@TLChronicPain I’d like to point something out that people and hospitals seem to miss. The hospital is the only place to get anything stronger then typically Tylenol, ibuprofen or naproxen. Of course we’re wanting pain relief when we get there! We tried everything else. Why is that so wrong????
The Lose-Lose Trap of Chronic Pain in Healthcare
As a former nurse,
I’ve seen it firsthand: patients in agony, writhing
or screaming, desperate
for relief—or sitting quietly, trying to hold it together despite unbearable pain.
And yet, no matter how
they present, chronic pain patients often face a
lose-lose situation in healthcare.
If you’re calm, composed, and articulate about your pain, providers may doubt you. “If it was that bad,
you wouldn’t be so calm,” they think.
The label “drug-seeking” gets whispered, charted,
or assumed. Your pain is dismissed because you’re not “acting” like someone in agony.
But if you’re vocal—crying, anxious, loud, or desperate—suddenly you’re “faking it”
or “attention-seeking.”
The same “drug-seeking” label gets slapped on,
but now it’s because you’re “too emotional” or “hysterical.”
Your chart might note “exaggerated behavior,”
as if your distress isn’t real.
Either way, you’re judged. Either way, your pain is questioned. Either way, you’re less likely to get the care you need.
It’s a trap, and chronic pain patients know it all too well.
Chronic pain patients shouldn’t have to navigate this impossible trap—stay calm but not too calm,
show distress but not too much. They shouldn’t have to perform their pain “just right” to be taken seriously.
Healthcare needs to do better.
We need medical workers
to listen, investigate, and treat pain with urgency and respect.
To the chronic pain community: I see you.
Your pain is real.
You deserve care
—not judgment.
Have you faced this trap?
#ChronicPain #LongCovid #ChronicIllness #Spoonie #EndPainStigma #TLChronicPain💜
@DiaryofaSickGrl okay there’s alot to unpack in that one sentance but the worst is not even the implication she strait out says she thinks you have the potential to get better. Is there just. Do people not. The word is CHRONIC people. All the time. Doesn’t. Go. Away. Ever. C H R O N I C.
@DiaryofaSickGrl I’m not sure why people think their are but they do. If I had a nickel for every time I heard “gee I wish I could watch movies in the middle of the day like you” I’m sorry you mean you wish you had extreme pain and couldn’t move so you had too lay down most of the day? Mkay.
@heysugardumplin Out of curiosity what do you expect people to do? The world has started moving again, and it’s not really an option for some of us to continue standing still in a moving world, im seriously asking you what is it you want people to do? If simply masking doesn’t work.
@tomrose@piersmorgan I’m not sure what the point of posting this was as he never said he didn’t have a right to say what he wants just called him a liar for backtracking??
@ibdgirl76 This is literally my story and it’s 14 years later and I still sit in extreme pain with just gabapentin to medicate me. Not even a damn muscle relaxer.
@CMerandi Cymbalta nearly killed me, it not only did nothing for my pain it turned me into a scary shell of a human who bumped into walls and said excuse me sir.