PTLS Foundation

Potocki-Lupski Syndrome (PTLS) is a rare chromosome duplication, predicted to be 1 in 20,000 children. Come learn, get support and join our cause!

[PTLS Foundation @PTLSfoundation]

Some holiday shopping to help support our cause: PTLS Foundation Key of Hope Store https://t.co/5HpnVhoOp8

[PTLS Foundation @PTLSfoundation]

Time for some holiday shopping! Remember to support PTLS Foundation, Inc https://t.co/J0RrOO5q3v

[PTLS Foundation @PTLSfoundation]

Don't forget today is Amazon Prime Day!! Make sure to sign up and use https://t.co/rq2yg06v8m to support Potocki Lupski Syndrome Outreach Foundation Inc!! Today they have some really great weighted blankets!! Great for calming the sensory overload!!

[PTLS Foundation @PTLSfoundation]

Siblings to those with #PTLS have been placed into a life they did not choose. It comes with challenges, as well as growth. The bond is a very special bond. A view from a younger brother and an older sister. #ptls https://t.co/xxtOic9FZy https://t.co/ZERvBUNhYR

[PTLS Foundation @PTLSfoundation]

March 8 is World PTLS Awareness Day! A diagnosis does not stop our children. They are Breaking Barriers!! #beseenweargreen #ptlsawareness #breakingbarriers

[PTLS Foundation @PTLSfoundation]

Celebrating World PTLS Awareness Month!! Celebrating our children of all ages and those who love them. #ptls #ptlsawareness #beseenweargreen #happygene #loveourptlsfamilies

[PTLS Foundation @PTLSfoundation]

@andyrooblack @rarediseaseday It is my honor and pleasure @andyrooblack Our children are remarkable. They do not let PTLS define them. They keep breaking the barriers! Your daughter brightens the world. 💚💚💚

[PTLS Foundation @PTLSfoundation]

Founder and CEO- Julie Smith-Centeno raising awareness and educating eager healthcare students and others in attendance at the @rarediseaseday event in Houston. Thank you to all who were interested in learning about PTLS. #ptls #ptlsawareness #raredisease

[PSR Orphan Experts (now Ergomed) @PSRorphan]

US focussed fact sheet on Rare Diseases. Nothing new but just to refresh! #RareDisease @RareDiseases #RareDiseaseDay

[PTLS Foundation @PTLSfoundation]

@BrentRiddle Thank you so much for your kind words, @BrentRiddle . It means a lot. It was an honor educating young medical professionals willing to learn.

[Chromosome Disorder Outreach Inc. (CDO) Charity @CDOInc]

When Loneliness Settles In as the Parent of a Child With a Disability https://t.co/mCkhVQONi0

[PTLS Foundation @PTLSfoundation]

Great seeing this happen. #includenotexclude https://t.co/GyTScZSRs4

[PTLS Foundation @PTLSfoundation]

@UnderArmour I am very disappointed by the difficulty in trying to contact your global headquarters about a concern of those using your logo to make money, and taking advantage of vulnerable charities, such as our. #pleasecontactus #yourlogoourcharity

[PTLS Foundation @PTLSfoundation]

Parents breaking barriers. Children breaking barriers. No limits for our families ad PTLS community! Help support a good cause. BUY NOW! Limited time only! #ptls #ptlsawareness #breakingbarriers #ptlsnolimits

[PTLS Foundation @PTLSfoundation]

Get yours now! These cool shirts are the 2019 Annual @PTLSfoundation Shirt Fundraiser! You can help a great cause when you purchase a shirt or sweatshirt. Get yours for World PTLS Awareness Day March 8, 2019 https://t.co/KWvvIG31GG #ptlsawareness #beseenweargreen #worldawareness

[PTLS Foundation @PTLSfoundation]

They are HERE!! The Annual PTLS Foundation, Inc Shirt Fundraiser has started! Limited time to get your shirt or sweatshirt. PTLS 2019 ORDER HERE https://t.co/qEtoiemWSk #ptlsawareness #ptls

[Rare Diseases South Africa @rarediseasessa]

In many low-income and middle -income countries, only 5-15% of disabled people who require assistive devices and technology have access to them.

#AwareAboutRare #Care4Rare #LivingBeyond

[PTLS Foundation @PTLSfoundation]

It is estimated that 1 in 25 children is affected by a genetic disorder; therefore 30,000 babies and children are newly diagnosed in the UK each year. #ptls #ptlsawareness

[Voice of Islam Radio @VoiceOfIslamUK]

It is estimated that 1 in 25 children is affected by a genetic disorder; therefore 30,000 babies and children are newly diagnosed in the UK each year.

LIVE from 4pm we aim to raise awareness & understanding of genetic disorders and what it means to live with one.

#VOIdrivetime https://t.co/e876bzGd2Z

[PTLS Foundation @PTLSfoundation]

@PTLSfoundation Foundation, Inc is out raising awareness and educating families, educators, therapists and home service caregivers. #ptls #ptlsawareness #christiantellshisview #unlockingpotential #ptlsworldawareness