PWSA Vic Inc.

The Prader-Willi Syndrome Association of Victoria Inc. (PWSA Victoria) is a volunteer lead ACNC registered Australian Charity, with many volunteers having

[PWSA Vic Inc. @PWSAVICTORIA]

Great to hear our Ambassador David Rhys-Jones on 3AW’s top-rating Ross and Russel Breakfast Show talking about our 15for15 Challenge, and his own personal challenge to raise money: “Interviewing 15 Stars in 15 Days."

👂Listen to his interview here:
https://t.co/rvPUh1DpLy

#pws

[PWSA Vic Inc. @PWSAVICTORIA]

Be sure to come along to our PWS Connect Day in Doncaster this Sunday, May 2 at 11am!

For more details, please check out our Facebook event page, and press 'Going' ✅ if we can expect to see you there: https://t.co/gcx20nbiaU

This event is free and open to everyone!

#PWS

[PWSA Vic Inc. @PWSAVICTORIA]

Squires Winery will be sponsoring our #15for15challenge weekly prize! 🍇

This prize includes a half dozen mixed box of Squires Wines, with a total weekly prize value of $150. 🍷

Check out our website to learn more: https://t.co/4UdjGOGI16

#pws #praderwillisyndrome #praderwilli

[PWSA Vic Inc. @PWSAVICTORIA]

We have been fortunate to team-up with Vibe Hotel in Gold Coast to grant one lucky 15for15 challenger a seven-night stay for a family of 4! 🏨

To learn more, check out our website: https://t.co/89rsF1Xb51

#pws #praderwillisyndrome #praderwilli #15for15challenge #pwssupport

[PWSA Vic Inc. @PWSAVICTORIA]

Take a look at our Limited Edition 2021 15for15 Challenge T-shirts, and be quick to snatch one before they're all gone!

We have Men/Unisex, Women and Child/Youth sizes available. Check it out here: https://t.co/iUPcl7JZLB

#pws #praderwillisyndrome #pwsawareness #pwssupport

[PWSA Vic Inc. @PWSAVICTORIA]

Join Dietitians Australia in their upcoming PWS webinar to explore how effective collaboration sets the stage for success across the lifespan of those living with Prader-Willi Syndrome.

Check out the link for details: https://t.co/QNMOV2YJgl

#praderwillisyndrome #PWS

[PWSA Vic Inc. @PWSAVICTORIA]

We've created a step-by-step guide on how to get involved in this year's #15for15challenge, and what you can do throughout May to raise awareness and generate greater funds for those living with Prader-Willi Syndrome. Check it out! 🧡

#pws #praderwillisyndrome #pwsawareness

[PWSA Vic Inc. @PWSAVICTORIA]

Take a look at our supporters for our #15for15challenge this year!

@MonashUni @MonashChildrens @RCHMelbourne @MonashPartners

#pws #praderwillisyndrome #pwswarrior #pwsawareness #pwsadvocacy #pwsservices #pwssupport #pwscommunity #15for15 #pws15for15challenge #pwsresearch

[PWSA Vic Inc. @PWSAVICTORIA]

In our latest article, we give you the rundown on the history surrounding PWS Awareness month, including the Go Orange and 15for15 Campaigns. Have a read here: https://t.co/lIm6S1WbC3

#pws #praderwilli #praderwillisyndrome #pwsawareness #pwssupport #pwscommunity #15for15

[PWSA Vic Inc. @PWSAVICTORIA]

Wishing everyone an egg-cellent Easter from the PWSA Vic team! 🐰🐣

#praderwillisyndrome #praderwilli #PWS #pwssupport #pwseducation #pwsadvocacy #pwsawareness #pwsinformation #pwssiblings #pwscommunity #pwsfamily #pwsavic #pwsavictoria #pwsnews #pwsresources

[PWSA Vic Inc. @PWSAVICTORIA]

Gain insight into the behind-the-scenes work at PWSA Vic, and how we have adapted to working online in a COVID world 💻.

Read more about the tools we adopt to continue to delivering our vital projects: https://t.co/ngr1mtO7Qx

#praderwillisyndrome #praderwilli #PWS #pwsawareness

[PWSA Vic Inc. @PWSAVICTORIA]

We are excited to announce that our next PWS Connect Day will be in Donnybrook. If you're in outer North Melbourne, don't miss this opportunity to catch-up with our PWS community 🧡!

Head over to our events page for more details: https://t.co/VG9X4cH9dL

#PWS #pwscommunity

[PWSA Vic Inc. @PWSAVICTORIA]

Summary of The Foundation for Prader-Willi Research by Elizabeth Roof, Senior research specialist, Vanderbilt Kennedy Center, USA

https://t.co/ia5ysmEFNU

[PWSA Vic Inc. @PWSAVICTORIA]

Physiotherapy for children with #pws primarily focuses on the child’s low muscle tone, which can delay gross motor milestones. Early intervention should begin asap to monitor and progress developmental milestones carefully
https://t.co/RiF0GN8twx
#praderwillisyndrome #pwsphysio

[PWSA Vic Inc. @PWSAVICTORIA]

This article will hopefully give you some insight and tips to help you navigate the PWS challenges at home while we are living in a world that requires us to follow professional advice of isolation and social distancing.
https://t.co/4ydenIPmrs

[PWSA Vic Inc. @PWSAVICTORIA]

Recent Victorian Lockdown has seen a significant increase in mental health issues
We have engaged a Counselling service, EAP Assist, offer information and referrals together with a range of self-help exercise for a vast array of subjects
Free for members
https://t.co/zK4bEvC4qQ

[PWSA Vic Inc. @PWSAVICTORIA]

Prader-Willi Syndrome occurs when a baby is born and a piece of their Chromosome 15 is imperfect. People living with PWS are more than a syndrome. They may inherit their mothers nose, or their fathers sense of humour but they will be themselves foremost
https://t.co/LgTqM5BJQD

[PWSA Vic Inc. @PWSAVICTORIA]

People with PWS have aspirations for life, like we all do. They enjoy getting out in the community and love to chat and joke.

Show your support and help raise awareness here:
https://t.co/pls1457t5W

#pws #praderwillisyndrome #pwsawareness #pwsstatewidecare #15for15challenge

[PWSA Vic Inc. @PWSAVICTORIA]

Your donation will support the development of an evidence- based state-wide care program for children with #PWS led by Monash University for implementation at The Royal Children's Hospital and Melbourne and Monash Children's Hospital

Find out more here
https://t.co/WZvorForTM