RCH Publications

Publications that raise awareness. Our book 'Understanding hypermobile Ehlers-Danlos syndrome & hypermobility spectrum disorder.' is now available.

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@RobBiddulph 'Late for work again' sausage dog :-)

[RCH Publications @RCHPublications]

@BBCWorld .to be identified. Although not a neurological disorder itself, many neurological & spinal problems which have been observed to be more common in Ehlers-Danlos syndrome. Examples include thoracic outlet syndrome (neurogenic type) and Chiari malformation type I, & migraine..3/4

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@BBCWorld For more information please view (in alphabetical order): https://t.co/R7YeFsEwMs, https://t.co/sXwxhrvkob and https://t.co/AEiTKtqFqj 4/4

[RCH Publications @RCHPublications]

@BBCNews .to be identified. Although not a neurological disorder itself, many neurological & spinal problems which have been observed to be more common in Ehlers-Danlos syndrome. Examples include thoracic outlet syndrome (neurogenic type) and Chiari malformation type I, & migraine..3/4

[RCH Publications @RCHPublications]

@BBCNews For more information please view (in alphabetical order): https://t.co/R7YeFsEwMs, https://t.co/sXwxhrvkob and https://t.co/AEiTKtqFqj 4/4

[RCH Publications @RCHPublications]

@BBCNews ..is thought to alter the biology of collagen in the body, which can lead to multi-systemic symptoms. The hypermobile type of EDS is considered the most prevalent type of inherited genetic disorder of connective tissue in the world although the causational gene(s) has yet...2/4

[RCH Publications @RCHPublications]

@BBCNews To aid better understanding, that is so badly needed, please could you adjust your news coverage. Ehlers-Danlos syndrome (EDS) is not a neurological disorder. It is a collection of heritable connective tissue disorders. Either directly or indirectly, Ehlers-Danlos syndrome.. 1/4

[RCH Publications @RCHPublications]

@BBCWorld ..is thought to alter the biology of collagen in the body, which can lead to multi-systemic symptoms. The hypermobile type of EDS is considered the most prevalent type of inherited genetic disorder of connective tissue in the world although the causational gene(s) has yet...2/4

[RCH Publications @RCHPublications]

@BBCWorld .to be identified. Although not a neurological disorder itself, many neurological and spinal problems which have been observed to be more common in Ehlers-Danlos syndrome. Examples include thoracic outlet syndrome (nuerogenic type) and Chiari malformation type I, & migraine..4/4

[RCH Publications @RCHPublications]

@BBCWorld ..is thought to alter the biology of collagen in the body, which can lead to multi-systemic symptoms. The hypermobile type of EDS is considered the most prevalent type of inherited genetic disorder of connective tissue in the world although the causational gene(s) has yet...2/4

[RCH Publications @RCHPublications]

@BBCWorld To aid better understanding, that is so badly needed, please could you adjust your news coverage. Ehlers-Danlos syndrome (EDS) is not a neurological disorder. It is a collection of heritable connective tissue disorders. Either directly or indirectly, Ehlers-Danlos syndrome.. 1/4

[RCH Publications @RCHPublications]

@Sia ... - many of us look 'normal' on the surface, but are battling every day with the symptoms of EDS and it's associated disorders. https://t.co/VVB7mLURne

[RCH Publications @RCHPublications]

@Sia ...helpful to those of us who are told 'you don't look like you have a disorder' or 'well you seem to hold down a job ok' - it shows that the perceptions of what those with EDS should look like are wrong... 3 of 4

[RCH Publications @RCHPublications]

@Sia ...(of what is such a poorly understood disorder) will limit the work offers they receive, or significantly affect their workers insurance premiums. Now, one by one, you are helping our community by speaking up. Apart from raising awareness of EDS, it is also incredibly... 2 of 4

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@Sia We are so grateful you, and others in public eye who have Ehlers-Danlos syndrome, who are starting to speak out. Understandably, some may always wish to keep their diagnosis private and some may have been too afraid to speak publicly for fear that the diagnosis... 1 of 4

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Every Friday throughout EDS Awareness Month we're giving away a copy of this book. A recipient will be picked at random as at midnight GMT & notified the following Monday. Simply like & retweet this post #EDSAwarenessMonth #hypermobility @Ehlersdanlosuk @HMSAcharity @TheEDSociety

[RCH Publications @RCHPublications]

Congratulations! The recipient of this week's book giveaway is @braceyourselfss. Please would you DM with your address details, & we will get your book sent out to you. Thank you very much to everyone for liking & retweeting, and we will be starting another giveaway on Tue :-)

[RCH Publications @RCHPublications]

Every Friday throughout EDS Awareness Month we're giving away a copy of this book. A recipient will be picked at random as at midnight GMT & notified the following Monday. Simply like & retweet this post #EDSAwarenessMonth #hypermobility @Ehlersdanlosuk @HMSAcharity @TheEDSociety

[RCH Publications @RCHPublications]

Every Friday throughout EDS Awareness Month we're giving away a copy of this book. A recipient will be picked at random as at midnight GMT & notified the following Monday. Simply like & retweet this post #EDSAwarenessMonth #hypermobility @Ehlersdanlosuk @HMSAcharity @TheEDSociety

[RCH Publications @RCHPublications]

Hi, May is EDS Awareness Month and you can find a list of the content covered in the book ‘Understanding hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorder’ by Claire Smith at: https://t.co/9H52g6DpP6 #EDSAwarenessMonth