Today is National Bereaved Parents Day.
In the past 12 months, 87 of the children supported by Rainbow Trust have died. At Rainbow Trust we support families with a seriously ill child from diagnosis for as long as they need, through bereavement and beyond.
Teddy, who has been diagnosed with neuroblastoma, recently enjoyed a special trip to the beach with his family after completing an intense week of treatment. Family Support Worker Jayne supports the whole family.
Mum Kat, said: "We can actually rely on Jayne. We trust her."
Do you have a passion for working to support seriously ill children, young people and their families?
Ranked the Top 10 Charity by Best Companies, Rainbow Trust Children's Charity is currently hiring, head to our website to find out more: https://t.co/FQOeo4kCXa
Jesse has a rare and dangerous life-threatening disorder. He suffers from painful muscle spasms. His mum, Kirsty, struggles to get him to hospital for essential appointments.
Please donate so children like Jesse can get to hospital safely and on time: https://t.co/jcZAygED6e
The Government has published a progress update on the Modern Service Framework for Palliative Care and End-of-Life Care.
We'd like to see local commissioning arrangements reflect the full range of services children and families rely on.
Read more: https://t.co/OozsZe5q4u
To celebrate #VolunteersWeek, we’re shining a spotlight on some of the amazing volunteers who support Rainbow Trust Children’s Charity 🌈
Read our volunteers’ stories and discover how YOU can get involved here: https://t.co/BTMFHyv9Qb
#Volunteers#MakeADifference
A nationwide charity based in Leatherhead @RainbowTrustCC which supports families with a seriously ill child is celebrating its 40th anniversary with a very special challenge. Find out more, here ⏬
https://t.co/aGVYiLZBRx
Rainbow Trust has responded to today’s King’s Speech, welcoming proposals for the NHS Modernisation Bill and Education for All Bill. Families with a child with a life-threatening or terminal illness need joined up support across health, care and education
https://t.co/xkL4kCd0KZ
Read my reflections on @ChildrensComm report on ‘Children waiting to leave hospital’ . Children should not be ‘growing up’ in hospital due to the failure of health & social care systems failing to look beyond clinical care. @RainbowTrustCC 🌈
https://t.co/atMldrrbVG
It’s National Siblings Day 🌈
For 40 years Rainbow Trust has recognised how having a child with a serious illness can affect the entire family, especially siblings.
Sibling Erin said: “Without Family Support Worker Jaimie we would be alone.”
https://t.co/n6XBsQa9Ye
For four decades, we’ve supported families caring for a child with a serious illness offering practical help, emotional support and a constant presence through the hardest moments.
In March we celebrated this milestone at a glittering gala held at the iconic London Savoy hotel.
Rainbow Trust is excited to announce that we are one of @Carfestevent nominated charities for the seventh year running. We will be running our crazy golf course again in RetroFest.
Get your tickets now: https://t.co/EXgYz8eOkW
At 10 days old, Maya had open heart surgery after being diagnosed with a rare heart disease. Family Support Worker Wendy has been supporting the family for six years.
“Rainbow Trust have truly been the lifeline that we as a family have all needed.”
https://t.co/jcZAygED6e
Our film ‘A Very, Very Big Difference’ is a finalist in the @SmileyCFA. There’s now a second public vote — which means you can vote again!
You could be the ‘big difference’ that helps Rainbow Trust win £10,000.
Vote here: https://t.co/6XaFnm42LA
WE NEED YOUR VOTE!
We are finalists in the Smiley Charity Film Awards, with the chance to win £10,000. This funding could help us support five families caring for a child with a life-threatening or terminal illness for an entire year.
Vote now: https://t.co/6XaFnm42LA
We have selected a team of intrepid explorers to take part in a trip to the Arctic Circle.
They’ll train in cross-country skiing, snowshoeing, Arctic survival skills, navigation, and campcraft. All this whilst raising vital funds for seriously ill children and their families.
Following a parliamentary debate about the role of grassroots charities, @ZillahBingley, Chief Executive, said:
"Charities must be recognised as partners in policy discussions and funding decisions, rather than treated as an afterthought."
https://t.co/HQzv5LoZq7
WE NEED YOUR VOTE!
We are thrilled to share that our film 'A very very big difference' is a finalist in the Smiley Charity Film Awards.
Help us win £10,000 for families caring for a terminally ill child by voting here: https://t.co/6XaFnm42LA