Modelling results suggest that even a single day of extreme heat yields thousands of excess deaths, and a multi-day heatwave results in tens of thousands of excess deaths. #Heat is a public health emergency. https://t.co/RNgkPNAkq6 @MoHFW_INDIA@ndmaindia@thePHFI@CEEWIndia
@curesmaindia extends deepest & heartfelt gratitude 2 Dr.V.K.Paul on completion of his tenure as Member-Health @NITIAayog .
His guidance n support 4 Rare Disease n SMA community has been very meaningful n helpful in navigating d challenges. V wish him good health n happiness 🙏
"Beyond what we thought, towards what we dreamed."
@curesmaindia extends its deepest gratitude to the Government of Kerala, and Hon. Health Minister Smt. Veena George @VeenaGeorge03
4 the historic decision to expand the the age limit for risdiplam to 25 years !!!
August is #SMAwarenessMonth! Early diagnosis & treatment can be a game-changer for those with Spinal Muscular Atrophy. Let's raise awareness & support affected individuals! Join @CureSMAIndia in making a difference! #CureSMA#SMAwareness
Meet Pranjali, a #SMAWarrior! Despite Spinal Muscular Atrophy, she's found strength & joy in painting. "Art makes her feel alive!" Let's celebrate her resilience & creativity this #SMAwarenessMonth! 💕🎨 #CureSMA#SMArt
#SMA is a diagnosis,not a definition.Let's shift our perspective and see our children for who they are-unique individuals with endless potential! Let's encourage them to pursue their passions & celebrate their existence in all its beauty! #SMAwareness#CelebrateEveryChild
Meet Aditya, #SMArt warrior from Tamil Nadu! Despite living with #SMA, Aditya is determined to fight! 💪 He stays active with physiotherapy and attends school in his wheelchair. Let's support Aditya who is waiting for treatment. 🙏 #SMAwareness#AccessToTreatment#SupportAditya
Meet Deeksha, 15 & full of dreams! 🌟 Pilot? Too risky. Doctor? Too many years! Soldier? Too dangerous. Model? Too many veggies! 😅 SMA hasn't stopped her from dreaming big. Let's amplify voices like hers this #SMAAwarenessMonth! 💜 #LifeWithSMA#SMAWarrior#DreamBig
Watch Harsh, a young #SMAwarrior, shine with joy as he plays with his friends! 🌟 This video shows the power of social connections and inclusive environments. Let's build communities where every child, regardless of their abilities, can thrive and feel valued. 🌈 #SMAwareness
Akriti's journey with SMA Type 1 is truly inspiring! Diagnosed at 4 months,started Risdiplam at 7 months now sits without support, paints, sings rhymes & dreams big! Let's keep spreading awareness and hope! 💕 #CureSMAIndia#SMAAwareness#Risdiplam#HopeInMedicine#RareButStrong
Meet Anfal! 🌟 Diagnosed with SMA Type 2 at 1, gene therapy at 20 months transformed his life! Now, he stands, swims, cycles & more! 🌟 Let's spread awareness & advocate for early treatment. 💡 #SMAAwareness#GeneTherapy#AnfalsJourney#HopeForSMA
Meet Arshiya! 🌟 Diagnosed with SMA at 1, Spinraza treatment helped her thrive! 🌈 Now she walks, draws & creates art. She aspires to be a doctor! 💪 Let's spread awareness & support SMA families. #SMAAwareness#Spinraza#HopeForSMA#GirlPower
Meet Lionel & his courageous parents! Diagnosed with #SMA they fought for life-changing treatment despite challenges. Their story highlights the struggles SMA families face in India & shows the power of hope! Let's work together for better accessibility! 💪 #SMAwarenessMonth
THANK YOU to everyone who ran with us for SMA awareness! 🙏💪 Your energy & support mean the world to the SMA community. Special thanks to our esteemed guests for their inspiring presence! 🙌 Every step counts towards a better future for SMA warriors! 💕 #RunForSMA#SMAawareness
Meet Divya, a 25-year-old warrior living with #SMA. Despite physical challenges, she's a talented poet, award-winning writer and pharmacy graduate. Her positivity and resilience inspire us too. Let's spread hope & support for individuals like Divya! #SMAawareness#TreatmentForAll
Meet Dr. Abhinand from Chennai — an SMA Type 2 warrior who turned challenges into milestones
From living with SMA to earning a PhD in Bioinformatics & becoming an Assistant Professor, his journey proves strength isn’t in steps, but in courage. 💪
#SMAAwarenessMonth#LifeWithSMA
Dreams shouldn't be stopped by stairs 🚫! Muhammed Bilal, with SMA Type 3, needs remote job opportunities for stability, dignity & life-saving medicine. Accessibility isn't optional, it's freedom! 💪 #SMAAwarenessMonth#AccessibilityMatters#InclusionForAll
Happy Independence Day! 💫 Let's break free from limitations & unleash our strengths, just like Zaid, young #SMArt warrior who's reaching for the stars! Freedom to live life to the fullest,with accessibility and inclusion for all! 🙌 #IndependenceDay#SMAwareness#InclusionForAll