Rare Disease Research (RDR) & Gooseberry Research (GBR) are sponsoring the World Orphan Drug Congress (WODC) in Boston, MA, from April 22-24! 🌟
Visit us at Exhibit #439 to learn more about the groundbreaking work we’re doing!
#WODC#RareDiseaseResearch#GooseberryResearch
Now Enrolling: BEACH301 Clinical Trial
In partnership with Tyra Biosciences, Rare Disease Research (RDR) is committed to advancing research and providing access to a new clinical trial for eligible children with achondroplasia. Learn more at https://t.co/89ibfwz6O1
Excited to welcome Dr. Scott Batchelor, MD, to Rare Disease Research LLC! With 16 years of pediatric emergency care experience, he’s ready to help us advance research & treatments for rare disease patients. #RareDiseaseResearch#PediatricCare#HealthcareInnovation
Forget basketball – March Madness hit the office with an epic Connect Four Tournament! 🏀🟡🔴 Brackets were busted, trash talk was real, and the competition was intense. Who’s ready for a rematch? 👀🏆 #MarchMadness#OfficeShowdown#ConnectFour
We are excited to partner with @tyrabiosciences Biosciences to bring the BEACH301 clinical trial for eligible children with achondroplasia to families in the southeastern US, starting in Atlanta.
🌐 Visit at https://t.co/89ibfwz6O1 to learn more.
#Achondroplasia
Counting down to SCRS IncluDE Site Solutions Summit™ on April 7-8, 2025, in Atlanta, GA!
RDR, LLC will be at the SCRS IncluDE Site Solutions Summit™ connecting with peers.
Be sure to stop by our exhibit booth #4! Let’s Partner for Progress™ and work together #SCRS2025
Rare Disease Research is launching a new clinical trial for MCT8 deficiency called MCT8/ReTRIACT. This trial aims to explore potential treatments of individuals affected by this condition. To learn more about the trial and how to get involved, contact the RDR team today
Just back from #MDA2025, feeling inspired & energized!⚡️ Dr. Smith, Dr. Giordano, Dr. Shih, and Alpa had incredible discussions on groundbreaking research & collaborations that put patients first.
Huge thanks to the organizers, speakers, & all who made this event a success!
Counting down to SCRS IncluDE Site Solutions Summit™ on April 7-8, 2025, in Atlanta, GA! Rare Disease Research, LLC will be at the SCRS IncluDE Site Solutions Summit™
Be sure to stop by our exhibit booth #4! Let’s Partner for Progress™ and work together #SCRS2025
Happy Certified Nurses Day to three incredible Nurse Practitioners at RDR, LLC! Emily Murray, Kallie Platt, and Meg Hudspeth! 💙Their dedication to patient care and clinical research makes a real impact in the rare disease community every day. #CertifiedNurses
Welcome Austin Holland to Rare Disease Research LLC as our new Clinical Site Manager! With a strong background in clinical operations & leadership, plus a runner’s endurance, he’s ready to help drive our research forward. 👏🏃♂️ #NewHire#ClinicalResearch#RDR
Looking forward to an interactive Day 2 at the MDA conference! Proud to sponsor the MDA Clinical & Scientific Conference (March 16-19, 2025) in Dallas, TX! Join PI Edward Smith at the Catalyst Pharmaceuticals Forum on March 18, 7-8 a.m. CT. Let’s connect! #MDAconference
🔬 Celebrating the scientists whose discoveries drive rare disease treatments! 📷Our principal investigators are grateful to the scientists driving breakthroughs in rare disease research! Your dedication is paving the way for life-changing treatments. #CelebrateScientistsDay
Welcome Dr. Renata Shih to RDR! 🎉 A pediatric cardiologist with 10+ years of experience, joining our Atlanta team to advance rare disease research. #RareDiseaseResearch#ClinicalTrials
Exciting news! We’ve installed a new compounding aseptic isolator at our @RareDiseaseResearch site in Atlanta. Meet Gene-ifer, here to support new gene therapy clinical trials and deliver life-changing treatments for rare diseases! 💪
#ResearchInnovation#GeneTherapy
Proud to be a partner of the 2025 @MDAorg Clinical & Scientific Conference in Dallas, March 16-19. The conference will explore the latest research advancements & clinical achievements in #neuromuscular disease. Please see us at the booth # 525!
RDR was thrilled to attend the first annual Rare Strides Glow in the Dark Concert on May 7, 2022!
We are proud to collaborate with @RareStrides as we further a shared goal of making rare visible.
#raredisease#rdr