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Progeria UK
@ProgeriaUK
Progeria UK is registered charity no. 1115846
Joined February 2013
19
Following
57
Followers
29
Posts
Progeria UK
@ProgeriaUK
over 11 years ago
Hayley fell asleep and became an angel Thursday 2nd April 2015. Sweet dreams
@sunshinesirwin
xxx 💖
Progeria UK
@ProgeriaUK
about 12 years ago
We're all getting excited about the upcoming Progeria Reunion in August.
ProgeriaUK
retweeted
Vortex Promo Team
@vortexpromoteam
about 12 years ago
Please check out this new video of
@VortexDanceCru
http://t.co/QbEJv6PW4Q Thankyou :) @india_martin
Progeria UK
@ProgeriaUK
over 12 years ago
Friends Forever
#progeria
Who to follow
Oxalosis & Hyperoxaluria Foundation
@OHFTweet
The OHF is dedicated to finding treatments and a cure for all forms of hyperoxaluria. Research is the driving force behind our mission!
Ciliopathy Alliance UK
@CiliaAlliance
CAUK brings together patient support groups, researchers, doctors & allied health professionals representing patients & families living with ciliopathies.
ProgeriaUK
retweeted
Julia Clough
@JuliaLClough
over 12 years ago
On the 10th May I'll be doing 20 miles & 200 obstacles at the @RatRaceHQ Dirty Weekend raising money for
@ProgeriaUK
http://t.co/6A6Uk6mECW
Progeria UK
@ProgeriaUK
over 12 years ago
http://t.co/qlbO6UVpBB http://t.co/PXsueTilKJ Thank you xx
Progeria UK
@ProgeriaUK
over 12 years ago
This years Progeria reunion is in Denmark. donations help 2wards flights for Hayley, Harry, Ashanti, Lucy and their families
#thankyou
Progeria UK
@ProgeriaUK
over 12 years ago
Wishing all our 37 followers a very Merry Christmas and a Happy New Year xx
Progeria UK
@ProgeriaUK
almost 13 years ago
@BBCCiN
We hold reunions once a year for children living with Progeria. Can you help our Charity too please. http://t.co/Ld5UoVojND
ProgeriaUK
retweeted
VORTEX
@VortexDanceCru
about 13 years ago
@ProgeriaUK
ur very welcome! We really enjoyed it & wish we could do it again. Will defo support at future event and raise money for you:) x
Progeria UK
@ProgeriaUK
about 13 years ago
@MissSkoom
Thanks 4 joining us at our Progeria Reunion Farewell Party. Singing 4
@hayleyokinesx
@ Gangnam style with @Harry_Crowther1
ProgeriaUK
retweeted
Keishaaaa👑✌🏼️
@Keisha____Allan
about 13 years ago
@VortexDanceCru
@Progeria
@hayleyokinesx
@ProgeriaUK
N'awwww! How sweet of you boys! :) xxxxx
ProgeriaUK
retweeted
hayley
@sunshinesirwin
about 13 years ago
“
@VortexDanceCru
: Us at the
@Progeria
reunion with the amazing
@hayleyokinesx
and Claudia :) :) xx
@ProgeriaUK
” :D xx
ProgeriaUK
retweeted
VORTEX
@VortexDanceCru
about 13 years ago
#FF
to these amazing charities
@BBCCiN
@ProgeriaUK
@tyhafan @MacmillanCymru
ProgeriaUK
retweeted
VORTEX
@VortexDanceCru
about 13 years ago
Us at the
@Progeria
reunion with the amazing
@hayleyokinesx
and Claudia :) :) xx
@ProgeriaUK
Progeria UK
@ProgeriaUK
about 13 years ago
@VortexDanceCru
Thanks for supporting our charity & 4 yr amazing performance at our reunion. Fab that our kids also showed u some moves :)
Progeria UK
@ProgeriaUK
about 13 years ago
1 week to go till all the children & their families reunite
#ProgeriaReunion2013
#Excited
Progeria UK
@ProgeriaUK
about 13 years ago
4 weeks to go till this years Progeria Reunion
#excited
#progeriauk
Progeria UK
@ProgeriaUK
about 13 years ago
If anyone can donate items to make up gift hampers for our Progeria Mum's please can you help.
#Muchappreciated
DM if you can, thank you xx
Progeria UK
@ProgeriaUK
about 13 years ago
@butterfliefect
@OfficialDaTruth
Hello there, any funds we receive for our kids is always welcome. Helps so much towards our reunions.
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