Archana Vashist Panda

Spinal Muscular Atrophy Patients Advocate, Policy Reasearch & Advocacy 4 HealthCare, Regulatory Affairs, Accreditations- Social, Safety, Environment, Qlty

[Soumya Swaminathan @doctorsoumya]

Modelling results suggest that even a single day of extreme heat yields thousands of excess deaths, and a multi-day heatwave results in tens of thousands of excess deaths. #Heat is a public health emergency. https://t.co/RNgkPNAkq6 @MoHFW_INDIA @ndmaindia @thePHFI @CEEWIndia

[Soumya Swaminathan @doctorsoumya]

I am grateful for all the messages I have received congratulating me for my election as Fellow of the @royalsociety.

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

@curesmaindia extends deepest & heartfelt gratitude 2 Dr.V.K.Paul on completion of his tenure as Member-Health @NITIAayog .
His guidance n support 4 Rare Disease n SMA community has been very meaningful n helpful in navigating d challenges. V wish him good health n happiness 🙏

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

"Beyond what we thought, towards what we dreamed."

@curesmaindia extends its deepest gratitude to the Government of Kerala, and Hon. Health Minister Smt. Veena George @VeenaGeorge03
4 the historic decision to expand the the age limit for risdiplam to 25 years !!!

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

On #RareDiseasesDay , 20 yr old Nived speaks on behalf of #SMA patients in Kerala thanking the @iprdkerala . Thank you Hon. CM @pinarayivijayan Hon. HM @VeenaGeorge03 and Nodal Officer @drrahulur for extending free SMA medicine access from age 12 to 25 🙏

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

August is #SMAwarenessMonth! Early diagnosis & treatment can be a game-changer for those with Spinal Muscular Atrophy. Let's raise awareness & support affected individuals! Join @CureSMAIndia in making a difference! #CureSMA #SMAwareness

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Meet Pranjali, a #SMAWarrior! Despite Spinal Muscular Atrophy, she's found strength & joy in painting. "Art makes her feel alive!" Let's celebrate her resilience & creativity this #SMAwarenessMonth! 💕🎨 #CureSMA #SMArt

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMA is a diagnosis,not a definition.Let's shift our perspective and see our children for who they are-unique individuals with endless potential! Let's encourage them to pursue their passions & celebrate their existence in all its beauty! #SMAwareness #CelebrateEveryChild

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Meet Aditya, #SMArt warrior from Tamil Nadu! Despite living with #SMA, Aditya is determined to fight! 💪 He stays active with physiotherapy and attends school in his wheelchair. Let's support Aditya who is waiting for treatment. 🙏 #SMAwareness #AccessToTreatment #SupportAditya

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Meet Deeksha, 15 & full of dreams! 🌟 Pilot? Too risky. Doctor? Too many years! Soldier? Too dangerous. Model? Too many veggies! 😅 SMA hasn't stopped her from dreaming big. Let's amplify voices like hers this #SMAAwarenessMonth! 💜 #LifeWithSMA #SMAWarrior #DreamBig

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Watch Harsh, a young #SMAwarrior, shine with joy as he plays with his friends! 🌟 This video shows the power of social connections and inclusive environments. Let's build communities where every child, regardless of their abilities, can thrive and feel valued. 🌈 #SMAwareness

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Akriti's journey with SMA Type 1 is truly inspiring! Diagnosed at 4 months,started Risdiplam at 7 months now sits without support, paints, sings rhymes & dreams big! Let's keep spreading awareness and hope! 💕 #CureSMAIndia #SMAAwareness #Risdiplam #HopeInMedicine #RareButStrong

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Meet Anfal! 🌟 Diagnosed with SMA Type 2 at 1, gene therapy at 20 months transformed his life! Now, he stands, swims, cycles & more! 🌟 Let's spread awareness & advocate for early treatment. 💡 #SMAAwareness #GeneTherapy #AnfalsJourney #HopeForSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Meet Arshiya! 🌟 Diagnosed with SMA at 1, Spinraza treatment helped her thrive! 🌈 Now she walks, draws & creates art. She aspires to be a doctor! 💪 Let's spread awareness & support SMA families. #SMAAwareness #Spinraza #HopeForSMA #GirlPower

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Meet Lionel & his courageous parents! Diagnosed with #SMA they fought for life-changing treatment despite challenges. Their story highlights the struggles SMA families face in India & shows the power of hope! Let's work together for better accessibility! 💪 #SMAwarenessMonth

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

THANK YOU to everyone who ran with us for SMA awareness! 🙏💪 Your energy & support mean the world to the SMA community. Special thanks to our esteemed guests for their inspiring presence! 🙌 Every step counts towards a better future for SMA warriors! 💕 #RunForSMA #SMAawareness

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Meet Divya, a 25-year-old warrior living with #SMA. Despite physical challenges, she's a talented poet, award-winning writer and pharmacy graduate. Her positivity and resilience inspire us too. Let's spread hope & support for individuals like Divya! #SMAawareness #TreatmentForAll

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Meet Dr. Abhinand from Chennai — an SMA Type 2 warrior who turned challenges into milestones
From living with SMA to earning a PhD in Bioinformatics & becoming an Assistant Professor, his journey proves strength isn’t in steps, but in courage. 💪

#SMAAwarenessMonth #LifeWithSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Dreams shouldn't be stopped by stairs 🚫! Muhammed Bilal, with SMA Type 3, needs remote job opportunities for stability, dignity & life-saving medicine. Accessibility isn't optional, it's freedom! 💪 #SMAAwarenessMonth #AccessibilityMatters #InclusionForAll

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Happy Independence Day! 💫 Let's break free from limitations & unleash our strengths, just like Zaid, young #SMArt warrior who's reaching for the stars! Freedom to live life to the fullest,with accessibility and inclusion for all! 🙌 #IndependenceDay #SMAwareness #InclusionForAll