RARE Science

We are a nonprofit research organization accelerating therapeutic solutions for patients and fostering research collaboration in the rare disease community.

[Rare Genomics @RareGenomics]

Thanks to our friends @RARE_Science for donating #RAREBears to 13 children who received free clinical whole genome sequencing from RGI!

[RARE Science @RARE_Science]

Help our #boyscout earn is #Eagle! Partnering 2 build a global outreach program 4 #EDS, sending 1000 #RAREBears home https://t.co/fwqGD7HQ17

[RARE Science @RARE_Science]

Our goal is to send 1000 #RAREBears home this June! #Donate today to help w/ shipping &bring smiles around the world https://t.co/PjjbW9BpXE

[RARE Science @RARE_Science]

Take a look into what life is like for children living with #EhlersDanlosSyndrome #awareness #dazzletogether https://t.co/1Tv1MS3l9e

[The Ehlers-Danlos Society @TheEDSociety]

When I Asked 25 Kids With Ehlers-Danlos Syndrome What Their Lives Are Like
https://t.co/mGEBu0toTi

[The Ehlers-Danlos Society @TheEDSociety]

Check out https://t.co/JTavhlManH for more info #DazzleTogether

[The Ehlers-Danlos Society @TheEDSociety]

But you don't look sick!
Check out https://t.co/JTavhlManH for more information.
#DazzleTogether

[The Ehlers-Danlos Society @TheEDSociety]

Ehlers-Danlos patients often have GI comorbidities
Learn more at https://t.co/VLNRVDikrv
#DazzleTogether

[The Ehlers-Danlos Society @TheEDSociety]

Check out https://t.co/JTavhlManH for more info #DazzleTogether

[RARE Science @RARE_Science]

This is what #RAREScience is all about! Finding connections and, from there, cures. #ehlersdanlosawareness #raredisease #nonprofit https://t.co/Nb3jNIalkQ

[The Ehlers-Danlos Society @TheEDSociety]

Diagnosis delays are a huge problem for patients with EDS.
Check out https://t.co/JTavhlManH for more information.
#DazzleTogether

[The Ehlers-Danlos Society @TheEDSociety]

Why do hypermobility spectrum disorders affect people differently?
Check out https://t.co/JTavhlManH for more information.
#DazzleTogether

[The Ehlers-Danlos Society @TheEDSociety]

If many forms of EDS are collagen disorders, can we take collagen supplements?
Go to https://t.co/JTavhlManH for more info.
#DazzleTogether

[The Ehlers-Danlos Society @TheEDSociety]

What is Vascular Ehlers-Danlos Syndrome?
Check out https://t.co/JTavhlManH for more information.
#DazzleTogether

[RARE Science @RARE_Science]

May is #EhlersDanlosSyndrome Awareness Month! Check out some cool facts and #dazzletogether. #awareness #ehlersdanlosawareness #nonprofit https://t.co/PZCBcZW7li

[The Ehlers-Danlos Society @TheEDSociety]

What are the most common forms of EDS? Check out https://t.co/JTavhlManH for more information! #DazzleTogether

[The Ehlers-Danlos Society @TheEDSociety]

What are the Hypermobile Spectrum Disorders?
Check out https://t.co/JTavhlManH for more information!
#DazzleTogether

[The Ehlers-Danlos Society @TheEDSociety]

What are the Ehlers-Danlos syndromes?
Check out https://t.co/JTavhlManH for more information!
#DazzleTogether

[RARE Science @RARE_Science]

ICYMI: We had our bear match for @IFF_FOXG1 last Sunday and bears are on their way home! #awareness #RAREBearArmy #donate #FOXG1syndrome https://t.co/eKHgLKSdLP

[Repositive.io @repositiveio]

If we could lower barrier to access to data we could make a real difference to #rare #diseases - Christina Water at #BioDataWest

[RARE Science @RARE_Science]

We're so happy to see the #RAREBears have made themselves at home with #warriors Dylon, Ethan… https://t.co/7O1VtisIag

[Manuel Corpas @manuelcorpas]

#biodatawest @RARE_Science can help gather info by combining similar diseases - they even have an app that collects info from patients

[Manuel Corpas @manuelcorpas]

#biodatawest @RARE_Science - giving hope to patients