Peta Murchison

A family dedicated to raising awareness for Batten Disease. Mia our 6 year old daughter suffers from CLN2. Let's get bouncing!

[Ambulance Victoria @AmbulanceVic]

A happy smile: We were lucky enough to recently see Tom, 6, sit in an ambulance and turn on the lights and sirens, as well as take a close-up look at our helicopters. Tom is fighting incurable Batten disease and it was a pleasure to host him. Tom's story - https://t.co/F5iVOCPDny

[Peta Murchison @PetaElizabeth]

@karinakeisler Thank you Karina. 💕

[Peta Murchison @PetaElizabeth]

@ianchris Thank you and love to you and your crew.

[Peta Murchison @PetaElizabeth]

@ianchris official video up this week on TEDxSydney website. You can still catch the live version https://t.co/PD2auIL33E or on the app

[Peta Murchison @PetaElizabeth]

'Facing your worst fear every day': Peta Murchison and daughter Mia - https://t.co/Sho2Zj8Z4s via @smh Great article @juliepower Thank you!

[Peta Murchison @PetaElizabeth]

@GaryNunn1 Thank you! 💕

[Peta Murchison @PetaElizabeth]

@pedrojono @tedxsydney Thank you! 💗

[Peta Murchison @PetaElizabeth]

tedxsydney's photo https://t.co/D60emPeEz2

[Peta Murchison @PetaElizabeth]

@gavin_scribes @tedxsydney Love your work. Thank you!

[Gavin Blake @gavin_scribes]

When a story moves you so much it stops you in your tracks @PetaElizabeth @tedxsydney #TEDxSydney

[Peta Murchison @PetaElizabeth]

Speaking at NSW Parliament House last night about inclusion. Thank you to Lifestart for the… https://t.co/cVQgrfSsps

[Peta Murchison @PetaElizabeth]

Sweet Toby singing. “@dailytelegraph: High five! Duchess at Bear Cottage today by @SkipperAust #RoyalVisitAustralia”

[Mirror Royal @MirrorRoyal]

http://t.co/wmmC3pHvyt Watch Duchess Kate's speech at Bear Cottage hospice #RoyalTourAus

[Rare Voices Australia @RareVoices]

Little Princess Mia to meet a "real princess" when Prince William & the Duchess of Cambridge visit Bear Cottage... http://t.co/godX8kFmwB

[Global Genes @GlobalGenes]

#RARE Daily is out! http://t.co/ScJo6taTiw Stories via @AhmadAlghamd1 @Murchachos @Save_Arian

[Peta Murchison @PetaElizabeth]

Regram libbytravers had never heard of Batten disease until it was affecting people I love.… http://t.co/kBkbEVkWTM

[Peta Murchison @PetaElizabeth]

@laurasmith67 beautifully said. Thank you.

[Peta Murchison @PetaElizabeth]

@RedGray thank you for supporting batten disease and darling little Mia Johannah. Keep bouncing!

[Peta Murchison @PetaElizabeth]

@matildajoprice thank you for supporting Batten disease and little Mia Johannah. Everyone get bouncing!

[Peta Murchison @PetaElizabeth]

@victorialee88 thank you for supporting batten disease and darling little Mia Johannah. Everyone get bouncing!