Rare Kidney Stone Consortium

Our Mission: The Consortium seeks to improve care and outcomes for patients with rare stone diseases.

[Rare Kidney Stone Consortium @RKSC12]

@davidsas1 Strong work, Man! and women.

[Chi Chu @cdchu]

@kidney_boy The hypothesis that normal HCO3 isn't the whole story with respect to acid handling is definitely out there (this ref from 2017):

https://t.co/VQJ8bHXbBV

@weddellite

[Rare Kidney Stone Consortium @RKSC12]

Great work as usual - chipping away at the skeptics! Well done

[Menghan Liu @menghan_liu]

Please check out our new preprint! We use oxalate degradation as an example, to demonstrate within the human microbiome, sometimes a function is contributed by diverse microbes at the genetic level, but dominated by one single organism transcriptionally.

[Hrafnhildur Runólfsdóttir @HildaLinnet]

Just in, our paper on Kidney Transplant Outcomes in Patients with Adenine... : in Transplantation @RKSC12, @Landspitali and @uni_iceland https://t.co/IFcdw25qZG

[David Charytan @DCharytan]

Most CKD patients die from CV disease. NIDDK says NHLBI must fund anything with CV endpoint. NHLBI won’t fund HD studies ergo there is no funding source for CV trials in ESKD. Catch 22! How do we move the needle and get NIH to fund research on a fundamental threat to our pts?

[Rare Kidney Stone Consortium @RKSC12]

@Krystahllopathy Given your name & outstanding Twitter handle the right meetings for you: https://t.co/PAJBkJCGp2

[Rare Kidney Stone Consortium @RKSC12]

@LaurenceHBeckJ1 Nice. Congrats too to @RKSC12 coauthor @LadaLadabl @NYUnephro

[Liz Wa @lizzy_lzrd]

"If doctors and nurses clocked out when their paid hours were finished, the effect on patients would be calamitous....The system knows it, and takes advantage." ... the hours were part of the profession before they were exploited https://t.co/nMHkfv8G6C

[Rare Kidney Stone Consortium @RKSC12]

@johnasayer @NewcastleHosps They’ll sign up for nephrology - or cardiology? - training immediately afterwards! Go get ‘em John

[Rare Kidney Stone Consortium @RKSC12]

@kidney_boy The guy with the big yellow head is a ringer. I don’t think that’s fair. @NYUnephro will win the day!

[Rare Kidney Stone Consortium @RKSC12]

New work this week of @LadaLadabl and @RKSC https://t.co/a0IZCYUOU0. Proposing cutoffs for screening proteinuria to distinguish Dent Disease (DD) from other CKDs 10.1007%2Fs00467-019-04210-0@NYUnephro

[Rare Kidney Stone Consortium @RKSC12]

Today @nyulangone @NYUnephro

[Rare Kidney Stone Consortium @RKSC12]

@johnasayer @jsrdf @SayerLab Wow

[Rare Kidney Stone Consortium @RKSC12]

@tony_breu The CV outcomes of thiazide-treated HTN are reduced when given with K or ENaCi or aldo antagonists. Review: https://t.co/h4QVXXhr4Z

[RaDaR @RenalRadar]

It's our birthday! The first RaDaR patient was recruited 9 years ago today, on the 18th January 2010. We've come a long way since then, with over 21,000 recruits from 97 hospitals. Many thanks to our supporters @Kidney_Research @kidneycareuk @PKDCharity @RenalAssoc @RenalRegistry

[Rare Kidney Stone Consortium @RKSC12]

I’m going to support your kids someday soon - The topic clearly appeals to nephrons - Ben told me today that he interviewed a wildlife veterinarian about salt toxicity in beavers in coastal areas...THAT is nephrology!

[Rare Kidney Stone Consortium @RKSC12]

Very useful update on genetics of stones

[Hrafnhildur Runólfsdóttir @HildaLinnet]

On the genetics of common complex kidney stone disease from @runolfpa and co: https://t.co/UMi5RYqIH6

[Rare Kidney Stone Consortium @RKSC12]

Awright @davidsas1 https://t.co/EOD1EGFd1v

[Rare Kidney Stone Consortium @RKSC12]

@NYUnephro

[Rare Kidney Stone Consortium @RKSC12]

And this comprehensive review of our work to develop new drugs for cystinuria by Amrik Sahota of @RutgersU https://t.co/ynhhadvT4q @weddellite @NYUnephro @NYUUrology