1/2 Newly published at the @eshgsociety conference this weekend - a poster & infographic illustrating the diagnostic odyssey many people affected by rare diseases experience, created through the EURORDIS-led Community Engagement Taskforce within the @Solve_RD project #diagnosis
Ein Pflasterstein um € 29,- kann Leben retten! Verewige dich und deine Lieben im Prater mit einem persönlichen Meilenstein und hilf mit, diese tödliche Krankheit zu besiegen. https://t.co/oX8lFlSrNw
#phaustria#lungenkinder#pulmonaryhypertension#raredisease
Support! Join us in an action to raise awareness about Pulmonary HypertensionPHAEUROPE - WPHD2020 05.05.Grab the FRAME from our FB page and simply click on the TRY IT button, post your profile photorography during the month of May #bluelips#phaeurope#WorldPHDay2020#WPHDay
PHA Europe starts online campaign for those affected by the incurable disease pulmonary arterial hypertension The World PH Day on May5th is used by the association PHA Europe to start an international online campaign for the benefit of sick people:The"blue lips campaign"#bluelips
Unsere Maleen Fischer spricht über ihre Vorbilder und Wünsche. Was Karl Lagerfeld damit zu tun hat, erfahrt ihr im Video. Wer sind eure Idole?
https://t.co/nlT2IWAD1Y
#phaustria#lungenhochdruck#pulmonaryhypertension