PTEN Journey

I’m a rare and special mutant with PTEN Hamartoma Tumor Syndrome. #KeepOnSurviving #PTEN #cowdens #phts #hereditarycancer #bcsm #mbc

[Preventable @Preventable_EU]

🧬 PTEN Hamartoma Tumour Syndrome (PHTS) is a rare genetic tumour risk syndrome. PHTS is caused by DNA variants in the PTEN gene. PHTS is considered rare, with an estimated prevalence of 1 in 200,000.

More information: https://t.co/4bZL7GtcQi

[PTEN Journey @PTENJourney]

@ThanksCancer I got it from my Mom too. I got breast cancer at the exact same age she did and it presented in the same way. I got her eyes, her hair and her PTEN genetic mutation. #mbc

[PTEN Journey @PTENJourney]

I forgot how gross Faslodex tastes after the injection. #mbc #cancer #stage4

[PTEN Journey @PTENJourney]

If I had to hit a parked car in the parking lot of the cancer center, I’m glad I hit the car belonging to the loveliest lady that was so kind and understanding. I’m taking it as a good karma sign overall.

[PTEN Journey @PTENJourney]

1 year in the books with #stage4 metastatic breast cancer. Chemo smacked my hip mass down to not being seen on the CT scan so now on to Truqap to see if it can keep it in check for the long haul. 2nd week in and no real side effects yet. #pten

[Joanne Hattersley - Passionate Writer @madhatterpress]

Hospitals, attitudes and a medical rarity.
My life with Cowdens syndrome dictates that hospitals, radiology departments and Drs offices are where I spend a lot of my time. Sometimes the Drs are fully up to speed with Cowdens and make a point of telling me how they appreciate the

[Debbie Legault @debbie_legault]

@ThanksCancer

[METUPUK @METUPUKorg]

And considering how many of us with MBC are diagnosed straight to stage 4 (de novo) these will also be the first signs and symptoms for some!

Our friend and founding Trustee Connie Johncock, who died last March, created our 'Seconds on the Second' campaign,

#2ndsonthe2nd

[PTEN Journey @PTENJourney]

Seven months of Abraxane chemo and my breast cancer mass on my hip is gone and now it’s just waiting for the bone lesion to heal. They asked me if I wanted to ring the bell and I politely declined. I’m done for now. #mbc #stage4needsmore #keeponsurviving

[PTEN Journey @PTENJourney]

It must have been a nightmare to be on chemo steroids before tv streaming. I can watch whatever I want in the middle of the night even though sleep is hiding in the next county. #thankscancer #mbc #cowdens #phts #stage4

[PTEN Journey @PTENJourney]

@imliz86 Even though we are rare and special mutants, you are not alone.

[PTEN Journey @PTENJourney]

@ThanksCancer I have developed a deep and abiding love for the word “unremarkable” as part of the cancer community.

[The Breast Cancer Research Foundation @BCRFcure]

This #NationalCancerSurvivorsDay, BCRF is proud to fund groundbreaking research that has revolutionized our understanding of breast cancer and generated therapies that are giving patients more time and better quality of life.

Get involved at https://t.co/wjTvjvuqSe.

[PTEN Journey @PTENJourney]

@rebeccazom I may be put on it after I complete my last round of chemo in June. #pten How has your experience been with it? Ibrance was not my friend when I was on it before switch to chemo which is working.

[PTEN Journey @PTENJourney]

@katievscancer @ThanksCancer @BethT79 I realized the first time I had chemo I was way more attached to my hair than I thought it was. Plus it’s such a visible sign of treatment that gets you all the sympathy stares from strangers which make me cringe.

[Thanks Cancer! @ThanksCancer]

Trust yourself.

Until your cells turn on you, and then don’t trust anyone I guess.

[PTEN Journey @PTENJourney]

@ThanksCancer My father had to bury my mother. He will not have to bury me.

[Thanks Cancer! @ThanksCancer]

Cancer protip: Just try to do whatever you want all the time as much as possible.

Actually, I think this goes for everyone.

[PTEN Journey @PTENJourney]

Any tips for coping with having no eye lashes in spring allergy season? @ThanksCancer #mbc #chemo #breastcancer #stage4needsmore