Tw: suicide, pain
I will no longer be trying to justify my fears to commenters on here about why I think the #AssistedDyingBill will be a terrible thing for disabled people in the long term. I can't deal with the gaslighting & dismissal of entirely reasonable concerns.
@XanderCoriander I'm so sorry. I hear you and I see you. After a traumatic experience I also experienced similar feelings of isolation & struggle to go outside. Do you have people who can come and visit you? Or do you think that might also feel too much?
@acbc Please reflect on how horrendous this take is for people with intrusive thoughts. Labelling them sin and saying they are in some way a reflection of a person's true self is like pouring petrol on flames.
To be clear: for me this is not about Drs vs other HCPs, tho that's def a conversation to be had in this specific case. We urgently need to look at the pseudo-diagnosis of anxiety used by all health professionals to dismiss concerns
The terror of knowing you're sick & knowing that HCPs think it's anxiety. Yesterday I went to A&E with high spiking fevers and an HR of 130 and told "try not to panic" when they saw my HR. Thankfully Dr triggered sepsis pathway. Feel so awful for this poor girl and her family 😢
Hospital staff thought woman, 24, struggling to breathe was 'overreacting' and spent hour in corridor with oxygen mask 'not connected to anything' before she died, inquest hears https://t.co/LWqhNuIKqS
@greyscribbles I'm really sorry. I know it doesn't feel like it but there are alternatives to what you're experiencing with the sunken cost fallacy. But it's ok not to know what those are right now and to feel lost.
@Sally_writes That sounds awful. What I'm hearing is that post exertional malaise is beyond just "physical exertion" (which I feel like is what is often understood by PEM) and includes mental effort as well?
@xevekiah This was my heart tracing. I was told I was "just anxious" despite showing this to the cardiologist. Ended up in hospital for three weeks on cardiac monitoring and bed rest while they sorted it.
@BovrilG It's funny how people say "we don't have a village anymore" but forget that the village requires that some people have time, energy & inclination to help raise others' kids. I'm a highly involved aunt but wouldn't be if I had my own kids
@_sorrengailll Anyone even touches my cuticles I get chronic infections (I am immunosuppressed). Would also rather spend my money on other things (Lego sets for example) but that's a personal preference 😊
@teachthemx3 I work in a therapeutic school in the UK. While a lot of our students have difficulties with learning (esp language delays) many are also very bright but struggle with emotional regulation & anxiety. They need that 1-2-1 attention & engagement of their clever brains!
@MarthaAhumuza As a person who spent formative years in strict purity culture and now has severe vaginismus / endometriosis, I agree. And this is not just anecdotal: https://t.co/MkqiSty2zV
@PaulaMc007 I was assaulted by a doctor whilst hospitalised. When I disclosed the nurse said "I know him, he wouldn't do something like that" & the police said "it was a doctor doing a medical procedure in a hospital so it's nothing to do with us". I quit the NHS because of it
@adamfare1996 A couple of years ago I was really unwell (they thought I had meningitis) and for complicated reasons I had to stop my ADHD meds. Let me tell you it made a bad hospital stay 10x worse!