RARE-Bestpractices

A platform for sharing best practices for the management of #RareDisease @cnmr_ISS (Istituto Superiore Sanità) @DTaruscio @EUROPLANproject @Rare_Journal

[AJPH @AMJPublicHealth]

Now online ahead of print: new research from our December issue! https://t.co/RI5e6HfoHQ #firearms #opioids #abortion #PrEP #HIV #scorpions

[Antoni Matilla @AntoniMatilla]

At @RAREBestP general discussion on Rare Diseases guidelines and sustainability.

[Rare Disease Policy @RareDiseasesEU]

In Paris today for @RAREBestP workshop on how to use and disseminate the outputs of @RAREBestP ! @DTaruscio @cnmr_ISS @Orphanet @BushbyKate

[Domenica Taruscio @DTaruscio]

European Reference Networks and Health Care Guideline: Challenges and Opportunities @istsupsan #rarebestpractices
https://t.co/gPaDqUuwPU

[Domenica Taruscio @DTaruscio]

Policies on Conflicts of Interest in Health Care Guideline Development
https://t.co/6cs653ar8E
#rarebestpractices #raredisease @istsupsan

[Avril Kennan 🌍 @AvrilKennan]

What a setting for the final @RAREBestP conference!

[Amalia Egle Gentile @AE_Gentile]

20.10.17 h18:45
#Inaugurazione SportelloRosa #FateBeneFratelliIsolaTiberina!

#OttobreRosa #TumoreSeno #prevenzione #BreastCancerAwareness

[RARE-Bestpractices @RAREBestP]

Health care guidelines are systematically developed statements by a systematic review of evidence & an assessment...
https://t.co/UZjuYQwTqe

[Domenica Taruscio @DTaruscio]

RARE-Bestpractices: Reliable guidelines for rare diseases management
https://t.co/DpqRbufhMu
RARE-Bestpractices https://t.co/LPmxpCGqm4

[RARE-Bestpractices @RAREBestP]

A Video Tutorial explains what information is available in RareGUIDELINE and how to use the database
https://t.co/FA4WR1wCDW

[RARE-Bestpractices @RAREBestP]

Do you know European Reference Networks?
Are you interested to understand them?
Please visit the EC
https://t.co/8awCzyvjmy

[RARE-Bestpractices @RAREBestP]

@RAREBestP has signed a statement of collaboration with E-RARE!

[RARE-Bestpractices @RAREBestP]

@RAREBestP has signed a statement of collaboration with @Orphanet!

[RARE-Bestpractices @RAREBestP]

@RAREBestP newsletter at:
https://t.co/WZet6fyZbx

[RARE-Bestpractices @RAREBestP]

@RAREBestP RARE-Bestpractices CONFERENCE. 24 November 2016, Rome.
Final Agenda available! https://t.co/t0VRDI0F9m

[RARE-Bestpractices @RAREBestP]

@RAREBestP conference. Registration open at https://t.co/IFUdTDOfC5

[RARE-Bestpractices @RAREBestP]

@RAREBestP Conference. Rome 24 November 2016. Draft agenda at https://t.co/C0elBaADTc.

[RARE-Bestpractices @RAREBestP]

25 October 2016. @RAREBestP workshop at INSERM in Paris!

[RARE-Bestpractices @RAREBestP]

@RAREBestP is at the EURORDIS meeting with "Good clinical practice in the context of ERNs" https://t.co/BhUU9PUutt