PANS/PANDAS Parent

Parent to 2 🐼🐼 PANDAS/PANS/AE

Physician resources & latest research:

[PANDAS PHYSICIANS NETWORK @PANDASPPN]

The #PANS/#PANDAS Research Consortium consensus statement & treatment recommendations were developed by experts in the fields of child #psychiatry, #pediatrics, #infectiousdisease, #microbiology, #neurology, #neuroimmunology, #immunology, & #rheumatology. https://t.co/VOBDJQvSk9

[Dritan Agalliu @DAgalliu]

This schematic diagram based on our mouse studies captures beautifully what may be happening in the brains of children with post-infectious BGE (PANDAS/PANS). Our human sera cytokine profiling and genetic studies support this model.

[PANDAS PHYSICIANS NETWORK @PANDASPPN]

#PANS/#PANDAS needs to be part of the conversation when discussing #mentalhealth . Learn about sudden onset psychiatric symptoms associated with infections at https://t.co/PIqg2ci8l7. https://t.co/gA0qNO36E0 #MentalHealthAwarenessMonth

[PANDAS PHYSICIANS NETWORK @PANDASPPN]

Please join doctors from the Mass General PANDAS clinic as they present updates on various aspects of clinical care in #PANS/#PANDAS. This webinar will be presented live via Zoom on Thursday, May 20, 2021 at 4:00 PM EST. Register at https://t.co/Xc1Bm4RMO4.

[DrSarahJarvis @DrSarahJarvis]

Are you a school educator/nurse/therapist/administrator? If so, please consider joining a free webinar on 8th April on
“Understanding the impact of PANS, PANDAS and Long Covid in a school setting”

Essential we all understand more.
Full details at https://t.co/rrw8Re48AF

[PANDAS PHYSICIANS NETWORK @PANDASPPN]

If you see a child with a sudden and dramatic onset of unwanted thoughts, fears, rituals, #OCD, and a decline in #mentalhealth, consider #PANS/#PANDAS. #Strep or another #infection may be triggering the symptoms and distress.

[PANS/PANDAS Parent @PansParent]

@CollarCuffsCo If this individual wasn't targeting P/P families and (in essence) blaming them for their children's symptoms, I would agree with you. Always happy to discuss differing viewpoints, but don't want to give much oxygen to trolls.

[PANS/PANDAS Parent @PansParent]

@CollarCuffsCo This person is just a time suck, and not interested in any good faith or useful discussion.

[PANS/PANDAS Parent @PansParent]

@sue_beachcover @CapitalistFraud Updated guidelines for the clinical diagnosis of AE in children came were published this year.
https://t.co/az6KvX8wbz

[PANS/PANDAS Parent @PansParent]

@sue_beachcover @CapitalistFraud Yes, and 50% of autoimmune encephalitis patients are seronegative, if I recall, and discovery of new antibodies are occurring at the pace of two a year.

[PANS/PANDAS Parent @PansParent]

@CapitalistFraud @sue_beachcover It is obvious you don't understand clinical medicine or how diseases are discovered and described. Scientists aren't sitting in a lab playing around and discovering disease. They are lead by the emergence of clinical data, symptom clusters that appear together repeatedly.

[PANS/PANDAS Parent @PansParent]

@CapitalistFraud @sue_beachcover It is ridiculous to expect someone to play your hypothetical thought experiment. Are you familiar with Dr Kipnis they only recently discovered the lymphatic vessels in the brain.

[PANS/PANDAS Parent @PansParent]

@CapitalistFraud @sue_beachcover What if we wake up one day and realize we been living in the matrix? I don't live my life thinking I'm in the middle of a conspiracy theory. I know it can be enchanting to feel one knows better than everyone else, but it isn't reality.

[PANS/PANDAS Parent @PansParent]

@CapitalistFraud @sue_beachcover "Absence of evidence is not evidence of absence". There are many things that we don't have all the answers for, but it doesn't mean that there is no mechanism for disease. It's like saying the earth is flat because I can't prove to you that the earth is round. 🤨

[PANS/PANDAS Parent @PansParent]

@CapitalistFraud @sue_beachcover

[PANS/PANDAS Parent @PansParent]

@CapitalistFraud @sue_beachcover You're changing the topic. Did you even look at the abstracts above?

[PANS/PANDAS Parent @PansParent]

@CapitalistFraud @sue_beachcover ..and the epidemiological data clearly shows a link between infections and risk of mental disorders.
https://t.co/Gv56yWY6kj

[PANS/PANDAS Parent @PansParent]

@CapitalistFraud @sue_beachcover https://t.co/aEKv9At9ek

[PANS/PANDAS Parent @PansParent]

@CapitalistFraud @sue_beachcover I'd suggest that, just like Freud who changed his focus from biological model to psychological model due to inadequate imaging technology, we just haven't been able to see the impact of the inflammation in a closed system with old technology.