PTEN Foundation US

PTEN is a tumor suppressor gene. When mutated at birth a patient is at higher risk for many #cancers and #autism. our mission: treatments for PHTS, patient 1st

[PTEN Foundation US @PTENFoundation]

Today is PTEN awareness day! Speak up and shine a light on PTEN-your voice matters. Tag us @ptenfoundation #pten

[PTEN Foundation US @PTENFoundation]

Today is Rare Cancer Day. We are all faced with a rare syndrome that causes common cancers. PTEN may be rare, but its impact isn't; it increases risk for cancers that can affect thousands.

Together, we're building awareness, advancing research, and proving that even the rarest voices can create the loudest change. #pten @followers #phts @RareDiseases #raredisease #cancer

Rare syndromes. Common cancers. Uncommon courage.

[PTEN Foundation US @PTENFoundation]

The PTEN Hamartoma Tumor Syndrome Foundation Announces Major Research Grant Opportunity in Memory of Dr. Charis Eng! The grant offer is up to $135,000, Available over Three Years, to Support Critical PTEN Research. #pten #ptenresearch #hereditarycancer #autism #genetics #grantopportunity #grants #research

https://t.co/iTN7JYFCmT

[Coach Moe @coachmoeiowa]

@PTENFoundation

[PTEN Foundation US @PTENFoundation]

Today is Rare Disease Day, our community is celebrating with hopeful anticipation for better care and treatments. #pten #RareDiseaseDay2025

[PTEN Foundation US @PTENFoundation]

@Delta , need a live a
agent

[PTEN Foundation US @PTENFoundation]

@USDOT I have a complaint to file against @Delta where do I do that?

[PTEN Foundation US @PTENFoundation]

@Delta @delta I have no solution to my issue in multiple attempts. I would like someone who has the authority to help to reach out to us

[PTEN Foundation US @PTENFoundation]

@Delta @USDOT need travel assistance and getting no help from @Delta

[PTEN Foundation US @PTENFoundation]

@Delta need help with travel

[PTEN Foundation US @PTENFoundation]

Need a @Delta supervisor to help with a ticket problem.

[PTEN Foundation US @PTENFoundation]

@WaltDisneyWorld @RobertIger #disability
Can someone help this family? https://t.co/2XbhTFprkk

[PTEN Foundation US @PTENFoundation]

Do you remember when you joined X? I do! #MyXAnniversary

[Rare Diseases Clinical Research Network @rarediseasesnet]

October 23 is PTEN Hamartoma Tumor Syndrome Awareness Day! 🎉
➡️ Learn more about PTEN: https://t.co/d8RGft1Wb7
➡️ Check out our PTEN research: https://t.co/wwQpH1KCZA
➡️ Get involved with our patient advocacy partner @PTENFoundation: https://t.co/L1r9X5019k
#PTENAwarenessDay2024

[PTEN Foundation US @PTENFoundation]

Today is our International Awareness Day, and we have much going on. Many of you will join us in person tonight, tomorrow, or online tomorrow for our 8th annual Symposium! The theme for this year's symposium is PTEN-Past, Present, and Future, and we are dedicating it to the remarkable life of Dr. Charis Eng.
Please share, reshare, tell your story, and tag @ptenfoundation on all social media. Let's use our collective voice to let the world know we are here and ready for treatments! We want a hopeful future for future generations; together, we will make that a reality!
We love this awesome photo put together by the Eng Lab members. Let's show them our love and share this picture worldwide!
#englab #ptenawarenessday2024 #pten #phts #raredisease #hereditarycancer #autism #hope

[PTEN Foundation US @PTENFoundation]

Attending #nordsummit! This is one of our favorite events to learn, connect, and grow! Grateful for the team @RareDiseases! We wouldn’t miss this even though we are hosting our summit in Huntsville this Wednesday!! #pten

[PTEN Foundation US @PTENFoundation]

We lost our Champion this week. @CharisEngMDPhD was a force and we are better for knowing her and promise to continue her legacy championing her beloved #PTEN cause. She would say “Onward and Upward!” So that is what we will do. @ClevelandClinic

[PTEN Foundation US @PTENFoundation]

@SaraAkhavanfard We are heartbroken

[PTEN Foundation US @PTENFoundation]

Additionally, @Delta changed my connecting flight without my permission and said there is no other solution without a cost to me.

[PTEN Foundation US @PTENFoundation]

@Delta delayed my international flight by 7 hours, impacting my transportation home, and offered no alternative without a fee. Sylvester claims it will take 24 hrs to get a call back from his supervisor. Is there anyone with @delta that can call me about this problem? @NTSB