The Rare Disorder Podcast

A podcast dedicated to raising awareness for rare diseases and disorders 5K+ active listeners, 1K+ followers, 35 ep. & growing | Host @ShivaniGVyas

[The Rare Disorder Podcast @RareDisorderPod]

@RareNewEngland my favorites are @OnceUponAGene @SyngapNetwork and @myraredisease

[The Rare Disorder Podcast @RareDisorderPod]

@PatientWorthy @RareNewEngland @McyrMph @NORDpodcast @OnceUponAGene @JordansGAngels @2DDPodcast Thank you!

[The Rare Disorder Podcast @RareDisorderPod]

Today marks the first day of rare disease month! Stay tuned for activities and fun things throughout the month!

Shivani

#theraredisorderpodcast #raredisorderpod
#raredisease #rarediseases #rarediseaseawareness #rarediseaseday

[The Rare Disorder Podcast @RareDisorderPod]

Looking for a social media intern to help me out with the whole social media aspect of the podcast :) Apply via LinkedIn under The Rare Disorder Podcast.

#theraredisorderpodcast #raredisorderpod
#raredisease #rarediseases #rarediseaseday #internship #socialmediaintern

[The Rare Disorder Podcast @RareDisorderPod]

A quote from Saturday’s podcast…link in bio to stream! 🎙🦓

#theraredisorderpodcast #raredisorderpod
#raredisease #rarediseases #rarediseaseawareness #rarediseaseday #donate

[Dan Dry Dock Shockley @DryShockley]

As a 10 year hereditary colon cancer warrior here's my latest podcast guest appearance:
https://t.co/JX3k0sqKPh

Always Forge Ahead w/a Purpose!

[The Rare Disorder Podcast @RareDisorderPod]

New episode with @DryShockley Hear about rare disease advocacy from the point of view of a 10-year Hereditary Colon Cancer Warrior & Veteran. Such a great episode!

#theraredisorderpodcast #raredisorderpod
#raredisease #rarediseases #rarediseaseawareness #rarediseaseday #donate

[The Rare Disorder Podcast @RareDisorderPod]

Donations are now live for The Rare Disorder Podcast! Please consider donating, it’ll really help me out!

#theraredisorderpodcast #raredisorderpod
#raredisease #rarediseases #rarediseaseawareness #rarediseaseday #donate

[The Rare Disorder Podcast @RareDisorderPod]

Saturday = best day, because it’s The Rare Disorder Podcast upload day! Tomorrow at 2PM Eastern! Mark your calendars 📆.

#theraredisorderpodcast #raredisorderpod
#raredisease #rarediseases #rarediseaseawareness #rarediseaseday

[The Rare Disorder Podcast @RareDisorderPod]

@sami_sorid WOO HOO

[Cure Rare Disease @CureRareDisease]

Meet our new #intern, Shivani Vyas! While Shivani may be new to the #CureRareDisease team, she is not new to the rare disease community. Read more about Shivani’s dedication to the #raredisease community in her new #blog post:
https://t.co/bt1NscnoDK

[The Rare Disorder Podcast @RareDisorderPod]

New episode will go up Saturday! 🦓💜🤍

#theraredisorderpodcast #raredisorderpod
#raredisease #rarediseases #rarediseaseawareness #rarediseaseday

[The Rare Disorder Podcast @RareDisorderPod]

@RareStrides

[The Rare Disorder Podcast @RareDisorderPod]

Hear from a registered RN nurse, with bedside experience! We talk about restoring the patient provider relationship, eliminating barriers to care, and delivering free programs and evidence-based resources to improve quality of life/care.

[The Rare Disorder Podcast @RareDisorderPod]

@RareStrides

[The Rare Disorder Podcast @RareDisorderPod]

A quote that resonated with me from last Saturday’s podcast - take a listen if you haven’t already! 🦓💜🤍

#theraredisorderpodcast #raredisorderpod
#raredisease #rarediseases #rarediseaseawareness #rarediseaseday

[The Rare Disorder Podcast @RareDisorderPod]

And all of these topics come with first-hand experience of Beth Nguyen, with extensive background and experience with rare disease patients, as well as her having a rare disease herself—-Syringomyelia!

#theraredisorderpodcast #raredisorderpod
#raredisease

[The Rare Disorder Podcast @RareDisorderPod]

NEW EPISODE LIVE! Link in bio to listen. This is the episode we have all been waiting for! 🦓🤍

I'm so honored to chat with Beth Nguyen. Beth is the Managing Director; Founding Partner, and President of Rare STRIDES. @RareStrides

[The Rare Disorder Podcast @RareDisorderPod]

With a very special guest. Stay tuned! 🎙
#theraredisorderpodcast #raredisorderpod
#raredisease #rarediseases #rarediseaseawareness #rarediseaseday

[The Rare Disorder Podcast @RareDisorderPod]

Getting many requests lately about being on the pod - if you’re interested, please email me! 💌[email protected]
#theraredisorderpodcast #raredisorderpod
#raredisease #rarediseases #rarediseaseawareness #rarediseaseday