RICK KARL

[RICK KARL @RICKKARL1]

IN STOCK AND NOW SHIPPING!!!!! FREE CTSF SHIRTS.

Just e-mail our guy in charge:

[email protected]

Be sure to tell him your mailing address, and size(s).

Back by popular demand... it's the third annual... https://t.co/wOSaJ3edbu

[RICK KARL @RICKKARL1]

Back by popular demand... it's the third annual spring/summer CTSF T-Shirt free giveaway!!! And this year, we've included the kids too!!! The purpose is to raise awareness of Tay-Sachs, and we want you and your... https://t.co/Y7kQYP7eRH

[RICK KARL @RICKKARL1]

Thanks to Ralph Keefner (Julie Bihn's Dad) for all his work in sketching many of our kids over these many years. His work is now prominently displayed at the Axovant Gene Therapy offices in New York City!! https://t.co/8PMMjbSyIM

[RICK KARL @RICKKARL1]

Everyone loves hiking for our kids!! https://t.co/kZLl6lyp4t

[RICK KARL @RICKKARL1]

The 2019 Iceberg Awards are here and are already being mailed out. Donate, have a fundraiser, do a FB fundraiser... basically do anything that brings in $1000 in 2019 and earn one of these beauties. The tradition continues!! There is Hope in Your Help! Get yours.

[RICK KARL @RICKKARL1]

https://t.co/12w3MwNfTP

[RICK KARL @RICKKARL1]

Dear Rick –

Earlier this morning, Axovant, in partnership with our collaborators at U Mass, reported three-month data from an investigator-initiated... https://t.co/ILOjUN7WjM

[RICK KARL @RICKKARL1]

Imagine if all of our FB followers would sign up for the virtual walk, run, hike? !!!! It's not too late to join the fun and do it in your own town at your own pace!!! https://t.co/eXMxaZ1tZf

[RICK KARL @RICKKARL1]

https://t.co/jAnr1Vgipq

[RICK KARL @RICKKARL1]

Here's a live free webcast where you can join to learn about the latest research. Mark your calendars!!! 3/12.

As you may have heard, Auburn University’s College of Veterinary Medicine will host an event celebrating Brain Awareness Week... https://t.co/5h0s3p9e4L

[RICK KARL @RICKKARL1]

Today is Rare Disease Day. While a clinical trial is close at hand, we must continue to raise funds to pay others. It may take a combination of therapies to really find a cure. We continue to fund new efforts to end this horrible disease.... https://t.co/douWqyQZ2x

[RICK KARL @RICKKARL1]

Hike for Cora, Grayson, Owen, and HOPE! https://t.co/XDKbmB524M

[RICK KARL @RICKKARL1]

Axovant to Host First R&D Day March 29, 2019

NEW YORK and BASEL, Switzerland, Feb. 21, 2019 (GLOBE NEWSWIRE) -- Axovant Sciences (NASDAQ: AXGT), a clinical-stage company developing innovative gene therapies, today... https://t.co/VgQcyBrJuk

[RICK KARL @RICKKARL1]

RARE DISEASE DAY is next Thursday, 2/28. What a great way to celebrate our rare kids and their families. If you have a family photo with the Rare Disease logo embedded, and you want it posted, just send to us at : [email protected]

[RICK KARL @RICKKARL1]

https://t.co/wzArm2pyOU

[RICK KARL @RICKKARL1]

https://t.co/ZZgIGfxIXB

[RICK KARL @RICKKARL1]

Bri Anderson (BOD member and Andrew's Mom) and I met with Axovant executives yesterday at their offices in NYC. We are grateful to Parag Meswani, VP Operations, Gavin Corcoran MD, EVP R&D, and Pavan Cheruvu, CEO for... https://t.co/RRKd1aV9Xb

[RICK KARL @RICKKARL1]

Hey NORCAL runners and hikers. Help out Grayson Kemp of Sacramento. He's raising money for a terminal disease. Do a virtual 5K your way... be creative, silly, adventurous, FEARLESS, and curious.

It would make this... https://t.co/rO6Fv6d8DL

[RICK KARL @RICKKARL1]

https://t.co/GB9Ehg2kDF

[RICK KARL @RICKKARL1]

https://t.co/mgbzzVuf9R