RacheltheResearcher

Research Fellow in Psychosocial Oncology with a background in clinical trials and psychology. Sporting a US flag in the UK. All views are my own.

[RacheltheResearcher @RachResearcher]

Read our latest paper about the support needs of people living with metastatic breast cancer: https://t.co/XjcN4N6t4L

[Lesley Fallowfield @FallowfieldLJ]

The needs of women with advanced breast cancer are often overlooked, see our latest paper

[RacheltheResearcher @RachResearcher]

Thanks to #IPOS2022 for allowing me to present some qualitative findings on behalf of the PRAGMATIC study team.

[RacheltheResearcher @RachResearcher]

Looking forward to presenting virtually at #ipos2022 later today during the survivorship session. I'll be talking about the lived experience of being on a supportive self-management pathway following treatment for early stage breast cancer.

[Caroline Lucas @CarolineLucas]

Well there’s a thought...

[RacheltheResearcher @RachResearcher]

Come say hi to the team! #researchwithimpact @BSMSMedSchool

[RacheltheResearcher @RachResearcher]

Looking forward to chairing a session later this morning at #bpos2022 to learn more about the barriers to cancer screening and early detection @BPOSUK

[RacheltheResearcher @RachResearcher]

Very engaging talk from @warner_niki about the lived experience of a lynch syndrome diagnosis. Particularly with a focus on the benefit of well positioned PPI. @BPOSUK #bpos2022

[RacheltheResearcher @RachResearcher]

Seldom heard > hard to reach #bpos2022

[RacheltheResearcher @RachResearcher]

Fascinating talk by Zahida Ramzan-Asghar about the taboos that exist around cancer, particularly in the BAME community. This impacts time to diagnosis, service provision inc. appropriate supportive options, and familial/peer support. #bpos2022

[RacheltheResearcher @RachResearcher]

As @Stephthepsych points out, risk prediction models also hold inherent biases and we can end up in a loop of barriers preventing people from accessing the most appropriate care #bpos2022

[RacheltheResearcher @RachResearcher]

Really interesting presentation from Prof Eila Watson about the engagement with, and availability of, psychological support to haematological cancer patients. Low levels of staff training and perceived patient barriers or fear of being seen as 'not coping' #bpos2022 @BPOSUK

[RacheltheResearcher @RachResearcher]

@Afaf_Girgis reminding us that the choice of digital/paper based PROs should be based on individual need and not pre-defined assumptions of group accessibility #bpos2022 @BPOSUK

[RacheltheResearcher @RachResearcher]

@FallowfieldLJ Need I remind you of a certain 'lucky' paper!!

[BPOS UK @BPOSUK]

📣Read all about it - a new paper focusing on the impact of the COVID-19 pandemic on post-graduate research students @BPOS_students https://t.co/Z3QX6cE1D4

[RacheltheResearcher @RachResearcher]

@Mattpsychol Absolutely and the worry is whether people will receive appropriate support, both patients and caregivers

[RacheltheResearcher @RachResearcher]

More training needed for video call software. Non-verbal cues were also important to both clinicians and patients, the lack of these limited a natural flow of conversation over the phone e.g. turn taking.

[RacheltheResearcher @RachResearcher]

We found participants generally felt remote consultations preserved confidentiality and prevented unnecessary trips to hospital, but some fundamental elements could be improved e.g. ambiguity of late/missed calls.

[RacheltheResearcher @RachResearcher]

@Mattpsychol I think that's my spirit animal!

[RacheltheResearcher @RachResearcher]

We have a new review of published QoL measures and outcomes in advanced/high risk cutaneous squamous cell carcinoma. Impacts for this cohort are largely unexplored. There is a clear need for targeted exploration of patient need in this area @SussexSHORE_C https://t.co/T4H7TXsPJo

[RacheltheResearcher @RachResearcher]

@imrankhan She's not alone, up until a minute ago I too thought it was 'Little Women'.