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STAND
@RareCompassion
STudent Advocates for Neglected Diseases
Joined January 2014
224
Following
303
Followers
58
Posts
RareCompassion
retweeted
Global Genes
@GlobalGenes
almost 10 years ago
Join us at the 5th Annual RARE Patient Advocacy Summit this September 22-23! Learn more & register: https://t.co/I2lA0czAs3
#2016GGSummit
STAND
@RareCompassion
about 10 years ago
Pope Francis calls for "globalization of empathy" and increased funding for rare disease research https://t.co/RFk7wYRQjV
@Pontifex
STAND
@RareCompassion
about 10 years ago
Rare families: want to change healthcare? Volunteer to meet a medical student for the 2016 Cox Prize. Learn more: https://t.co/Fqu7YmMzhz
RareCompassion
retweeted
Global Genes
@GlobalGenes
over 10 years ago
Have you joined the
#WRDD2016
event? Join! Share ideas, resources & support w/ others in the Rare Disease Community! https://t.co/MVKWJv7bGr
Who to follow
EveryLife Foundation
@EveryLifeOrg
Nonprofit org. dedicated to advancing the development of treatment & diagnostic opportunities for rare disease patients through science-driven public policy.
RareDiseaseFdn
@rarediseasefdn
Changing the lives of patients affected by rare & undiagnosed diseases through social support, advocacy & treatment-focused research. https://t.co/qWTTVoKeyL
Beyond the Diagnosis
@BeyondtheDx
Beyond the Diagnosis unites art and science to raise awareness for children living with life-altering diseases.
STAND
@RareCompassion
over 10 years ago
Exciting day! 2015
#chemistrynobelprize
honors DNA repair research, central to many rare genetic diseases http://t.co/xS0WPxkKRf
STAND
@RareCompassion
almost 11 years ago
Med students: 10 days to submit to the Cox Prize - 1st place gets $1,500 & chance of publication! Deadline: Aug 10! http://t.co/Fqu7YmMzhz
STAND
@RareCompassion
almost 11 years ago
Med students: consider this year's Cox Prize and share a rare experience you'll carry with you in the years ahead http://t.co/Fqu7YmMzhz
STAND
@RareCompassion
about 11 years ago
2015 David R. Cox Prize for Rare Compassion now open to all US/Canada/UK med students (1st gets $1,500!), learn more: http://t.co/jWoJCpVnYB
STAND
@RareCompassion
about 11 years ago
FDA to consider promising new combination therapy for Cystic Fibrosis http://t.co/n7QLv4Dpmz
STAND
@RareCompassion
over 11 years ago
Med student with Pompe running marathon for the United Pompe Foundation - a story worth hearing and supporting http://t.co/8fKLMK672Q
STAND
@RareCompassion
over 11 years ago
FDA approved "41 first-of-a-kind drugs in 2014, including a record number of medicines for rare diseases" http://t.co/bNTXmlXU3H
@ABC
STAND
@RareCompassion
over 11 years ago
Congenica aims for fast, efficient, and definitive diagnosis of rare genetic diseases http://t.co/Rlfdc8tPcY
@SelectScience
STAND
@RareCompassion
over 11 years ago
David R. Cox Prize for Rare Compassion: Winner Announced! http://t.co/P6fDfdccwh
STAND
@RareCompassion
over 11 years ago
Reminder that the unique challenges facing rare disease communities globally extend far beyond the science http://t.co/5JGAfhmWK8
STAND
@RareCompassion
over 11 years ago
"Orphan drug sales will make up 19% of the total share of prescription drug sales by 2020, totaling $176 billion" http://t.co/l9OcwWlRGh
STAND
@RareCompassion
over 11 years ago
How could rare disease research help us combat Ebola? Studying Niemann-Pick has shed light on the infection: http://t.co/7oe8i5u4UZ
@WSJ
STAND
@RareCompassion
over 11 years ago
Unique Myasthenia Gravis hike in Beijing brings valuable attention to the disease http://t.co/Zjk0elzhhF @womenofchina
STAND
@RareCompassion
over 11 years ago
Exciting
@US_FDA
grants totaling >$19M for rare diseases http://t.co/NF0PuwhJG6
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