PSP & CBD Awareness

A voice for those who can no longer use theirs. An ordinary person who cares enough to tell the world about the 'Other' PSP & related CBD / MSA
#PSPitsNotaGame

[C. Roy Lin, MD, MPH, FAAN @RoyCLinMD]

@AbhiLenka11 @JankovicJoseph @PDCMDC @CurePSP @PSP_CBD_MSA

[PSP & CBD Awareness @PSP_CBD_MSA]

#CBD_CorticobasalDegeneration
#TheSaltPath
https://t.co/r70izbpRuz

[Maura Malpetti @M_Malpetti]

Our work on blood-based inflammation markers in FTLD is published!

We found a pro-inflammatory cytokine profile in patients that is associated with central inflammation and worse survival outcomes.

Huge thanks to all families, colleagues and funders!

https://t.co/HLlcVJH5C8

[The PSP Association @PSPAssociation]

Could you be the next PSPA volunteer?

If you are thinking of becoming a PSPA volunteer, we would love to hear from you.

Get in touch and apply via our website: https://t.co/YQVZXjLOXe

#VolunteerAwaernessWeek #VolunteerRecruitment #PSPANeedsYou #TeamPSPA #JoinUs

[CurePSP @CurePSP]

We will be meeting with @RepWexton and her team next week and we will be participating to a congressional briefing to share with staffers and other members of congress information about the importance of PSP research, clinical trials, and PSP patient voice!

[The Good Grief Trust @goodgrieftrust]

Thank you @BBCMorningLive for highlighting the work of our charity this morning on the programme and helping to explain how to find the right support under our umbrella 🧡☂️

@lindamagTV talked to actor @MaxBowden about the importance of acknowledging that grief is unique to that person and the loss of a friend can be just as painful as a family member.

There should be no hierarchy with grief.

Our website signposts anyone bereaved under any circumstance to tailored support, across the UK.

Please see our dedicated webpages to access support for those who have lost a friend, here; https://t.co/EKm7qkRmkV

[The AFTD @AFTDHope]

The AFTD 2024 Education Conference is less than one week away! It’s not too late to sign up to attend virtually to connect with others who understand #FTD, learn about available resources and support, and engage with experts to gain insights into FTD research.

🔴 Thanks to our Registration Sponsor, @AlectorTx
👉 Click here to register: https://t.co/ZR88nzHYMM

[Cambridge FTD @CambridgeFTD]

Synaptic Loss is much more severe in β-Amyloid negative Corticobasal Syndrome (ie likely Corticobasal degeneration) than β-Amyloid positive CBS (ie likely AD); and correlates with phenotype
#UCBJ PET @HollandNegin @wbic_cam @wellcometrust @PSPAssociation
https://t.co/bw7Vgbv43L

[The PSP Association @PSPAssociation]

🤩 PSPA Family and Friends Day 15 June in Leeds 🤩

Thoughtfully designed for people with PSP & CBD, family members of all ages, carers, and friends.

Register for the event at Village Hotel Leeds South here

https://t.co/j4jxVbNakd

#FriendsAndFamilyDay #PSPASupport #PSP #CBD

[CurePSP @CurePSP]

🌟Join us for an insightful webinar on advocacy and the bipartisan National Plan to End Parkinson's Act! Learn how @CurePSP and @MichaelJFoxOrg collaborate to drive this crucial legislation forward and how you can get involved! Register now: https://t.co/76ickscN4u

[Huw Morris @huwmorris]

Come and join our group !

We are recruiting for a clinical fellow to work on Movement Disorders genetics in association with @ASAP_Research @PD_Progression and the Global Parkinson's Genetics Program (GP2) . @ABNTrainees
https://t.co/Oc9MqeTDii
https://t.co/qlGJZrxEmf

[Thames Path National Trail @ThamesPathNT]

Join Moth and Raynor Winn today on the last leg of their #ThamesPath walk, leaving Putney Bridge 10.30am and walking to Westminster Bridge fund-raising for @PSPAssociation They're so close to reaching their target! 👉 https://t.co/Q4yfdx6No6
@Ramblers_London @gojauntly

[The PSP Association @PSPAssociation]

🤩PSPA Family and Friends Day - Leeds🤩

We are pleased to confirm the first two Family and Friends Days will be taking place on 15 June in Leeds!

Registration for the event taking place at Village Hotel Leeds South, is now open. Secure your place today!

https://t.co/Un9ZersXFR

[PSP & CBD Awareness @PSP_CBD_MSA]

https://t.co/DCQQBfZ3zs

[The PSP Association @PSPAssociation]

PSPA is recruiting Link Volunteers throughout the UK to help support people affected by PSP & CBD.

Good listener? Like helping people? We'd love to hear from you.

https://t.co/hLzO2bmhY5

#TeamPSPA #JoinUs #SupportVolunteers #VolunteerWithUs #PSPSupport #CBDSupport

[The PSP Association @PSPAssociation]

Would you like to connect with other families living with PSP & CBD in your area?

We currently have 30 local groups spread widely across the UK.

Find a Group near you: https://t.co/EMitA8KRUO

#PSPASupport #SupportGroups #PSPAMeetings #PSPCommunity #CBDCommunity

[The PSP Association @PSPAssociation]

Did you know you can apply for a PSPA Support Grant each year? Read Christine and Jim’s story on how the grants have benefited them both.

https://t.co/bODERLlui1

#SupportGrant #PSPASupport #Carers #CarersStory #SupportGroups

[CurePSP @CurePSP]

@PennMedicine Join us in congratulating Dr. Virginia Lee! The award will be presented at #Tau2024 in Washington DC, March 25-26, organized by @alzassociation, @RCFNeuro
and @CurePSP. https://t.co/8fNKN9Mvmr

[CurePSP @CurePSP]

Big news! Dr. Virginia Lee, a prominent member of the #CurePSP Scientific Advisory Board and a key collaborator, has been awarded the 2024 Rainwater Prize for Outstanding Innovation in Neurodegenerative Disease Research. https://t.co/HuHIf3RHhJ

[CurePSP @CurePSP]

💡 Researchers and innovators, seize the opportunity to advance PSP and CBD research with #CurePSP's Pathway and Pipeline Grants. Deadline approaching: March 28, at 5 pm ET. Secure seed funding for your pioneering projects! https://t.co/1OMESBVJ8N