Pompe Wales

Pompe Wales is committed to promoting awareness and improving the lives of those that live with and those who care for those with Pompe Disease

[Pompe Wales @PompeWales]

Rare Disease Day is about raising awareness of conditions that affect less than 1 in 2,000. I have Pompe and we only diagnose 1 in 400,000 yet other countries diagnose much higher amounts. Awareness in Key. #pompewales, #pompe #pompeawareness

[Pompe Wales @PompeWales]

Rare disease day on Feb 28th 2025. Share to be rare. #Pompe, #Pompewales

[Pompe Wales @PompeWales]

February the 28th is Rare Disease Day

[Pompe Wales @PompeWales]

FND

[Pompe Wales @PompeWales]

Professor Julian Sampson launching the 100,000 Genome Project in Wales. #RareDiseaseDay #welshassembly #agsduk, #geneticalliance.

[Pompe Wales @PompeWales]

Rare Diseases Day at the Welsh Assembly.

[Pompe Wales @PompeWales]

#pompe #MDA Breath stacking helps many with breathing difficulties, here's a simple knowledge share that may help understand the technique.

[Pompe Wales @PompeWales]

#pompewales January 2018 calendar page. Raising awareness of Pompe Disease. Welsh folk tales about Wales. #wales #welshlanguage #welsh

[Pompe Wales @PompeWales]

Many people with #pompe struggle to cough. Here is a simple knowledge share on cough assist techniques for anyone with respiratory issues.

[Pompe Wales @PompeWales]

#pompewales is launching it monthly calendar pages. Celebrating different Welsh traditions and practices. #wales #pompe

[Pompe Wales @PompeWales]

@IamMrJ It's important with any rare disease to be your own advocate.