Renal Patient Led Advisory Network

Advocating for & supporting Renal Patients in England since 2020. Helping lead the conversation for better care for the Renal community 💜

[Renal Patient Led Advisory Network @RPLANNW]

We’re back everyone, supporting patients all over the UK! Come say hi and get involved! 💜💜 #patientssupportingpatients

[NHS Organ Donation 💗🫀🫁 @NHSOrganDonor]

We thought we'd answer some of your most commonly asked questions ahead of #OrganDonationWeek next week.

Confirming your decision on the NHS Organ Donor Register is the best thing you'll do today.

#ODW25 #OrganDonation

[Diary of a Kidney Warrior @diaryofakidneyw]

🎧 It’s here! New episode of #DiaryOfAKidneyWarriorPodcast is LIVE.

@ChristyMillarUK 's journey through CKD, advocacy, and empowerment.
Listen now 👉🏽👉 https://t.co/vZq4pj6cWt

Please RT or share with someone who needs this story. 💚
#CKD #KidneyWarrior #ChronicIllnessSupport

[Joe Chilcot @JoeChilcot]

We are looking for #kidneytransplant recipients in the UK to complete a short study on symptom experience. Details below 👇🏻 thank you for considering #transplantation #kidneydisease #UKKW2025 #ukkw25 link: https://t.co/kYtCaKRJnu

[Share Your Wishes @share_wishes]

Christy is waiting for her third #KidneyTransplant, and as she waits she works on her podcast entitled 'Chronically Christy'. Having been through many surgeries, years of #dialysis and #transplants she hopes to help others on their #kidney journeys ❤️
https://t.co/jLYgrdYheV

[Share Your Wishes @share_wishes]

Ahead of #InternationalNursesDay tomorrow Christy, who has had a #KidneyTransplant, says thank you to her renal nurses: “I’m still friends with my renal nurses nearly ten years post transplant. They saw me at my worst and my best. My transplant is failing, I hope they’re...1/4

[Renal Patient Led Advisory Network @RPLANNW]

Happy #InternationaNurseDay from all at RPLAN

[Renal Patient Led Advisory Network @RPLANNW]

Ever used patient transport in the North West? Then please help us by filling out this survey….

https://t.co/IM8VaHmWMW

[Kidney Quality Improvement Partnership @ThinkKidneys]

Amazing turn out for such an early start for the North West! Exciting to see so many people enthusiastic about using PREM to drive imrovement @KidneyNW22 @kidneycareuk

[Health Innovation Manchester @HealthInnovMcr]

BLOG: Fez is a patient advocate for those living with chronic kidney disease (#CKD) and has lived with it his whole life.

He shares his experiences, the importance of early diagnosis & tackling health inequalities within underserved communities.​

🔗https://t.co/NCqhaYNcde

[Kidney Research UK @Kidney_Research]

📣 Our 2024 research grants are open for proposals aligned with our key priorities: transforming treatments, multiple health conditions️, health inequalities.

📅 Deadline: 5pm, Wed 24 April 2024

Learn more and apply now! 👇

https://t.co/tlWWUmOl0Y

[LancsHospitalLibrary @LancsHospLib]

🏥🔍🖥️ E-JOURNAL OF THE WEEK 🖥️🔍🏥
Hemodialysis International is the must-have journal for nephrologists, nurses and technicians worldwide. Access today with your OpenAthens account 👉 https://t.co/CuU8v0IUzQ Please share with your colleagues!

[Kidney Research UK @Kidney_Research]

A groundbreaking clinical trial, with input from a kidney patient in our lay advisory group, has demonstrated that fostamatinib can effectively decrease protein levels in the urine of individuals with advanced IgA nephropathy (IgAN).

Learn more below 👇

https://t.co/TYbipENsuM

[Diary of a Kidney Warrior @diaryofakidneyw]

On #worldkidneyday
@Fezy shares his compelling life journey, filled with trials,setbacks,& triumphs. An undeniable testament to the strength of human spirit, Fez’s story serves as a beacon of hope for those in their darkest times. Out now on:
https://t.co/vZq4pj5F6V
@kidneycareuk

[NW Kidney Network @KidneyNW22]

It’s all about you our renal nursing team North West. NWKN renal nurses event today Thankyou to all our attendees

[Libby Critchers @LibbyLibbyjim]

What an inspiration so proud to have you are part of this workstream @ChristyMillarUK thank you so much for sharing your incredible and emotional journey. You inspire us all to continue to fight for quality patient centred care ❤️ looking forward to tomorrows podcast releases 😊

[The UK Kidney Association @UKKidney]

Did you know in the UK, 7.2 million people have kidney disease & yet 1 million don't even know it!😯

Kidney disease is common, but awareness remains low.

Help us make a difference by simply sharing this post.

Find out more: https://t.co/mcqMQoYRTS

#WorldKidneyDay

[Manchester News MEN @MENnewsdesk]

Chaos at Manchester Arndale as huge crowds gather and 'fireworks and alarms set off' https://t.co/dHpaXW2INk

[Leeanne Lockley 🏳️‍⚧️ @lockley_leeanne]

Great to see so many healthcare professionals, industry and patients coming together face to face; working in partnership to improve kidney services in the region.

@KidneyNW22 @rdonne10 @RPLANNW

#NWKidneys