Rare Cancer Research Foundation + Pattern.org

Dedicated to finding cures for rare cancers. 🔬 We empower patients to donate tumor tissue to research through our platform, Consent today!

[Rare Cancer Research Foundation + Pattern.org @RareCancerRF]

It may be a #NewYear, but our resolution remains the same: through our fiercely patient-centric approach, we are still working tirelessly to create greatly needed research infrastructure to improve the outcomes and care for #RareCancer patients. 💚💙

[Rare Cancer Research Foundation + Pattern.org @RareCancerRF]

#NewBlog from https://t.co/wlPafYimhs’s Barbara Van Hare on our commitment to #RareCancer patients: https://t.co/ubawkLxQNB

[Rare Cancer Research Foundation + Pattern.org @RareCancerRF]

Collaboration finds cures.

https://t.co/neW5epE5SK

[Rare Cancer Research Foundation + Pattern.org @RareCancerRF]

Happy Holidays! ✨

[Rare Cancer Research Foundation + Pattern.org @RareCancerRF]

Diversity in data is key to making progress in the development of vital #RareCancer treatments. Representation in research leads to better health outcomes for everyone! 🤝

Here at RCRF, we’re working to achieve better health equity for ALL rare cancer patients. Join us today.

[Rare Cancer Research Foundation + Pattern.org @RareCancerRF]

According to our partner the Chondrosarcoma Foundation, only ~19% of rare cancer patients receive genomic sequencing. 🧬

Here at RCRF, we're working to change that. We believe that every #RareCancer patient should have access to this increasingly important information.

[Rare Cancer Research Foundation + Pattern.org @RareCancerRF]

RCRF is fiercely patient-centric.

Tissue donated through https://t.co/wlPafYimhs has helped to create over 58 rare cancer research models and counting!

As Jane says, it’s a game changer. 🤝

[Rare Cancer Research Foundation + Pattern.org @RareCancerRF]

Today is #GivingTuesday2024, and we hope you will consider us in your donation plans as we work to improve outcomes for #RareCancer patients.

Learn more and give today at the link in our bio! 💙💚

[Rare Cancer Research Foundation + Pattern.org @RareCancerRF]

Visit https://t.co/0epghjjWl1 to learn more about our #RareCancer tissue donation initiative.
💚💙 You can make a difference!

[Rare Cancer Research Foundation + Pattern.org @RareCancerRF]

Click for a special message from us. 🦃 Thank you for supporting #RareCancer research! 💙💚

[Rare Cancer Research Foundation + Pattern.org @RareCancerRF]

We’re working to accelerate transformative advances in #RareCancer treatment and we need your help. Tomorrow Can’t Wait. Please consider us in your end-of-year giving and join us today! 💙💚

👉 https://t.co/neW5epDy3c

[Rare Cancer Research Foundation + Pattern.org @RareCancerRF]

We're proud to announce we've been selected as an @ARPA_H Investor Catalyst Hub spoke: connecting researchers, entrepreneurs, & investors to accelerate solutions for innovative biomedical solutions! Excited to bring our expertise in rare cancer research to https://t.co/jpUGKZIjvv

[Rare Cancer Research Foundation + Pattern.org @RareCancerRF]

Happening TODAY at 12pm CT: Live (free) webinar, "Innovations in Rare Cancers," - RCRF President, Dr. Marshall Thompson, will join the panel discussion to share his perspectives on the most pressing issues in rare caner research! Register to join:
https://t.co/yo8pkMXzQf

[EHE Foundation @EHEfoundation]

📣 Mark your calendars for 4/10-4/11 for The EHE Foundation's 2025 EHE 360 Global Patient Conference. More details to follow soon!

#EHE360 #EHE #EHEfoundation #TheEHEfoundation #justlive #rarecancer #EHEcancer #sarcoma #empowerpatients

[Rare Cancer Research Foundation + Pattern.org @RareCancerRF]

Check out this article featuring a few of our team members! Our own @kaydaustin explains how she turned her diagnosis into a mission to help people with #rarecancers.

[Cancer Today @CancerTodayMag]

“My whole clinical history was just sitting there, and nobody was learning from it.” New platforms empower patients to use their clinical data and tissue for cancer research. https://t.co/LpDIzf4kKx @corrie_painter @RareCancerRF @kaydaustin

[Rare Cancer Research Foundation + Pattern.org @RareCancerRF]

Several members of the RCRF team are quoted in this @CancerTodayMag feature on "Patients as Research Partners," which discusses patient-driven rare cancer research programs, such as our https://t.co/wlPafYimhs program & The Broad Institute's Count Me In:
https://t.co/bDUSPAVtoL

[Rare Cancer Research Foundation + Pattern.org @RareCancerRF]

@CureNETs Thanks for sharing!

[Rare Cancer Research Foundation + Pattern.org @RareCancerRF]

@ChanZuckerberg @RareDiseases

[Rare Cancer Research Foundation + Pattern.org @RareCancerRF]

Want to take control of your data? Join us today on #RareCancerDay to sign up to #DonateYourData to the first patient-powered data commons- a resource that will help researchers accelerate discovery for #rarecancers: https://t.co/uaImTmn8Xb

[Rare Cancer Research Foundation + Pattern.org @RareCancerRF]

Our Pattern Data Commons will allow patients to donate their data by consenting to have RCRF collect medical records & sequencing data through a secure online platform. Sign up to learn more & #DonateYourData: https://t.co/uaImTmn8Xb 2/2

[Rare Cancer Research Foundation + Pattern.org @RareCancerRF]

We announced today on #RareCancerDay that we’ll be launching the Pattern Data Commons - a patient-powered data repository that will help researchers accelerate discovery for #rarecancers…1/2