Megan Slattery

Rare Disease (#MAE) #Epilepsy Mom-vocate. Former IT Consultant. Health & Wellness Enthusiast.

[Megan Slattery @RareDiseaseMAE]

@Helmets4Helmets @CoachAT23 The surgery is a quick recovery for vns. It isn’t a big surgery. When weighing risk vs benefit, it is worth the surgery. 60% seizure reduction on average. It shortens length (and therfore rescue meds and hospital stays) as well as number of seizures.

[Megan Slattery @RareDiseaseMAE]

@Helmets4Helmets @CoachAT23 VNS and DBS/RNS neuromodulation devices can help your son! https://t.co/0yHjwsHw4I

My husband is an MD and our son has Doose/LGS. The VNS has been huge but it takes time to ramp up. Fintepla was another win. Currently consulting for DBS/RNS. Pls reach out with any questions.

[Taylor J. Abel @TaylorAbelMD]

This is such a great message. Let’s disagree better!

[Effie Parks @OnceUponAGene]

@lajollalabs on the pod "I took the opportunity to lead La Jolla Labs as CEO. We are taking the lab that was previously locked behind the doors of pharmaceutical companies and making it accessible to anyone in the world. We work directly with foundations and academic groups.

[Megan Slattery @RareDiseaseMAE]

@coldplay continues to lead the way towards more environmentally friendly & sustainable touring! If there is a will…

[Coldplay @coldplay]

An update on our sustainable touring initiatives 💚

https://t.co/KmgrbEXmld

#MusicOfTheSpheresWorldTour

[Effie Parks @OnceUponAGene]

🚨Hot off the Press: The @UDNForg
The #Undiagnosed Disease Foundation has launched with extreme passion to improve & expand access to DX, research and care. I am honored to serve as a member of their board alongside some brilliant advocates. #RareDisease
https://t.co/CfkXNKcXvQ

[Scotty Gange @Scotty_G6]

It's been a tragic week for the Dakota Ridge HS community.

Friday night, 17-year-old Brady Hoos died unexpectedly from a seizure.

Today, Jeff Legault, DR's head baseball coach, shared what made Brady such a special kid. @DRHS_Athletics

[Megan Slattery @RareDiseaseMAE]

#AI + medicine = faster, more accurate diagnosis, not only for cancer but for all conditions and diseases. Grateful for technological advances

[MIT Technology Review @techreview]

This study shows that incorporating AI into breast cancer screening allows radiologists to detect cancer more accurately while dramatically reducing their workloads. https://t.co/1DKoFBDdhS

[Megan Slattery @RareDiseaseMAE]

Elections may be over but this video is still SO relevant. This country has to get their sh*t together on #guns, #womensrights and #minoritiesrights . Absolute insanity on how “normal” #shootings are in public and schools!! 😭😭

[Governor Jared Polis @GovofCO]

The new comedy, “Champions”, stars two amazing actors who have Down Syndrome, Kevin Lannucci and Madison Tevlin. This is a must-watch!

https://t.co/AHAUCM3UW3

[Megan Slattery @RareDiseaseMAE]

The moral of the story:
It is plain ignorance to judge those with disabilities. They deserve respect; They have had to overcome the most adversity of all minorities, for way too long.

https://t.co/7MHOuJ2SGg

#WorldDownsSyndromeDay #AbilitynotDisability

[Megan Slattery @RareDiseaseMAE]

@shannonrwatts That is insane

[Danny Did Foundation @DannyDidOrg]

⁦@DannyDidOrg⁩ is excited to be at the 1st conference on the use of Artificial Intelligence to improve life for people with #epilepsy as tied to #seizure forecasting, clinical trials, & interpreting data. Big 🙏 to Dr Sam Lhatoo & his team at ⁦⁦@UTHealthHouston⁩.

[Globant @Globant]

It can take a decade to diagnose a rare disease. 10 years dealing with uncertainty! There are over 7,000 known rare diseases.🌎

Tech such as #AI & #BigData are helping🩺👩‍⚕️👨‍⚕️ diagnose more quickly and accurately. Read more ➡️https://t.co/dD4pli8D7Z

#RareDiseaseDay

[This account is no longer active @nihseed]

NIH-funded @genomenon develops #AI-driven genomics & provides access to genomic data to accelerate rare disease diagnosis, treatments, and cures. Learn more about them in our #SBIR #STTR success story. https://t.co/IVFTFZvSDJ #RareDiseaseDay

[Mayo Clinic Center for Individualized Medicine @MayoClinicCIM]

Mayo Clinic is one of the National Organization for Rare Disorders (#NORD) Centers of Excellence, devoted to providing diagnoses, treatment and care for patients with rare diseases. #RareDiseaseDay https://t.co/WTkuYSJ9nR

[tamarciment @tamarciment]

My uncle who is a professor at a university asked ChatGPT if his students’ work was generated by ChatGPT. This is what happened:

[Jen VanHoutan @FarnieVanHoutan]

Noah & Laine's painting, by Dan Lake, was featured in NYC’s Times Square! This represents our global rare community, families, PAGs, researchers & physicians who work so hard for simple improvements for a better quality of life for those living with Rare! #BattenDisease

[National Organization for Rare Disorders (NORD) @RareDiseases]

#LightUpForRare 💙💜💚

[EURORDIS-Rare Diseases Europe @eurordis]

For young people with a rare disease, equity means access to education, from elementary school to university.

They do not want to and should not have to miss out on the wealth of knowledge and the opportunities that education provides.

#RareDiseaseDay #LightUpForRare