PVNHday

Aug. 7: World PVNH Disorder Awareness Day! Wear pink/yellow to show support for affected children, adults & their families. @PVNHsupport #hererotopiadisorders

[PVNHday @PVNHday]

@CityofVancouver The problem is not as much the parking as people who speed on nearby streets like 8th ave. It's become quite dangerous both as a driver and as a pedestrian...

[PVNHday @PVNHday]

long. So here we go: https://t.co/wvqnoETenC
🩷💛🩷
🩷💛💜🩷
💙💚🩷💜
#neuronalheterotopia
#PVNH #gmh #SBH
#RareEpilepsy
#periventricularnodularheterotopia
#greymatterheterotopia
#SubcorticalBandHeterotopia
#awareness

[PVNHday @PVNHday]

PVNH Support & Awareness celebrates Rare Disease Day by sharing Yolaine's story, in memory of Ella, the soul behind our work.
What a day! Yolaine Dupont shared a photo and message this am, then recorded this video for #RareDiseaseDay, but it never got posted because it was too

[PVNHday @PVNHday]

Merry Christmas !

[Destination Canada @DestCan]

Le Canada recrute ! 📅 #DestCanTourisme revient les 13, 14 et 15 novembre pour mettre en relation des travailleurs francophones qualifiés des secteurs du tourisme, de l'hôtellerie et de la restauration avec des employeurs canadiens. Plus d'info 🔗https://t.co/gwV3v66nAi

[PVNHday @PVNHday]

@CharlesEsten @NashvilleABCTV @CocaColaRoxy @clarembee @JonathanJackson @SamPalladio Hope to see some Canadian cultures on the schedule!

[PVNHday @PVNHday]

@ismailamehesen @PVNHsupport @gayr_official Yes!! We would that! 💯
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[PVNH Support @PVNHsupport]

It's here!!
@pvnhday !! Help us snap photos of illuminations, show your #pinkandyellow and share your stories!!
#PVNH #PVNHloud #worldpvnhday #pvnhday
#GMH #SBH #EpilepsyAwareness
🩷💛🩷

[PVNHday @PVNHday]

Passez au kiosque 18-19 pour un massage et la chance de gagner un voyage pour 2 en Thaïlande sur Air Canada!
#hautledrapeau #fierté
#vancouver

[PVNHday @PVNHday]

Happy pride! Come by booth 18-19 for a massage and a chance to win a trip for 2 to #thailand on #aircanada!
@aircanada @thailandinsidercanada @gothaibefree @vancouverpride
#flytheflag
#happypride
#vancouverpride
#canadapride2024
#VanPrideFest
// Joyeuse journée de la fierté!

[PVNHday @PVNHday]

More illuminations are coming in North America tonight. Keep an eye on our social media too as well will have a surprise for you today!

[PVNHday @PVNHday]

Did you take photos last night of will you be snapping photos tonight? ? Share with your family and friends and tag @pvnhsupport & @PVNHday.

[PVNHday @PVNHday]

#periventricularnodularheterotopia #periventricularheterotopia #greymatterheterotopia #subcorticalbandheterotopia
#aug7 #aug6 #FLNA #DCX #genetics
#pinkandyellow

[PVNHday @PVNHday]

PVNH Day Illuminations are starting a day early in Australia. Tag pics or videos to @pvnhsupport @pvnhday

#prequel
#PVNH #GMH #SBH #landmarks
#illuminations #awareness #brain #rarediseases #epilepsy .#rareepilepsy #malformationsofcorticaldevelopment
#MCD #neuronalheterotopia

[PVNHday @PVNHday]

From our family to yours, happy Easter!!

[PVNHday @PVNHday]

Congrats to Felicitys' parents and family on raising awareness for #WorldPVNHday.
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[henley herald @henleyherald]

Fliss' Day to Mark Awareness of PVNH - https://t.co/8F8zOc5TQd @PVNHsupport @PVNHday #Henley

[PVNHday @PVNHday]

@TourCNTower Thank you so much for your support!
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#PVNHloud

[PVNHday @PVNHday]

@Missyjj Super picture of the bridge lit up in #pinkandyellow for World @PVNHday! May we use it with credit?

[PVNHday @PVNHday]

@MassDOT So grateful for your support!