The romanticization of downies is very weird to me.
“Oh they’re so happy!” Yeah because they have an IQ of 34.
People see little clips of the higher-functioning minority being cute online and then feel entitled to massively underestimate the amount of mental, social, financial, and medical resources it takes to raise them.
This isn’t helped by the fact that the parents of profoundly disabled kids often try and offset the (very valid) guilt, disappointment, and burnout they feel by frantically pretending like their lives are great because farming praise for being “good people” and righteously dunking on parents who don’t want that for themselves are the only coping mechanisms they have.
A profoundly disabled child is not a houseplant or kitten, and it isn’t a responsibility that ever ends. The vast majority of downies are not capable of obtaining even a mild degree of independence.
You will be taking care of them until the day you die (and spend the last moments of your life worrying about who will take care of them when you’re gone).
Imagine being 80 years old and still having to heat up nuggets for your 45 year old child, remind them to wash, tell them when to go to bed, etc…
Imagine not being able to do literally anything without having to consider whether or not your downie labubu can join.
Imagine never having grandchildren, or never being able to see your child go to college or get married. Fundamental experiences many look forward to, gone.
It’s not like the cute little clips in the vast majority of cases.
And this is all especially true if you have a male downie because once they hit puberty and adulthood, you now have all of the urges of a horny man trapped in the mind and body of someone with a no impulse control and superhuman retard strength.
It’s all fun and games until your 300 pound adult son who has the intellectual capacity of a turnip whips his junk out in a Walmart and starts rubbing it on the My Little Pony display (I witnessed this once, absolutely horrifying scenes).
All I’m saying is… If you want to be a downie parent - awesome. I wish you the best. I am sure there are plenty of profoundly disabled kids waiting to be adopted and you can put your money where your mouth is anytime.
But I do not blame anyone who does not want that life for themselves and, crucially, recognizes they would not be good parents in that situation.
At the very least, I respect the fact that they’re being honest, which seems to be something most people can’t do when it comes to the disabled.
Многие родители синдромальных детей не знают, что их ждет не только пожизненный уход за ребенком, но и куча сочетанных заболеваний, например, дети с синдромом Дауна часто болеют острым миелобластным лейкозом. То есть синдром Дауна в классическом виде и химиотерамия в лучем случае
Aqui el problema es que la majoria us penseu que tenir sindrome de Down es ser "tontito pero feliz" quan comporta una quantitat de problemes de salut greus molt mes enlla de la dificultat en l'aprenentatge.
Teniu la imatge de una persona afectada de: angelet feliç
I es incorrecte
¿Cuántos niños con Down vas a adoptar? Yo adopté una niña con una enfermedad genética y la cuidé hasta que falleció y te puedo decir que su vida estuvo de la chingada y nunca fue una vida digna, aún cuando le dimos la mejor vida que el dinero podía comprarle sus últimos años, nunca dejó de sufrir