Rachael Kittleson

Senior Director of Community at the National Brain Tumor Society. Tweets on this account are my own.

[Rachael Kittleson @RaeKittleson]

#GBMDay is a day for the brain tumor community to raise nationwide awareness of #glioblastoma, and we appreciate the champions in Congress working to help us defeat this disease. @SenMarkey, thank you for supporting the #GBM Awareness Day resolution!

[Rachael Kittleson @RaeKittleson]

Such helpful content from @NBTStweets for patients and care partners facing brain surgery

[National Brain Tumor Society @NBTStweets]

The prospect of brain surgery might seem overwhelming, but you're not alone. In our latest blog post, we've gathered insightful tips from patients who've undergone brain surgery and their care partners: https://t.co/f8TVfRByZM

[Rachael Kittleson @RaeKittleson]

Our Kelsey survived 22 months and died at the age of 15. Take action today on #GBMDay to propel #glioblastoma (#GBM) research and treatments forward: https://t.co/q3xjjVxnfr

[#BTSM chat @BTSMchat]

📢#BTSM - our tweet chat is back! This Sunday, July 9, 5pm PT/8 pm ET. We're talking about Clinical Trials & Tribulations: our community's thoughts, concerns, fears, and ideas about clinical research.
Patients, care partners, and clinicians all welcome!
Set your⏰to join us!

[National Brain Tumor Society @NBTStweets]

Join us on July 6th at 7 p.m. for our monthly Grief Support Conversation. The group welcomes anyone who has lost a loved one to a #braintumor & provides the resources, space, & community to support individuals through their grieving process. Register here: https://t.co/OkmYF2xg89

[Rachael Kittleson @RaeKittleson]

Input from patients and care partners is critical to helping @NBTStweets create educational resources for our community especially for clinical trials and biomarker testing.

We, indeed, want to hear from you!

[National Brain Tumor Society @NBTStweets]

We want to hear from you! Share your experience to help NBTS better serve the needs of the #braintumor and #spinaltumor community. By taking this brief confidential survey, you will help us create new patient and care partner educational resources: https://t.co/d8cF4TDYBu

[Rachael Kittleson @RaeKittleson]

@DrJimHoffman Thank you so much, Jim. It is always so good to see research for this disease.

[Rachael Kittleson @RaeKittleson]

What a privilege to walk the halls of Congress during @NBTStweets #Head2Hill with the incredible advocate from WV @MrsHollieP as she spoke about the critical needs of the BT community & shared the story of her beautiful mom. Thank you @Sen_JoeManchin @SenCapito @RepAlexMooney

[Rachael Kittleson @RaeKittleson]

Our @NBTStweets support group team together in person for the first time in DC. It is my privilege to work alongside the incredible and dedicated @adamhayden @lisaoleary524 @torileighbest and @hgainsboro who tirelessly provide support to our community. #GrayMay #NBTSConnect

[Rachael Kittleson @RaeKittleson]

Excited to be here in DC with @NBTStweets to connect with community at Race for Hope, advocate for patients and caregivers at Head to the Hill, & discuss quality of life priorities at our roundtable. With me in every step I take is Kelsey and all others I have met on this path.

[Tori Best, PharmD, BCGP, RPh @torileighbest]

Please join me and my friends @NBTStweets as we #gograyinmay for Brain Tumor Awareness Month to honor and remember all of the lives impacted by brain tumors like my beautiful mom, first teacher, and forever role model #glioblastoma #BTAM #BTSM #BrainTumorAwarenessMonth #GrayMay

[Rachael Kittleson @RaeKittleson]

I’m recognizing #GrayMay along with more than a million other patients with brain tumors and their caregivers. We lost our daughter Kelsey to GBM. Discover ways that you can make lasting change for the brain tumor community at https://t.co/70pTLN5Jr8. #BTAM @NBTStweets

[National Brain Tumor Society @NBTStweets]

Join us on May 4th at 7 p.m. for our monthly Grief Support Conversation. The group welcomes anyone who has lost a loved one to a #braintumor & provides the resources, space, & community to support individuals through their grieving process. Register here: https://t.co/OkmYF2xg89

[Rachael Kittleson @RaeKittleson]

Fantastic to be part of these workgroups this morning @ReMissionSummit talking about new ideas regarding research and solid brain tumors in children.

[ReMissionSummit @ReMissionSummit]

Workgroups are brainstorming new ideas to develop therapies to target oncogenic drivers of solid tumors in children #ReMissionSummit

[Rachael Kittleson @RaeKittleson]

Inspired to attend and represent @NBTStweets at the 5th annual #ReMissionSummit with @NBTSCSO Kirk Tanner and hear some of the world’s leading experts talk about scientific progress over the last five years in the fight against brain cancer. #BreakthroughsAhead #EndBrainCancer

[Rachael Kittleson @RaeKittleson]

Honoring #caregivers as we shine a light on their tremendous efforts to support and care for their loved ones. Learn more on how to help support our caregivers #NationalCaregiversDay

[National Brain Tumor Society @NBTStweets]

Today is #NationalCaregiversDay a day to honor and recognize #caregivers who give selflessly of their energy and time.

NBTS recognizes the critical role care partners play in supporting patients with a #braintumor (1/2)

[National Brain Tumor Society @NBTStweets]

Join us on Feb. 2nd at 7 p.m. for our monthly Grief Support Conversation. The group welcomes anyone who has lost a loved one to a brain tumor & provides the resources, space, & community to support individuals through their grieving process. Register here: https://t.co/OkmYF2xg89

[David Arons @dfarons]

Thank you @theNCI @NCIDirector for advancing this initiative that will help better understand and lead to treatment for children with brain tumors

[Rachael Kittleson @RaeKittleson]

Worry, fear, and anxiety are common experiences for patients and their care partners when facing an upcoming scan. We call it scanxiety. @NBTStweets first part in their scaniety series offers some great tips on reducing that stress. Looking forward to this series!

[National Brain Tumor Society @NBTStweets]

Stress and worry around medical imaging, known as scanxiety, is common among the brain tumor community. Today, we share seven actionable tips to help reduce your scanxiety in part one of our series on managing scanxiety.

Read our blog post here: https://t.co/rXamiGA6bc

[National Brain Tumor Society @NBTStweets]

With the help of NBTS’s #griefsupport group facilitator, Holly Gainsboro, NBTS shares tips on how to support grieving members of the #braintumor community: https://t.co/TNtv72VdFX #BTSM