-all. Tell us what works for your digestion (and what doesn't!) in the replies 👇
📖 Diet info: https://t.co/F07nEFV4MF
#PSCEatingForHealth #LetsBeatPSC

[PSC Support @PSCSupportUK]

Missed our Ask the Expert session with Dr Andrew Yeoman? The recording is live! Learn what guideline-backed #PSC care looks like, from essential monitoring to making the most of your appointments.
➡️ https://t.co/amg89mlCP2
#PSCSupport #LetsBeatPSC #RareDisease

[PSC Support @PSCSupportUK]

Living with #PSC means managing medications regularly. Anyone can (and should!) report suspected side effects to the @MHRAgovuk via the Yellow Card Scheme to help monitor drug safety. Your report matters.
🔗 https://t.co/Z9LpoQtaR7
#PSCSupport #PatientSafety #LetsBeatPSC

[PSC Support @PSCSupportUK]

Antonio has raised £1,000s running marathons for #PSCSupport while balancing life as a dad with PSC & UC. Behind the smile is a reality many face: the quiet worry of what's ahead. We won't stop fighting for a cure. #LetsBeatPSC ➡️ https://t.co/VE1VR5Fxbo
#PSC #RareDisease

[PSC Support @PSCSupportUK]

Research brings hope, but access to research opportunities remains a challenge for people living with PSC. Kerrie, President of PSC Support Australia, highlights the difficulties of securing research funding and lack of clinical trial opportunities available to PSC patients.

[PSC Support @PSCSupportUK]

Understanding PSC: why, how and what comes next. Jean-Philippe highlights the importance of helping people understand their diagnosis, what is known about the disease, how to manage it in the long term and how to navigate the challenges ahead #PSCGlobalDay2026 #LetsBeatPSC #ELPA

[PSC Support @PSCSupportUK]

The power of community: no one should face PSC alone. Sarah highlights the importance of finding connection, understanding and support within the PSC community, especially for younger patients navigating life with a rare chronic disease. #PSCGlobalDay2026 #LetsBeatPSC #ELPA