Rare Patient Voice

Helping Canadian🇨🇦 patients and caregivers voice their opinions through surveys to improve medical products and services. Join our community today!

[Rare Patient Voice @RPVCanada]

Canadian patients with #RareDiseases - Sign up to share your opinions and earn cash rewards! https://t.co/6oneVNsD1C

[Rare Patient Voice @RPVCanada]

We're seeking patients and caregivers of patients with moderate/severe Hemophilia A to participate in a study in Toronto. $150 reward for a 1 hour interview.

If you'd be interested in participating, please sign up at https://t.co/oEf02espPJ!

[Rare Patient Voice @RPVCanada]

Thank you @ArthritisSoc for hosting a great event Sunday! If you missed the walk or our booth, check us out online @ https://t.co/oEf02eaOYb https://t.co/1G3EQB8dkJ

[Arthritis Society Canada @ArthritisSoc]

Thank you to everyone who joined us for the #WalktoFightArthritis. With your help, we raised $1.25M to help Canadians living with #arthritis

[Rare Patient Voice @RPVCanada]

Don't let the rain stop you! Come by our booth at Woodbine Park! https://t.co/U4ry6Ds4tR

[Rare Patient Voice @RPVCanada]

No sun no problem! Ready for a great morning at the #WalkToFightArthritis @ArthritisSoc!

[Rare Patient Voice @RPVCanada]

Come say hi at our table this Sunday at @ArthritisSoc's #WalktoFightArthritis at Woodbine Park! https://t.co/MEVs72r3LV

[Arthritis Society Canada @ArthritisSoc]

No one should have to live with the pain of #arthritis. Who are you walking for? #WalktoFightArthritis

[Rare Patient Voice @RPVCanada]

June is ALS Awareness Month! How will you #SeizeTodayALS? Find out how to show your support with @ALSCanada https://t.co/uN4PD2gZT7

[Rare Patient Voice @RPVCanada]

Thanks to @CFCanToronto for organizing a fantastic Walk yesterday! #AWorldWithoutCF #CFCanWalk https://t.co/1qNj6cMeIh

[@CFCanada, Toronto @CFCanToronto]

We can't thank everyone enough for such an amazing day. #AWorldWithoutCF #CFCanWalk

[Rare Patient Voice @RPVCanada]

Having a great time at the Walk to Make Cystic Fibrosis History with @CFCanToronto at Wonderland! Come by our table in the Courtyard!

[@CFCanada, Toronto @CFCanToronto]

Happy Sunday! We're up bright and early to kick off our walk to make cystic fibrosis history! #AWorldWithoutCF @CFCanadaWalk

[Rare Patient Voice @RPVCanada]

Looking forward to Sunday's Walk to Make Cystic Fibrosis History at Canada's Wonderland with @CFCanada! https://t.co/4HPgctD0lz

[Rare Patient Voice @RPVCanada]

Today is #WorldLupusDay! Head to https://t.co/9telCi80rX to learn more about this disease which affects 1 in 1000 Canadians @LupusCanada

[Rare Patient Voice @RPVCanada]

Today is #WorldPHDay. Increase #PHAwareness with @PHACanada's new https://t.co/aaJcVxBD8W resource! #PulmonaryHypertension

[Rare Patient Voice @RPVCanada]

Excited to announce that we will be attending the Walk to Fight Arthritis with @ArthritisSoc in Toronto on June 4th! https://t.co/RauIrN9KIT

[Rare Patient Voice @RPVCanada]

It's #MSAwarenessMonth! Find ways to support those living #lifewithMS in your community with @MSSocietyCanada #endMS https://t.co/75fz9Q8oZR

[Rare Patient Voice @RPVCanada]

May is Cystic Fibrosis Awareness Month! Find out how you can get involved with @CFCanada across Canada this month! https://t.co/z891YVEWkD

[Asthma.ca @AsthmaCanada]

Did you know? #WorldAsthmaDay #WorldAsthmaDay2017

[Rare Patient Voice @RPVCanada]

We love getting to know patients and caregivers in person. Reach out to us if you are hosting a #RareDisease event in Canada!

[Rare Patient Voice @RPVCanada]

Today is the start of Brain Tumour Awareness Month! Learn how to help #TurnMayGrey with @BrainTumourFdn at https://t.co/CYG30Hmivu #BTAM

[Rare Patient Voice @RPVCanada]

Wonderful time yesterday at @bumruntoronto for Colorectal Cancer awareness! Missed our booth? Sign up at https://t.co/oEf02eaOYb

[Rare Patient Voice @RPVCanada]

Looking forward to a great morning with @bumruntoronto at Queen's Park! Good luck #BumNation!