Can you describe a sensation without feeling it first? Turns out I prove you absolutely can! Check out this new & groundbreaking paper about me written by @KimsFriendPeggy & the awesome linguistics team on this project.
https://t.co/pznl0NOxhj
2022 has been an exciting year of growth. Thank you all for joining me on the ride. As we wait to see what 2023 brings, here’s a song to help you celebrate tonight. Happy New Year! #mtafmovie#nye2022#disability#piano
Always been big ⚾️ fan. This week, I achieved a major bucket-list moment with a trip to @baseballhall in #Cooperstown. Gorgeous weather, all-American town, & 6 hrs exploring the sport’s greatest players & moments. Def. a trip to remember! @MTAFmovie#baseball#vacation
It’s National Dog Day! 🐾I’ve had a dog for as long as I can remember. They bring such comfort, joy, and LOVE. Here’s just a few of the special ones I’ve had in my life. Who are some of your furry friends? #NationalDogDay@MTAFmovie
I always wanted to learn to play 🎹 but thought I couldn’t do it bc of my fine motor skills. W/ prodding from friends, I decided to try adaptive music program. I’m LOVING every minute of it. 🎶 Moral of story? Try the scary thing. You won’t regret it. #music#disability
Happy anniversary to sis Kelly & BIL Chris! Wouldn’t be me w/o family support. Driving me, helping me, laughing w/ me at ‘only Kim’ moments - these 2 always there. And, in true sibling fashion, they keep it 💯& remind me how ‘unspecial’ I really am.🤪 I love it all. #mtaf#family
Happy #FathersDay! My dad’s done everything to provide for us. It’s taken much unseen sacrifice. It’s also brought amazing opportunities to our lives. I’ve gotten lots from my dad - faith,determination, & of course,love of sports. I wouldn’t be me w/o him. Can’t wait to tell more
Great vacation at @WaltDisneyWorld ! 1 of my favorite places. I love going on the rides. Thankfully, I can experience most of them w/ Disney’s excellent #disabilityaccess . I also love seeing characters. Looks like Mickey was happy to see me again too! ☺️ #disney#summervacation
Summer’s here! 1 thing I enjoy in summer is swimming. My mom put me in special lessons when I was 6 mos. old. I’ve loved the water since. I can’t swim independently, but like lots in my life, I’ve got my own way! #summer#disability#perseverance#love@KimsFriendPeggy
20 yrs since I graduated college & 15 yrs since I graduated law school. WOW, time flies. My parents were told I’d be a “vegetable” & not able to learn. Well, 3 colleges, 2 degrees, & 1 career later, guess who got the last laugh? #doctorsdontknoweverything#disability@MTAFmovie
For 40+ yrs, my mom has been my cheerleader & friend. Then & now, she’s the family backbone. Armed w/ no knowledge when I was born, my mom & dad fought through all obstacles, teaching me to do the same. I’m excited to share that story. #MothersDay@PeggysFriendKim
7 yrs ago today,I met @kimsfriendpeggy for 1st time. Here’s our 1st photo. What a life-changing day. The 7 yrs since have been most amazing yrs of my life.The memories & friendship mean the world to me.Can’t imagine life w/o her.Can’t wait to share our story.@MTAFmovie@neuroMOOC
Happy Friday! Another hobby for me is jigsaw puzzles. This one is new to me & really took off bc of pandemic. For me, puzzles are fun & great stress relief. They also let me practice fine motor skills! @KimsFriendPeggy loves puzzles too. What new hobby did you pick up at home?
It’s Favorite Things Friday! I love games - board, card, word, you name it! As a kid, it was hard for me to run around & play, so playing games w/ family & friends was a way to have fun. @kimsfriendpeggy even joins in on the fun!What's your favorite game to play?
Couple of days late (hey, life happens!), but happy Int’l Women’s Day! I’m lucky enough to have not only @KimsFriendPeggy in my life, but many amazing women. I wouldn’t be who I am without them. Hope you take time to celebrate influential women in your life. #girlpower@MTAFmovie
Did you know 300 million people worldwide live with a rare disease? Living with a rare condition isn't easy. I sometimes feel like no one truly "gets" me. Doctors often shrug their shoulders when you ask questions, and even my family doesn't always know what to say.
That's why I'm so excited to be on this journey of discovery with @kimsfriendpeggy@MTAFmovie. It's the first chance I've ever had to find real answers. But, no matter what happens, I wouldn’t change my rare disease for anything.