RareDiseaseWeekPH

Presidential Proclamation 1989 declared every last week of February as the “National Rare Disease Week” in the Philippines.

[PSODCareForRare @PSODCareForRare]

WEBINAR | Dare. Love. Share.: Raising Rare Disease Awareness Towards Equity in Healthcare on 25 March 2023, 9:00 AM - 12:00 NN #CareForRarePH

Organized by the @DLSUDasmarinas SLG 111 Term 1, AY 2022-2023 Class - Team Dare to Rare

EVENT PAGE https://t.co/SyKLHxcAij

[PSODCareForRare @PSODCareForRare]

The Philippines joins the world for #LightUpForRare and @RareDiseaseDay 2023!

📷Rizal Monument, Manila @NPDC_PH

#CareForRarePH #ShareYourColours

[PSODCareForRare @PSODCareForRare]

The Philippines joins the world for #LightUpForRare and @RareDiseaseDay 2023!

📷Quezon Memorial Shrine @QCGov

#CareForRarePH #ShareYourColours

[Ryan Pascual @rypascual]

No one will be left behind #UHCWatch #CareForRarePH Follow @PSODCareForRare

[PSODCareForRare @PSODCareForRare]

Love is not rare. Lend your voice to Filipinos with rare disorders. Join the #CareForRarePH campaign. The last week of February is National Rare Disease Week Philippines #ShareYourColours #LightUpforRare https://t.co/RN6KM4mFZK

[Rare Disease Day @rarediseaseday]

Everyone is invited to light or decorate their home with the #RareDiseaseDay colours at 🕖 7 PM your local time on Monday, 28 February 2022.

With #LightUpForRare we spread a message of solidarity and hope to the rare disease community.

Get involved 👉 https://t.co/gcLxh9wTT4

[PSODCareForRare @PSODCareForRare]

𝗝𝗼𝗶𝗻 𝘂𝘀 𝗳𝗼𝗿 𝗪𝗲𝗮𝗿 𝘁𝗵𝗮𝘁 𝗬𝗼𝘂 𝗖𝗮𝗿𝗲 "𝗕𝗹𝘂𝗲 𝗝𝗲𝗮𝗻𝘀 𝗗𝗮𝘆" 𝗮𝗻𝗱 𝗥𝗮𝗶𝘀𝗲 𝘆𝗼𝘂𝗿 𝗛𝗮𝗻𝗱𝘀 𝗳𝗼𝗿 𝗥𝗮𝗿𝗲. Post your photos in social media with the hashtags #CareForRarePH and #ShareYourColours #RareDiseaseDay
DOWNLOAD AT https://t.co/6yDs67NJgl

[PSODCareForRare @PSODCareForRare]

Tomorrow, February 28, is Rare Disease Day, a globally coordinated movement for rare diseases, and the culmination of National Rare Disease Week 2022. #CareForRarePH #ShareYourColours

[PSODCareForRare @PSODCareForRare]

@TheCCPofficial we hope you can join us for #LightupforRare for #RareDiseaseDay on 28 February. #ShareYourColours Check the mechanics at https://t.co/RuW74nLYVI

[PSODCareForRare @PSODCareForRare]

@ManilaPIO @CathedralManila @QuezonCityInfo @QCGov we hope you can join us for #LightupforRare for #RareDiseaseDay on 28 February. #ShareYourColours Check the mechanics at https://t.co/FafaZ3T2BW

[PSODCareForRare @PSODCareForRare]

IT'S OFFICIAL! The Philippines will join the global chain of lights. The Rizal Monument, through the @NPDC_PH will be lighted with purple for #RareDiseaseDay on 28 February. All for raising awareness & support for people living with rare diseases. #CareForRarePH #ShareYourColours

[PSODCareForRare @PSODCareForRare]

Dr. Carmencita Padilla, Founding Chairperson of the Philippine Society for Orphan Disorders Incorporated and Chancellor @UPManilaOnline will represent the Philippines to the global event. #CareForRarePH #ShareYourColours

REGISTER NOW at https://t.co/W4PXTdqtX5

[PSODCareForRare @PSODCareForRare]

REGISTER NOW | The NGO Committee for #RareDiseases, Ågrenska Foundation, @rarediseasesint, and @eurordis will jointly organize the 2022 Global Rare Disease Day Event on 28 February 2022, 2;30 PM (Philippine Time) #CareForRarePH #ShareYourColours

GO TO: https://t.co/W4PXTdqtX5

[VYLH-Philippines @vylhphilippines]

Aside from a series of NBS videos, the NSRC @newbornscreenph is also developing a mobile app specific for the newborn screening program. It seeks to provide updates and information about the program and also includes a loyalty and rewards points system for continuous engagement.

[VYLH-Philippines @vylhphilippines]

YOUTH FOR HEALTH | Government and Academe Focus on Rare Diseases
Read more about the 12th Nat'l Rare Disease Week Webinar organized by @UPManilaOnline, @IHGenetics together with @vylhphilippines and @PSODCareForRare #YouthForHealth #CareForRarePH
Go to https://t.co/FBwAxmLiBK

[VYLH-Philippines @vylhphilippines]

For #WorldBDday 2021, we are reuploading our first webinar on Birth Defects. In the video, Dr. Mary Ann Abacan, a clinical geneticist and pediatrician, presents an overview of birth defects. #ManyBirthDefects1Voice
Watch it in the @WorldBDDayPHL FB page: https://t.co/NGrRO5PPHi

[PSODCareForRare @PSODCareForRare]

PSOD joins #NCDA and the nation in observance of National #Disability Prevention and Rehabilitation Week. PSOD joins the call on providing access to food, medicine and assistive devices among PWDs and on making this a priority during this #COVID19 pandemic. #CareForRarePH

[PSODCareForRare @PSODCareForRare]

WHAT ARE IEMs or INBORN ERRORS OF METABOLISM?

Keep posted for PSOD's social media series on IEMs. Our goal is to increase awareness through a campaign to be held during the month of July - the country's Nutrition Month. #CareForRarePH

[VYLH-Philippines @vylhphilippines]

The "Kalusugan ay Karapatan", an online @TVUPph program, is currently airing a series on COVID-19. The program is hosted by @vylhphilippines Nat'l Adviser and @UPManilaOnline Chancellor Dr. Carmencita Padilla. #COVID19PH

Read more at #YouthForHealth https://t.co/rhuP8asNo4

[PSODCareForRare @PSODCareForRare]

Some of the CoVID-19 Hotlines | Together, we can beat #CoVID19PH #WeHealAsOne