Rachel Doboga

Writer, teacher. Dx w/ALS age 28. I advocate and raise awareness by blogging to show the reality of #ALS with humanity, vulnerability, and unflinching honesty.

[Rachel Doboga @RachelDoboga]

"And if when it's all over I'm asked what I did with my life, I want to be able to say I offered love." - Terri S. Cloud #love #death #ALS

[Rachel Doboga @RachelDoboga]

"If we learned nothing else from this tragedy, it is that life is short and there is no time for hate." - Sandy Dahl, wife of flight 93 pilot Jason Dahl

Never forget.

https://t.co/uE2UTVp6Pg

[Nicole Cimbura @nicolecimbura]

BrainStorm Gears Up for Phase IIIb NurOwn Trial Amidst ALS Malaise - BioSpace https://t.co/nTFqBAyGJd

[Rachel Doboga @RachelDoboga]

@anneek10s -Clever, funny, timely, poignant.. I'm seriously impressed by your post!

[Rachel Doboga @RachelDoboga]

I would add Opening Door Using Walker gymnastics. I left the sport 8 years ago. However, I vividly remember falling off the balance beam too many times count. Ouch! #ALS #ThisIsALS #EndALS

[AnneeK @anneek10s]

#ALS Olympics?
1. Sports bra twisties
2. Hair dryer weightlifting
3. Putting on underwear breakdancing
4. Head stuck in shirt wrestling
5. Bidet kayaking
6. Petting dog floor routine
7. Fork to mouth synchronized eating
The simplest task is an Olympic event when you have #ALS!

[Rachel Doboga @RachelDoboga]

I just parted with a nurse who has become a dear friend. She gave me a quote from a book on archetypes of wild women. I gave her this song.

Linda Ronstadt - Long Long Time (Midnight Special 1973) #ALS #ALSsucks #ThisIsALS #Goodbye https://t.co/tMAdUDmX2B via @YouTube

[Rachel Doboga @RachelDoboga]

@Brandyibiteart Brilliant! Thank you for taking the time to share your wisdom!

[Rachel Doboga @RachelDoboga]

Two words in Steve's bio hit me: "Embracing ALS." I have been fighting #ALS for 9 years. What else could I do? It's trying to kill me! But is there a different way? What does embracing ALS look like? This is not a rhetorical question! Ideas please #LivingWithALS #Inspiration

[Steve Gleason - "Live Impossible" @SteveGleason]

One week ago today, I had the opportunity to get "dressed up" in my tuxedo and received the Arthur Ashe ESPY Award for courage. It remains a sublime honor, given that Arthur Ashe exemplified courage as living with an open heart of humility, kindness, and generosity that united humanity.

With that in mind, do we have the courage to unconditionally love our neighbors, our so-called enemies, and love ourselves?

“The more you are motivated by love, the more fearless and free your action will be.” Dalai Lama

[Rachel Doboga @RachelDoboga]

Steve Gleason accepts Arthur Ashe Courage Award... "Steve has always been interested in having a deeper conversation, going on a bigger adventure, finding ways to experience the wonders of the world." @SteveGleason #ALS #ALSAwareness #Inspiration
https://t.co/5TT6oEN1Ap

[terminal_coder 🏴‍☠️ @terminal_coder]

https://t.co/tXJ2IoOgUe

[terminal_coder 🏴‍☠️ @terminal_coder]

> Scientists Discover a New Hormone that Can Build Strong Bones

Wish they find something similar to build strong muscles, or better yet, new motor neurons
#FuckALS

[Rachel Doboga @RachelDoboga]

"Eternity does not start after death." - Charlotte Perkins Gilman, utopian feminist best known for her short story "The Yellow Wallpaper" (1892). #ALS #Death #Feminism
#InspirationalQuotes https://t.co/L1GZS0YYNn

[Rachel Doboga @RachelDoboga]

I like this, but it's hard to imagine the man who raped and attempted to murder me as dead when he never had a day in court and roams free. But I can't defeat a #memory. I have to accept it happened and learn ways to return to the present when #PTSD drags me back to that room.

[Aaron Infinite @AaronInfinitea]

@Mayuri_Saxena The past is a graveyard, its already dead. No need to fight ghosts.

[Rachel Doboga @RachelDoboga]

I often think I have #ALS because I almost killed Evan in a car accident when I was 19. Evan said the car that hit his door on the passenger side sped up to cut me off. I don't know. I just saw headlights before spinning off the road. Blood & glass everywhere. My SUV was totaled.

[Nate Methot @a_life_derailed]

Good Will Hunting's "It's not your fault" scene has powerful meaning to those of us living with #ALS. Read my latest blog: Robin Williams Says F*ck ALS.
https://t.co/DoSaZSRPfK https://t.co/I1aCZwQo7y

[ALS Advocacy @alsadvocacy]

#DingDingDing

[Rachel Doboga @RachelDoboga]

Lyrics that feel like #ALS & #PTSD:

"They stab it with their steely knives, but they just can't kill the beast."

"You can check out anytime you like but you can never leave."

Eagles - Hotel California (Live 1977) (Official Video) [HD] https://t.co/ukt4OpLUnZ via @YouTube

[Rachel Doboga @RachelDoboga]

FAQ that don't matter: I wasn't drinking. I was wearing a t-shirt & jeans. I was w/a group of friends - that included my rapist. A woman can be naked & not "ask for it." She can be drunk. She can be alone. A woman is NEVER to blame for #rape. Make this go viral. #Trauma #MeToo

[Rachel Doboga @RachelDoboga]

3/3 Yesterday morning was the first dose of the antipsychotic that will hopefully stop the hallucinations. A 2nd dose today. 12 days left until I can increase the dose to a therapeutic level. 12 days feels like forever. #MentalHealth #Trauma #PTSD #MeToo #ALS

[Rachel Doboga @RachelDoboga]

2/3 The Oxycodone I took for my nerve #pain provided relief, but it slowed me down. I was working at a manic pace to distract myself, joking on FB & w/my nurse, but now I'm right back at bar with my rapist looking at me like he's hungry. #MentalHealth #Trauma #PTSD #MeToo #ALS

[Rachel Doboga @RachelDoboga]

1/3 This week is the anniversary of my rape, and I'm having severe tactile PTSD hallucinations. They are overwhelming me. Days have been manageable with distractions. Nights are filled with terror. #MentalHealth #Trauma #PTSD #MeToo

[Rachel Doboga @RachelDoboga]

@David_L_Georges @TavaresSpeer Perfectly said. I like the logical way you unpack the events and emotions of this awful experience without being cold or dismissive. That's quite a feat! I used to be a middle school English #teacher, so I'm all about communication. Feel better, Tavares!