Top Tweets for #RAREScience
🚀 Wednesday Premiere — The Rare Science Series
Every week we drop insane performance truths you won’t find on Google.
Think you know human reaction speed? Think again.
Here’s the number that separates pros from everyone else 👇🧠⚡
#RareScience #HumanPerformance #Science
Today’s happy post is the beautiful smile brought to the beautiful face of a happy SHINE girl as she unboxes her RARE Bear.
If you’d like a RARE Bear for you SHINE loved one, see the pinned post in our private Facebook group to request one.
#rarebear #rarebeararmy #rarescience
Mitochondria are the power stations of ours cells & @MRC_MBU is on a mission understand their role in an ever increasing range of disease.
Visit them at #Rarefest22 to find out more & try your hand at DNA fishing!
Tickets FREE: https://t.co/vR4kwDWgkF
#RareDisease #RareScience
Happy to have had a very productive brainstorming session on application of mRNA platforms (used in Covid vaccines) for #rare #genetic disorders. Scientists, pharma companies and government officials were present.
#rarescience #raretechnology #makeinindia🇮🇳
Dysregulation of the complement system is a driver of many diseases across areas such as neurology, hematology, nephrology, and metabolics. Watch this video and visit https://t.co/9BqX58QWPg to learn more. #RareScience
Our pioneering legacy in rare diseases is rooted in being the first to translate the complex biology of the complement system into transformative medicines. Watch and learn more about how we are driving this research forward. https://t.co/9fHwC25xbe #Alexion30 #RareScience
Raj Pradhan joined Alexion because he was inspired by the mission to find solutions for devastating conditions that have few or no available treatment options. Watch to hear more about the challenges that motivate Raj every day to follow the science. #RareScience
Paul knows firsthand that in science, there is no reward without risk. For this reason, he encourages his research team to be bold and pursue novel ideas with strong conviction. Watch to learn more about Paul’s philosophy on innovation. #RareScience
SungKwon Kim believes in the power of collaboration to drive innovation. Watch this video to hear why SungKwon is passionate about scientists partnering together to drive complement research forward. #RareScience
As an Alexion scientist since 1997, Susan Faas has a special perspective. She was part of our early, pivotal complement research and today, she continues to lead our efforts to expand our complement portfolio. Watch the video to hear her reflections. #RareScience
Anita Hill spent 24 years treating patients in the clinic, particularly people living with paroxysmal nocturnal hemoglobinuria (#PNH). She then joined Alexion to help this community in a new way. Check out this video to hear more about Anita’s experience. #RareScience
Moshe Vardi is advancing the next wave of complement research as the head of Alexion’s Factor D platform. He believes that being a leader in rare disease research comes down to “the three Ps” – patients, people, and platform. Click play to learn more. #RareScience
Sharon Barr is passionate about our pioneering rare disease research, opportunities for collaboration, and Alexion’s contributions to the evolving New Haven, CT scientific ecosystem. Sharon’s philosophy is that you can’t do science alone – watch to learn more. #RareScience
Great news for the GNE myopathy community - initial progress towards gene therapy!
#rarescience #raredisease #genetherapy #geneticdisorder
Link - https://t.co/PRZZDIRpzo
Designing rare disease clinical trials requires unique capabilities and expertise. Watch the video to hear Laura Gault’s perspectives on why understanding the patient experience is key to designing scientifically rigorous studies. #RareScience
If you ask Scott Rottinghaus, he’ll tell you pursuing clinical research was the best career decision he ever made. Why? It marries both of his passions – science and helping patients. Watch the video to hear about what makes working in rare disease meaningful. #RareScience
(T 2/2) Summary of WWGM's Annual Conference - for those who want to know what we've been up to and what's going on in the GNE myopathy community.
#PatientDay #patientpower #RareScience #raredisease #PatientGroup #genetherapy #rareispowerful
(T 1/2) Summary of WWGM's Annual Conference - for those who want to know what we've been up to and what's going on in the GNE myopathy community.
#PatientDay #patientpower #RareScience #raredisease #PatientGroup #genetherapy #rareispowerful
Learn about our ongoing research to build upon our deep expertise in complement biology and hear about our work to advance the next generation of complement inhibitors to help more patients. https://t.co/tS0BX1WXmX #RareScience
Neuromyelitis Optica Spectrum Disorder (#NMOSD) is a rare, autoimmune disorder of the central nervous system that affects the optic nerve and spinal cord. Learn more about the science of NMOSD: https://t.co/tS0BX2eyLx #RareScience
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